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Anyone else out there with extremely high lipoprotein (a)?

Posted by csage1010 (Sue) @csage1010, Feb 21, 2022

Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.

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naiviv | @naiviv | 3 days ago
In reply to @agb "Hi Vivian: I've been on this cholesterol journey for more than 40 years now and from..." + (show)
@agb

Hi Vivian: I've been on this cholesterol journey for more than 40 years now and from working with doctors, dieticians, and my own research, unless a person has an awful diet (doesn't seem the case for you), you can lower your cholesterol by about 10%. Everything after that is genetics or drugs. I started with total cholesterol in the 400's and LDL over 250. Statins and ezetimibe (Zetia) dropped that by more than half, but the LDL, at 105-109 was too high. The cardiologist added Repatha which has dropped all the numbers to an amazingly low level. Next blood draw is on Monday.

Did your MD order a lipoprotein B test? It's the carrier for LDL particles and the one my MD is most concerned about. I'm hopeful that the 3-drug regimen keeps working.

Good luck in your journey.

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Hi AGB. Happy 4th of July. I asked the cardiologist for the Lipo A but not B. They don’t order any of these tests unless patients ask and the majority of people don’t have a clue what tests to ask for. I am a RN and this is why I asked. There are no drugs at this moment to treat Lipo A there are 4 right now in trials 2 of them on Phase 3. I read from Cleveland Clinic cardiologists that they have found Statins increase the Lipoprotein A much more in addition that patients taking them can develop Diabetes. That is the issue with Statins. My lipid levels have come down with the Mediterranean diet, exercise since Jan 2024. It is genetic and there is nothing I can do just keeping up what I’ve been doing.
Stay safe and healthy and enjoy the 4th of July.

REPLY
naiviv | @naiviv | 3 days ago

AGB. Good luck to you too. I can’t imagine how many millions of people are unaware of these tests because the physicians don’t tell. 😳

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