1. < Heart & Blood Health

Anyone else out there with extremely high lipoprotein (a)?

Posted by csage1010 (Sue) @csage1010, Feb 21, 2022

Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.

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agb | @agb | May 15 7:26pm
In reply to @tia50 "Can you tell me more about Repatha? Your lipid numbers amazing now. Have you had an..." + (show)
@tia50

Can you tell me more about Repatha? Your lipid numbers amazing now. Have you had an lp(a) retest?

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yes: between August before I started with the add-on Repatha (started in October) and my last blood test in February, my Lp(a) dropped 43%, now down to 82.

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tia50 | @tia50 | May 15 10:06pm
In reply to @nansea2 "Hi, I have 329.1 high lipoproteinA. I was on 10mg statin and had a RCA stemi..." + (show)
@nansea2

Hi, I have 329.1 high lipoproteinA. I was on 10mg statin and had a RCA stemi heart attack 3 months ago. I was put on 80 mg statin after heart attack and now going to start just 40mg. I was wondering how much statins they put you on? My Cholesterol was not high. I had been a vegan for 5 yrs before this happened. I am a 65 year old female. We have hypercholesterolemia in my family so I watched my cholesterol. I did not know about my high LipoproteinA until 1 month and 9 days before I had a heart attack. It was checked because I had an abnormal EKG. They should have sent me to a Cardiac doctor but they didn't. So, now that I know I was curious as to how much statins they give because of high LipoproteinA. I also had a low HDL of 45 but now it is 52. It had been being 56 before. I also take an aspirin now along with Metaporlol succinate25 and 2xday Brilinta 90mg. and the 40 Atorvastatin.

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Are you still on a Vegan diet?

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2 replies
nansea2 | @nansea2 | May 15 10:20pm
In reply to @tia50 "Are you still on a Vegan diet?" + (show)
@tia50

Are you still on a Vegan diet?

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Yes, but occasionally I have a piece of cake/pie on birthdays and holidays.

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nansea2 | @nansea2 | May 15 10:30pm

Mine is 329.1 Susan. You can read what happened to me in an earlier message. I am going to get in a study for Eli Lilly. I am hoping I don't get the placebo. It is for the drup Lepodisirin. So far it can bring lipoproteinA down 94%. Search for the studies online. I feel for me that is the best thing to do.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | May 16 10:46am
In reply to @saganjames "Please read: https://www.peoplespharmacy.com/articles/is-lpa-contributing-to-unexplained-heart-attacks Regards, Sagan" + (show)

@saganjames, it looks as if the People's Pharmacy is centered around the sharing of experiences to help others make more informed decisions, much like Mayo Clinic Connect. When looking at the article you shared, it is a bit confusing in how it is presented as it does feel as though it is a Q&A with a medical professional which I do not believe the People's Pharmacy has as part of its broadcast and writing crew.

@saganjames, if you don't mind sharing, which part of the article did you find most interesting or helpful?

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mayoconnectuser1 | @mayoconnectuser1 | May 17 8:20am

Bio on the Graedons ... https://www.wunc.org/people/joe-terry-graedon

I've heard the show on NPR, but this article sounds as if it is written by a medical professional - it does not appear Joe Graedon, the author, fits this profile. He is a pharmacist or least trained as, and she is an anthropologist.

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agb | @agb | May 17 8:38am
In reply to @tia50 "Are you still on a Vegan diet?" + (show)
@tia50

Are you still on a Vegan diet?

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heavily plant based with some fish (tuna and salmon mostly) and perhaps 1 meal a week might have grilled chicken

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