Mayo Clinic Connect
I have a friend suffering from pulminary hypertension. Trying to connect him with a group on connect. Any suggestions?
Hello @freefromdrug1, How kind of you to be helping your friend who is dealing with pulmonary hypertension. Here is a Mayo website where you can get more information about the disorder: http://www.mayoclinic.org/Hypertension/Pulmonary. Also, I’m inviting into this conversation several Mayo Connect members as they have mentioned this disorder as well, @contentandwell @joyful556 @windwalker and @loisblo. I hope that your friend will become part of Mayo Connect and avail himself of all of the good support that is offered here! Best wishes to him and you, Teresa
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@hopeful33250 Thank you Teresa, I am looking forward to checking this out later, right now I am about to leave for water exercise. I had an ECHO on Tuesday for that condition and my appointment with the doctor is on Tuesday. Hopefully all is OK.
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@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa
Hello my name is Dave I’m new here so bare with me. I was diagnosed with Pulmonary Hypertension on Feb 17,2017 I have had a lot of heart health issues since birth. (oh by the way I’m 62 years young) I’m just looking for someone to I can relate to. Thanks
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Welcome to Connect. You’ve come to the right place to meet others who share similar health issues. Here in this discussion, you’ll meet Teresa and JK. I’m hoping that @windwalker @tula @ziva @loisblo @cyndiblaw @joyful556 and others will also join this discussion group to share their experiences with pulmonary hypertension.
While we wait for others to jump into the conversation, Dave why don’t you tell us a bit more about yourself. What other heart issues have you been dealing with? What led to the pulmonary hypertension diagnosis? What symptoms are you managing or lifestyle choices are you looking at? That’s probably too many questions. I’ll let you decide what you wish to share 😉
@hopeful33250 Thanks Teresa. I’m not worried, I tend not to be so when something bad does happens I’m always surprised! I guess I was borderline 11 months ago in the tests so they just want to check again. According to what I read on the link the only possible symptom I have is my BP is currently running from the high 130s to about 170. I am sort of hyper recently so I don’t know if there is a connection. I feel like I’m on speed or something! Prior to transplant my systolic was in the 115 range prior to transplant and my diastolic in the 60s which it still is.
@contentandwell I am considered “borderline” as well. If you don’t mind sharing the info would you tell me what the Echo shows the number as? Teresa
@dave2455 Hi Dave: Let me add my welcome. As Colleen mentioned we would like to get to know you better. I also have borderline pulmonary hypertension, the higher # show up on an Echo. I’ve also had heart issues since age 11 and have been having Echos on a regular basis. If you are comfortable sharing any symptoms, treatment, etc. we would appreciate it!
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@contentandwell I have had PH o about 60 for ten years. It’s due to a compromised lung function. I’m on the treadmill 4x a week. Garden and walk dogs normally.
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@hopeful33250 Hi Teresa, the results are not showing on the portal so I will have to wait until tomorrow to find out. If I recall correctly they did used to show but I think some of the doctors did not like patients to have that information prior to their doctor visit. When I do find out I certainly do not mind sharing.
@ronbee Thanks Ron. Hopefully if I am now classified as having PH it will not be serious enough to impact my lifestyle. I do pool exercises about 4 or 5 times a week, ride my recumbent bike, and occasionally get up the guts to go the gym at my club. I hate the gym, I am ridiculously intimidated by the equipment.
@contentandwell I understand what you mean about being intimidated by the equipment. I find it very hard to adjust the equipment to deal with the fact that I’m 5 feet tall and everything seems to be set up for the 6 foot guys who try to lift 50 plus pounds. In a pool all of those problems are gone! Teresa
Hi Dave, welcome to the group. Such a great source of information. My borderline pulmonary hypertension was found doing an echo. I was told I also have sleep apnea and I must wear a mask at night to keep the PH from getting worse. The sleep study showed my heart had to work too hard when my oxygen went down.
@hopeful33250 Of course the equipment is adjustable — if you can figure out how to adjust it. There are two gyms at my club, the upstairs one where I go does not really have lifting equipment. When my son is visiting and I bring him he goes downstairs and I go upstairs.
I did go to the gym section of my club yesterday but felt so inadequate. The only things I am comfortable with there are the treadmills and ellipticals. My PT said he might come to help me transition from the equipment at the PT place where his to this equipment but so far he has not followed on it.
I don’t do well with the equipment either. It has become too technical now. I go to Silver Sneakers class three times a week. It is an hour and ten minutes with the best teacher. She keeps our cardio going with sitting and standing exercises, lots of muscle building too along with exercises that help the brain as well.
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