1. < COPD: Chronic obstructive pulmonary disease

Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

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hicopd | @hicopd | Mar 7 8:01am

I’ve heard it’s more helpful for folks with chronic bronchitis. That’s not my condition so I have not had it recommended to me.

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hellopam | @hellopam | Mar 7 10:08am
In reply to @whaler13 "Wife’s taken it 2 weeks -0 improvement Advertised as Patient’s feel better after first treatment Not..." + (show)
@whaler13

Wife’s taken it 2 weeks -0 improvement
Advertised as
Patient’s feel better after first treatment
Not - “Some patients”
They just to market the product
Miss representing

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Sorry to hear that. I was hoping for some good news but so far the reviews are pretty negative. Good to know before I spend a lot of money on another worthless product!

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hellopam | @hellopam | Mar 7 10:11am

I've been prescribed it but have yet to use it. The company sent me a 'bridge' package but when I shake the vial, there are white clumps in it. So they sent me a 2nd package and same result. Still waiting to see what's next. According to the rep, there are NOT supposed to be white clumps. UGH!

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pamelaaci | @pamelaaci | Mar 8 10:41am
In reply to @hellopam "I've been prescribed it but have yet to use it. The company sent me a 'bridge'..." + (show)
@hellopam

I've been prescribed it but have yet to use it. The company sent me a 'bridge' package but when I shake the vial, there are white clumps in it. So they sent me a 2nd package and same result. Still waiting to see what's next. According to the rep, there are NOT supposed to be white clumps. UGH!

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The white clumps will easily dissolve if you shake the plastic ampule back and forth and tap on a flat surface. No problem. Not sure why the rep gave you that info. Others have mentioned they are fine once they shake them vigorously as well.

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marczappa | @marczappa | Mar 8 11:26am

Started it yesterday. I called the company and pharmacy. The residue looks like soap bubbles and is natural. Not clumpy solid.

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hellopam | @hellopam | Mar 8 11:57am
In reply to @pamelaaci "The white clumps will easily dissolve if you shake the plastic ampule back and forth and..." + (show)
@pamelaaci

The white clumps will easily dissolve if you shake the plastic ampule back and forth and tap on a flat surface. No problem. Not sure why the rep gave you that info. Others have mentioned they are fine once they shake them vigorously as well.

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I've done that but I'll try again. Thanks.

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pamelaaci | @pamelaaci | Mar 8 7:06pm
In reply to @marczappa "Started it yesterday. I called the company and pharmacy. The residue looks like soap bubbles and..." + (show)
@marczappa

Started it yesterday. I called the company and pharmacy. The residue looks like soap bubbles and is natural. Not clumpy solid.

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Should be fine. Am sure the different temperatures around the country cause that.

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darlenec | @darlenec | Mar 15 6:52pm
In reply to @kndaustin71 "Not sure that I understand what you mean by "you crashed." But do hope all is..." + (show)
@kndaustin71

Not sure that I understand what you mean by "you crashed." But do hope all is better! Ohtuvayre (OH) is meant to be an add-on medication. There certainly was alot of hype, their stock is going up and prescriptions are being written by the thousands, however, the feed-back that I have seen has not been all that great! Am so disappointed as I have had issues with Dupixent and Daliresp.....so was hoping this would be the answer!

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Hello, I also had issues with Delaresp. I was on that for over a year and was in the bathroom a whole lot. Now they put me on this medicine OHTUVAYRE. I’ve only been on it for three days and I can’t catch my breath. I hadn’t been on it that long but I don’t see where it’s helping any it seems to be hurting me more than anything else so I stopped taking it and I will call my pulmonologist Monday morning

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parpro | @parpro | Mar 16 2:29pm

I was on it for about 6 weeks. Thought I would give it 3 months- but saw no results. Possibly worse. So I too recently stopped. Now waiting for Dupixent. But not optimistic about that either. Something to do with blood.
Hate this quality of life. Feeling discouraged b

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fef | @fef | Mar 17 7:51am
In reply to @parpro "I was on it for about 6 weeks. Thought I would give it 3 months- but..." + (show)
@parpro

I was on it for about 6 weeks. Thought I would give it 3 months- but saw no results. Possibly worse. So I too recently stopped. Now waiting for Dupixent. But not optimistic about that either. Something to do with blood.
Hate this quality of life. Feeling discouraged b

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That’s natural, but I think that one of the most important things in life is ACCEPTANCE
I am 91 in April and have more things Wong with me than Carter has little liver pills, but I still mange to fish, bowl, hike all of which require pushing myself..
Push yourself, try Yoga and swimming, well just floating anything that will relax you.
My breathing is really bad, but that’s just the way it is, ACCEPTANCE
I find reading and watching good movies help tremendously .
Anything to get your mind off of your problems. PUSH, PUSH, PUSH.

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