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Anyone else out there with extremely high lipoprotein (a)?

Posted by csage1010 (Sue) @csage1010, Feb 21, 2022

Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.

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betsya | @betsya | 3 days ago
In reply to @sumelton "Yes, I have 300+ level. Cardiologist put me on 20mg rosuvastatin and baby aspirin. I don't..." + (show)
@sumelton

Yes, I have 300+ level. Cardiologist put me on 20mg rosuvastatin and baby aspirin. I don't believe statins do much when their side-effects are taken into effect. And nothing can be done about Lp(a)? I thought I was in pretty good health for a 65-yr-old. Active. Work full-time. Now I wonder if I'm going to die soon. Folks in my family generally live to be old!

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I added Rapatha and my LPa went down to 435 and LDL 65 HDL85. I am going to switch to crestor from Lipitor. Rapatha brings LPa down a little not much.

REPLY
betsya | @betsya | 2 days ago
In reply to @sumelton "Yes, I have 300+ level. Cardiologist put me on 20mg rosuvastatin and baby aspirin. I don't..." + (show)
@sumelton

Yes, I have 300+ level. Cardiologist put me on 20mg rosuvastatin and baby aspirin. I don't believe statins do much when their side-effects are taken into effect. And nothing can be done about Lp(a)? I thought I was in pretty good health for a 65-yr-old. Active. Work full-time. Now I wonder if I'm going to die soon. Folks in my family generally live to be old!

Jump to this post

Rapatha brought my LPa down a little. same here my family lives to be in their 90's my mother is 87 LPa 455. No stroke No heath problems. I think the stress is the worst part.

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farmgrrl57 | @farmgrrl57 | 2 days ago

I'm in the same boat. Mine is 438. I thought I was doing ok until I had my last Echo and ECG. Not only showed narrowed arteries and calcification, but I had a surprise silent heart attack. I've done a lot of research since I found out I have high Lpa. My primary had no clue what to do a bout it, or if it even needed to be treated. I haven't been able to find much about what to do about it. The consensus it is bad and it raises our chances of heart attacks and complications a lot. Unfortunately I have no clue of how to get treated or with what. I am looking into joining some studies. I know I didn't help much, but at least you know you're not alone.

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