Mayo Clinic Connect
I have a friend suffering from pulminary hypertension. Trying to connect him with a group on connect. Any suggestions?
@hopeful33250 Of course the equipment is adjustable — if you can figure out how to adjust it. There are two gyms at my club, the upstairs one where I go does not really have lifting equipment. When my son is visiting and I bring him he goes downstairs and I go upstairs.
I did go to the gym section of my club yesterday but felt so inadequate. The only things I am comfortable with there are the treadmills and ellipticals. My PT said he might come to help me transition from the equipment at the PT place where his to this equipment but so far he has not followed on it.
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@contentandwell That sounds like a great idea, perhaps you need to jog his memory! Teresa
@windwalker What a great suggestion. I have heard of these classes before! Teresa
Hello my name is Dave I’m new here so bare with me. I was diagnosed with Pulmonary Hypertension on Feb 17,2017 I have had a lot of heart health issues since birth. (oh by the way I’m 62 years young) I’m just looking for someone to I can relate to. Thanks
Well as far as heart issues it started when in 1961 that my mitral valve was not working properly. In 1966 I had open heart surgery at Henry Ford Hospital in Detroit, MI (I was 11 years old) After that I was able to do just about anything for 41 years. Then things went the other way in 2007 I had a heart attack they put 5 stents in. Between then and 2015 I had 3-5 bouts of Atrial Fibrillation and then on May 25,2015 I had another heart attack which lead to by pass surgery in Sept. 2015. It was after that around Nov. 2015 I became shorter and shorter of breath. Well as we all with PH how long it takes to finally get diagnosed with PH it was Feb.17,2017 for me. I have had all the test you can think of from heart to lungs but it wasn’t until I had the right heart cath that they found out I had PH. I also have sleep apnea on top of all that. I have oxygen hooked to my cpap machine and I also have portable oxygen. I hope this wasn’t to long, I’m looking forward to hear from other folks. Thank You Dave
Hi Dave, I too have mild mitral valve prolapse due to having Rheumatic fever as a child, and suffered with SVT since age 20. COPD since age 30. (never smoked) I swear, I must be the poster-child for ALL things cardio-pulmonary illness. I have had or do have just about everything that has been mentioned on this blog. No, I am not kidding! Was put through pre-qualifying tests for a double lung transplant last Dec. because my docs are worried about my steadily declining lung function. Discovered I have the beginning of PH, probably due to my MANY co-morbid diseases. I had been sick as a dog for years and sure I wouldn’t live to see 2017. I am doing great now, and don’t even feel unwell anymore. I owe this to my dr at Mayo putting me on Tobramycin. It totally changed my world. I strictly follow my doctor’s orders, take all meds on a schedule. (and exercise) I think that all accounts for my feeling so good these days. -Terri M.
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@windwalker Congratulations on finding help for your health problems. I am glad to hear that you are doing so much better! Thanks for sharing your story with us at Mayo Connect. Teresa
@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa
@hopeful33250 Hi Teresa, I had my appointment and it went well. In the morning I got an email that my test results were posted in the portal so I quickly printed them out so I could discuss the numbers with the doctor. I think all but one were within range and the doctor was not concerned at all. Basically they were better than they were pre-transplant so I have no future appointments scheduled.
You ask what the number is but there are many numbers and I do not see one number that would summarize. What number are you referring to?
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@dave2455 Hi Dave, it sounds like you have really been through the ringer. I presume with the current therapies, CPAP, oxygen, that you are feeling somewhat better thankfully.
Why is is difficult to diagnose PH? I just had an ECHO for it and saw the doctor yesterday, are those measures not enough for an accurate diagnosis? My numbers were better than they were 11 months ago and most were within range so he was not concerned at all.
Your post really was not that long, by the way.
@windwalker , Your story makes my heart sing. It’s always so nice to hear of someone doing better under such difficult diagnoses. I am really glad that you are feeling so good, that’s all most of us want, isn’t it?
@contentandwell I’m glad that your Echo showed such great improvement. I sent you a private email message regarding the number I was talking about. Thanks! Teresa
Yes! A lot of it is attitude too! Think well, be well!
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Hi. Please refresh my memory, what kind of transplant did you have? -Terri M.
@windwalker Hi, if that question is directed to me, I had a liver transplant in September, 2016.
@hopeful33250 Believe me I have tried, but I don’t want to nag, it’s his decision. He’s a very devoted family man and his one day off during the week he does a lot of work around his home.
@contentandwell That is very considerate of you! Teresa
@hopeful33250, my PT is a great guy, we have a wonderful rapport and if I need a PT again I will definitely go to him. He’s about 40 and we enjoy talking about out kids while doing PT. He sounds like a wonderful Dad, very involved with his children. I’ve been to about four different physical therapists at various times for various things but he is by far the best.
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