Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

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Profile picture for kdalda75 @kndaustin71

I believe that I have commented on this before but am unable to find my posting. Are postings being screened and/or deleted based on content?

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There was another thread on this as well

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Profile picture for tammyjl @tammyjl

Mine is clear the turns pail yellow al.ost white

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why is nobody researching urgently peptides ?
initial comments are very promising, but nobody shows interest. why ???
maybe because they might actually cure . ...

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Profile picture for taipan @taipan

why is nobody researching urgently peptides ?
initial comments are very promising, but nobody shows interest. why ???
maybe because they might actually cure . ...

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please talk to your doctors and politicians to get them going

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Profile picture for taipan @taipan

why is nobody researching urgently peptides ?
initial comments are very promising, but nobody shows interest. why ???
maybe because they might actually cure . ...

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Yes, and stem cells. Things seem to be going nowhere fast…

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I have stage emphysema and tried it. It's very expensive but fortunately insurance covered it. The first time after 3days my symptoms were worse. I called the pharmacist at the drug company and was told to stop for a few days and try again. Idid,with the same result. It works for some but not for me.

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Profile picture for lovemyboys @lovemyboys

Mine is yellow and I shake until it turns white- this is opposite what you said

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Mine is almost clear with a yellow layer in bottom. Once I shake it it turns cloudy pale yellow.

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I have been on Ohtuvayre for about 5 months along with Dupixent. I have not notice any improvement with either of them. I also take trelegy. I’m not sure why I am on Dupixent, I never had high eosinophil levels. Caught the Flu type A in February while on both of them and spent 6 days in the hospital. Now on O2, 3 liters at rest but 5-6 liters when moving about. I have COPD but no Bronchitis.

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@sunnydaysatlast — you should speak with your prescribing MD and ask what change(s) you were supposed to have with these 2 new meds and mention you’ve seen no improvement. See what your MD says.

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Profile picture for hicopd @hicopd

@sunnydaysatlast — you should speak with your prescribing MD and ask what change(s) you were supposed to have with these 2 new meds and mention you’ve seen no improvement. See what your MD says.

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I have written up a bunch of notes, I see my pulmonologists tomorrow, we will see what he says but I see no benefit in continuing.

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Profile picture for bebsr @bebsr

I have stage emphysema and tried it. It's very expensive but fortunately insurance covered it. The first time after 3days my symptoms were worse. I called the pharmacist at the drug company and was told to stop for a few days and try again. Idid,with the same result. It works for some but not for me.

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I’m wondering if anyone with severe COPD has been prescribed Ohtuvayre? I’m hesitant to begin and the pharmaceutical company isn’t able to provide an answer. I appreciate any information.

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