Anyone else out there with extremely high lipoprotein (a)?

Posted by csage1010 (Sue) @csage1010, Feb 21, 2022

Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.

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Hello @csage1010

This is a great question. I know that you have looked at some videos already, but I found one that helps explain this problem quite well. Here is the link, https://www.mayoclinic.org/medical-professionals/cardiovascular-diseases/videos/the-lowdown-on-lipoprotein-a/vid-20475871

Has your cardiologist made any recommendations regarding this high level?

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@hopeful33250

Hello @csage1010

This is a great question. I know that you have looked at some videos already, but I found one that helps explain this problem quite well. Here is the link, https://www.mayoclinic.org/medical-professionals/cardiovascular-diseases/videos/the-lowdown-on-lipoprotein-a/vid-20475871

Has your cardiologist made any recommendations regarding this high level?

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Hi, thank you, that was a very helpful video. I don’t get to meet with the lipid specialist for another month. My primary has started me on a statin and baby aspirin in the meantime.

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@csage1010

Hi, thank you, that was a very helpful video. I don’t get to meet with the lipid specialist for another month. My primary has started me on a statin and baby aspirin in the meantime.

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@csage1010

I'm glad to hear that you will be starting a statin and aspirin. Those are great protective measures.
Will you post again with updates?

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Yes, I will. I’m surprised this isn’t a bigger group, as apparently 1/5 of the population has elevated Lp(a).

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I don’t believe statins can do anything to reduce Lp(a); given your low HDL, you also might want to make lifesyle changes. I shifted to a low-carb healthy fat diet 3 years ago, my Lp(a) dropped from 92 to 66. Took a year.
Lifestyle changes can improve a range of things, including blood lipid profiles, blood sugar, and weight. I lost 50 lbs. and no longer am prediabetic.
Good luck!

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Statins have been shown to increase LP(a). Things that reduce it are: keto or very low carb eating and eating only 8 hours a day and fasting 16 hours a day, high dose niacin, high dose vitamin c and absolutely no seed oils.

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@whineboy

I don’t believe statins can do anything to reduce Lp(a); given your low HDL, you also might want to make lifesyle changes. I shifted to a low-carb healthy fat diet 3 years ago, my Lp(a) dropped from 92 to 66. Took a year.
Lifestyle changes can improve a range of things, including blood lipid profiles, blood sugar, and weight. I lost 50 lbs. and no longer am prediabetic.
Good luck!

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I am thinking of doing a vegan, low fructose, very low fat diet. There are a few well known (and one really reputable ) doctors that advocate for this. One is Dean Ornish, the others are Caldwell Esselstyn and Neal Barnard. I think I feel more comfortable with that, but I meet with the lipid specialist in one month. You are correct, statins do nothing for Lp(a), except reduce your other risk factors. Appreciate your sharing your success story!

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@glennose

Statins have been shown to increase LP(a). Things that reduce it are: keto or very low carb eating and eating only 8 hours a day and fasting 16 hours a day, high dose niacin, high dose vitamin c and absolutely no seed oils.

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Yes, I am having the most trouble finding a good salad dressing that is made with olive or avocado oil, and I will use it sparingly. You are correct about statins.

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@csage1010

Yes, I am having the most trouble finding a good salad dressing that is made with olive or avocado oil, and I will use it sparingly. You are correct about statins.

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Unless you are looking for a particular flavor, what about making your own? Very simple - oil of your choice, good quality vinegar of your choice plus seasonings of your choice, shake and refrigerate. Or even simpler, a small drizzle of oil on your salad, followed by a shake of seasonings and vinegar to taste. Here is just one example, but you can find thousands on line
Peeled garlic clove in a bottle, add 1/4 cup high quality oil, a grind of fresh pepper, a grind of sea salt, 1/4 - 1/2 teaspoon of dried herbs (I like rosemary, basil & oregano) and about 1/2 cup of good balsamic vinegar or red wine vinegar. Shake vigorously now, refrigerate, an shake vigorously before using.
Have you though about making your own dressings?
Sue

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@csage1010, @glennose, @whineboy, @hopeful33250, and all in this great discussion -
I have always believed that the best healthy diet is one that can work for you, not just for a week or two, but as a permanent life change. Anything extreme is likely to be discarded because it seen becomes burdensome. And the best changes are usually made incrementally, one or two things at a time. If we had "thrown out the cookbooks" and tried to be radical, I doubt it would have worked.
For example, hypertension is a big deal in both my husband's family & mine, so we use very little, and season our food with onions, garlic, herbs and spices. Ditto with diabetes - so sweets are small, select and a special treat. Over the past few years, we have gradually cut back the frequency and portion of meats, and added beans for a protein boost. My husband has even learned to like tofu, and I have learned to like oven roasted vegetables like brussels sprouts... We travel a lot, and pack our own "road food" - carrots, grapes, nuts (portioned), select snack bars, healthy lunches, even homemade smoothies - fast food is a rare big deal, then we find it meh!

How have you made diet changes that you can stick to long term?
Sue

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