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Anyone else out there with extremely high lipoprotein (a)?
Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.
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Be sure to read about the side effects of Repatha.
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1 ReactionWhat level trial? It would be nice to jump in when there is no placebo. Does that ever happen in trials at the end? Final stage?
Every drug has side effects, Repatha is no different. Thankfully, I'm not feeling any.
And yes, we might find out some years from now that while it can lower LDL, there are other effects that are not good. See the Niaspan (niacin) studies, for which I was a part and took it daily for 10+ years. Each has to make a decision what risks they want to take.
My Lp(a) is 220 nmol/L since the first time I had it measured in 2007. That’s high risk and is in the 95th percentile of the measured Lp(a) population. It causes me no issues.
I control what I can control. I keep my LDL < /= 70 mg/dL, triglycerides below 50, A1c between 4.8 and 5.2%, BMI at 25, blood pressure < 120/80. My last total coronary artery calcium score was only 135 which is within the 50th percentile of people matched for age, gender, and race/ethnicity. That’s decent for a 70 year old male with high Lp(a).
I was able to reduce my Lp(a) from 220 nmol/L to 44 nmol/L (80% reduction despite dogma that states only a 20-30% reduction can be expected) using 2,000 mg/day of extended release nicotinic acid. While it worked, it caused me an absolute myriad of health issues that fortunately were reversible after stopping Endur-Acin.
Yes, I'm 56 and our Family are all being tested as a few of us have Familial Hypercholesterolemia , some on the lower end of LP(a) 212 and myself at 544 LP(a). I personally am going through genetic testing as I had my first heart attack very young as well as stroke. I also Have a Epstien anomaly from birth called myocardial Bridge , and issues MVP. We have multiple members who have heart issues and cancers so testing seems imperative as we each have children and grandchildren ( two who have had strokes young)
I can only tell you that Genetic testing is not for you medically, sure it can tell probabilities but it's for your family members after you. It may be helpful if you are having issues with medications but this may be an entirely different test.
There is No cure for Familal Hypercholesterolemia but it's important that you keep your LDL [Bad cholesterol]at a low Healthy level and your HLD in Good healthy numbers - this is your good cholesterol. Many Dr's will say they can give you a STATIN.. this helps but doesn't solve it, often times you need another med with it. They are still working on finding a way to lower our LipOprotien A.. but Its in the future.
Test LPA is back👏
It’s down from 270 to 8 within 5 weeks after stopping statin.