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Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

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hicopd | @hicopd | Mar 7 8:01am

I’ve heard it’s more helpful for folks with chronic bronchitis. That’s not my condition so I have not had it recommended to me.

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hellopam | @hellopam | Mar 7 10:08am
In reply to @whaler13 "Wife’s taken it 2 weeks -0 improvement Advertised as Patient’s feel better after first treatment Not..." + (show)
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Wife’s taken it 2 weeks -0 improvement
Advertised as
Patient’s feel better after first treatment
Not - “Some patients”
They just to market the product
Miss representing

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Sorry to hear that. I was hoping for some good news but so far the reviews are pretty negative. Good to know before I spend a lot of money on another worthless product!

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hellopam | @hellopam | Mar 7 10:11am

I've been prescribed it but have yet to use it. The company sent me a 'bridge' package but when I shake the vial, there are white clumps in it. So they sent me a 2nd package and same result. Still waiting to see what's next. According to the rep, there are NOT supposed to be white clumps. UGH!

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1 reply
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gotone | @gotone | Mar 7 12:00pm
In reply to @hellopam "I've not had good luck getting the Ohtuvayre vials to mix properly. Mine get cloudy but..." + (show)
Profile picture for hellopam @hellopam

I've not had good luck getting the Ohtuvayre vials to mix properly. Mine get cloudy but with clumps of white still in it. Can't find anyone who can tell me if it's safe to take. Seeing my pulmonologist in a couple of weeks so maybe he can tell me. Very frustrating. Even filed the issue with the company but no answer yet.

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After shaking vigorosuly mine turns milky, I am thanking that is normal

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hellopam | @hellopam | Mar 7 2:19pm
In reply to @csv "Is anyone taking Ensifentrine (Ohtuvayre) for copd?" + (show)
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Is anyone taking Ensifentrine (Ohtuvayre)
for copd?

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I have tried warming it in my hands and that doesn't help. The clear liquid does turn a little milky but not close to a pale yellow. Verona Pharma supplied it. They're very nice but haven't resolved the issue for me as yet.

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hellopam | @hellopam | Mar 7 2:21pm
In reply to @hicopd "I’ve read of some folks taking Ensifentrine on this Board as well as on Copdfoundation.org’s COPD360social...." + (show)
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I’ve read of some folks taking Ensifentrine on this Board as well as on Copdfoundation.org’s COPD360social. A few have had GREAT results and some have not found it helpful. It’s like all treatments, you have to see how well it helps YOU as an individual. I believe it’s most helpful to folks who have a lot of mucus vs those of us who rarely have much.

It’s a nebulized medication taken 2x/day. There are discount programs but the manufacturer’s recommended price is fairly high. It was just approved in late 2024.

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I think it's very expensive - my co-pay is 575.00 a month. That's a lot of money! Plus I take Trelegy and other meds. It all adds up!

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hicopd | @hicopd | Mar 7 4:37pm
In reply to @csv "Is anyone taking Ensifentrine (Ohtuvayre) for copd?" + (show)
Profile picture for csv @csv

Is anyone taking Ensifentrine (Ohtuvayre)
for copd?

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Some folks are getting some relief for Medicare medications with the new $2000/yr prescription drug cap. Sadly the nebulized meds don’t fall under that cap.

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hellopam | @hellopam | Mar 8 10:29am
In reply to @hicopd "Some folks are getting some relief for Medicare medications with the new $2000/yr prescription drug cap...." + (show)
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Some folks are getting some relief for Medicare medications with the new $2000/yr prescription drug cap. Sadly the nebulized meds don’t fall under that cap.

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Who makes these decisions? Geez...medicine is medicine.

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pamelaaci | @pamelaaci | Mar 8 10:41am
In reply to @hellopam "I've been prescribed it but have yet to use it. The company sent me a 'bridge'..." + (show)
Profile picture for hellopam @hellopam

I've been prescribed it but have yet to use it. The company sent me a 'bridge' package but when I shake the vial, there are white clumps in it. So they sent me a 2nd package and same result. Still waiting to see what's next. According to the rep, there are NOT supposed to be white clumps. UGH!

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The white clumps will easily dissolve if you shake the plastic ampule back and forth and tap on a flat surface. No problem. Not sure why the rep gave you that info. Others have mentioned they are fine once they shake them vigorously as well.

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hellopam | @hellopam | Mar 8 10:44am
In reply to @csv "Is anyone taking Ensifentrine (Ohtuvayre) for copd?" + (show)
Profile picture for csv @csv

Is anyone taking Ensifentrine (Ohtuvayre)
for copd?

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Google and log into Patient Advocate Foundation, Co-pay Relief. They opened a fund for COPD and you can see if you qualify for financial help.

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