Anyone else out there with extremely high lipoprotein (a)?

Posted by csage1010 (Sue) @csage1010, Feb 21, 2022

Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

agb | @agb | May 15 7:26pm

In reply to @tia50 "Can you tell me more about Repatha? Your lipid numbers amazing now. Have you had an..." + (show)

yes: between August before I started with the add-on Repatha (started in October) and my last blood test in February, my Lp(a) dropped 43%, now down to 82.

tia50 | @tia50 | May 15 10:06pm

In reply to @nansea2 "Hi, I have 329.1 high lipoproteinA. I was on 10mg statin and had a RCA stemi..." + (show)

Are you still on a Vegan diet?

nansea2 | @nansea2 | May 15 10:20pm

In reply to @tia50 "Are you still on a Vegan diet?" + (show)

Yes, but occasionally I have a piece of cake/pie on birthdays and holidays.

nansea2 | @nansea2 | May 15 10:30pm

Mine is 329.1 Susan. You can read what happened to me in an earlier message. I am going to get in a study for Eli Lilly. I am hoping I don't get the placebo. It is for the drup Lepodisirin. So far it can bring lipoproteinA down 94%. Search for the studies online. I feel for me that is the best thing to do.

saganjames | @saganjames | May 16 5:56am

Please read:
https://www.peoplespharmacy.com/articles/is-lpa-contributing-to-unexplained-heart-attacks
Regards, Sagan

Justin McClanahan, Moderator | @JustinMcClanahan | May 16 10:46am

In reply to @saganjames "Please read: https://www.peoplespharmacy.com/articles/is-lpa-contributing-to-unexplained-heart-attacks Regards, Sagan" + (show)

@saganjames, it looks as if the People's Pharmacy is centered around the sharing of experiences to help others make more informed decisions, much like Mayo Clinic Connect. When looking at the article you shared, it is a bit confusing in how it is presented as it does feel as though it is a Q&A with a medical professional which I do not believe the People's Pharmacy has as part of its broadcast and writing crew.

@saganjames, if you don't mind sharing, which part of the article did you find most interesting or helpful?

mayoconnectuser1 | @mayoconnectuser1 | May 17 8:20am

Bio on the Graedons ... https://www.wunc.org/people/joe-terry-graedon

I've heard the show on NPR, but this article sounds as if it is written by a medical professional - it does not appear Joe Graedon, the author, fits this profile. He is a pharmacist or least trained as, and she is an anthropologist.

agb | @agb | May 17 8:38am

In reply to @tia50 "Are you still on a Vegan diet?" + (show)

heavily plant based with some fish (tuna and salmon mostly) and perhaps 1 meal a week might have grilled chicken

cece425 | @cece425 | Jun 14 12:26pm

In reply to @csage1010 "I have thought about it. Those ideas all sound very good. I even like salsa on..." + (show)

A low dose statin to lower your LDL, exercise for overall health benefits,
a healthy diet for overall health benefits: All of the above is
important according to Stanford Cardiology, Peter Attia, Dr. Steven Nissen.
None will lower your AP(a) because genetic but can help with other
risk factors for heart disease.