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Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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I too am being followed at this point every six months. 1.3 celiac artery aneurysm, but also a dissecting mesenteric artery. all of this is scary and there seems to be so little reassurance from the docs. When I asked if I am safe to travel my vascular surgeon stated I should stay close to home re insurance. This makes me a little more nervous that something can go wrong but there has been no advice as to what they can do to repair or stabilize these conditions.Like many of you express there seems to be no cause for this.
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1 ReactionHello I'm 42 and was just told I have this as well. I cant work at my normal job because its all heavy lifting. I cant even pick my little girl up anymore. It's extremely depressing . ive never been the type to let a little pain keep me down but I'm speachless after hearing I have this... Like others I go back in 2 weeks for another cat scan... I just dont know what to say anymore
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1 Reaction@bobrush welcome to Mayo Clinic Connect... the journey is a long one with MALS and can be overwhelming. This is a wonderful group and you will get a variety of experiences that I believe will be helpful in your journey. Have you had a GI work up yet? What symptoms have you been experiencing? I have been navigating MALS for quite sometime and will try my best to support you. Understand the frustration and depression that comes along with this. You are not alone. Thinking of you.
Very curious if they ever spoke the words Fibromuscular Dysplasia or Ehlers Danlos to you? I also have frail arteries and have those diagnoses.
Thank you for sharing your experience @marylisa !
Hi .... Ive had 2 ultrasounds 3 ekgs and 4 cat scans in the past 2 weeks . theyve mentioned disc degenerative to me for my lower back and this aneurysm but nothing else . I do have viens that stick out in my arms and another parts .. Idk this is very depressing
I recently had a abdominal CT to check on a hernia, but they found a celiac artery aneurysm measuring 11 mm. I have an appointment with a vascular surgeon this week, but my husband & I want me to have surgery for this, although the aneurysm is not very large.I don't even know if he has ever performed this kind of resection before. We live 3 hours from Dallas & may decide to have a surgeon there do the operation. Any advise would be helpful.
Mine was 1.2 and I thought as you are that I should get it repaired. They basically refused to do it. they said the surgery is too risky for the benefit. It's been 1.5 years since first discovery and it has self healed some. Now just a yearly CT scan for me. Good luck but be prepared that they may not do the surgery.
Its good to hear it may self heal thanks for that I can hope
Maybe self heal is the wrong way to say it. I had a lot of clotting/ mass around mine which eventually disappeared. They couldn't distinguish from the CT scans what was actual aneurysm and what was inflamed/clotted. eventually it cleared and what was left was about the same as the original size. It's hard to tell when they are this size.