1. < COPD: Chronic obstructive pulmonary disease

Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

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hellopam | @hellopam | Mar 17 9:24am
In reply to @fef "That’s natural, but I think that one of the most important things in life is ACCEPTANCE..." + (show)
@fef

That’s natural, but I think that one of the most important things in life is ACCEPTANCE
I am 91 in April and have more things Wong with me than Carter has little liver pills, but I still mange to fish, bowl, hike all of which require pushing myself..
Push yourself, try Yoga and swimming, well just floating anything that will relax you.
My breathing is really bad, but that’s just the way it is, ACCEPTANCE
I find reading and watching good movies help tremendously .
Anything to get your mind off of your problems. PUSH, PUSH, PUSH.

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Good for you! Are you on oxygen? How do you swim if you are? Pushing yourself is not always a good thing with COPD. It's important to know your limits and when it's time to take a break and rest. I also have a-fib so pushing needs to be limited.

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1 reply
hicopd | @hicopd | Mar 17 11:37am

It is true that the more you do, the mote you CAN do. I just came back from a trip to DC, NYC and SF. We had a nice time and I’m still healthy after all our travels—Yay! I enjoy seeing loved ones and that’s one of my main incentives for travel.

Pulmonary rehab is an excellent option—ask your MD if you can be referred to a great in person or virtual program. The program should provide education and help you develop a custom exercise program!

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kdalda75 | @kndaustin71 | Mar 17 1:17pm

Unfortunately I have not heard many, if any positive outcomes with the use of Ohtuvayre! So much hype but not power packed. Ohtuvayre was developed to help those with COPD with a CB phenotype (chronic bronchitis) so not appropriate for COPD without bronchitis. I started Dupixent in November 2023 and had great results with it for about 5 months, significantly decreased secretions. Have tried literally everything with little success in secretion management. Finally, my treatment team thought perhaps I should see an Allergist/pulmonologist. Hopefully, we will find a reason that the Dupixent effect waned - antibody formation, maybe. Just started Daliresp at 500 mcg today so am giving that a try. Keeping my fingers crossed!

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fef | @fef | Mar 18 12:30pm
In reply to @hellopam "Good for you! Are you on oxygen? How do you swim if you are? Pushing yourself..." + (show)
@hellopam

Good for you! Are you on oxygen? How do you swim if you are? Pushing yourself is not always a good thing with COPD. It's important to know your limits and when it's time to take a break and rest. I also have a-fib so pushing needs to be limited.

Jump to this post

Not on oxygen yet, and indeed you are correct. I did not mean to give the impression that I pushed as hard as I could. Actually I know my limits and I try to abide by them.
That’s for your response.

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stanbat | @stanbat | 1 day ago

Yes. And to been wonderful for me
3 months now. Can breath so much better.

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