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Comments (2,272)

...update....got a rheumatologist! yay! and she ordered more tests. so far the few tests I have...

https://connect.mayoclinic.org/comment/1219080/

Sjogens though she thinks.

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Jan 22 1:44pm

I'm sorry you're having such a hard time. I had loss of strength in my legs...

https://connect.mayoclinic.org/comment/1221687/

seems to be the only thing that helps Sjogren ... don't take anything else for the Sjogren

Discussion: I have Sjogren's neuropathy of my legs. Anyone try Rituximab?

Support Group: Neuropathy

Posted: Jan 25 6:16pm

Yes definitely as that is the only thing I have is infusions of IVIG. I wish...

https://connect.mayoclinic.org/comment/1216183/

there was a support group for CIDP AND SJOGRENS

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 19 7:28am

Hi! I'm 54 I have BMS along with severe dry mouth from Sjogrens. I have GERD...

https://connect.mayoclinic.org/comment/1176661/

BMS along with severe dry mouth from Sjogrens ... retention issues that one Dr blamed on the Sjogrens ... And having dry mouth from Sjogrens just

Discussion: Metallic taste in mouth

Support Group: Aging Well

Posted: Nov 20, 2024

I’ve been taking Evoxac for about 15 yrs for dry mouth caused by sjogrens. I do...

https://connect.mayoclinic.org/comment/879763/

about 15 yrs for dry mouth caused by sjogrens

Discussion: Cevimaline and lung issues

Support Group: Lung Health

Posted: Jun 16, 2023

1. I am not diabetic 2. All my autoimmune markers are high C3, ESR, ANA plus...

https://connect.mayoclinic.org/comment/1205164/

I am positive for Sjogrens, SLE and

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Jan 6 9:25am

Hi, suet, What is Rituximab", Is that for Sjogrens? I think my Rheumatologist mentioned it. I...

https://connect.mayoclinic.org/comment/1147360/

What is Rituximab", Is that for Sjogrens

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 25, 2024

Hello dlydaily, Look into MR Neurogram, you will see what it looks for. Looks for damaged...

https://connect.mayoclinic.org/comment/1041682/

I have S.F.N, Sojgren's, Hashimoto

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Mar 28, 2024

Welcome @blacksabbath, Mouth sores can be pretty miserable. There are a couple of other discussions where...

https://connect.mayoclinic.org/comment/880550/

discussion/burning-mouth-syndrome-2/ --- Sjogren ... /connect.mayoclinic.org/discussion/sjogrens ... helpful here: "How do you treat Sjogren ... malaria, is often helpful in treating Sjogren ... also might be prescribed." --- Sjogren

Discussion: Anyone else dealing with painful mouth sores and burning mouth?

Support Group: Autoimmune Diseases

Posted: Jun 18, 2023

I have Raynaud's and Sjorgrens as a secondary symptom to Reheumatoid Arthritis. The only thing that...

https://connect.mayoclinic.org/comment/1209922/

I have Raynaud's and Sjorgrens as ... in your eyebrows it's a sign of Sjorgrens ... blood tests that will show if your Sjorgrens

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 12 12:47pm

gracenad, I am just starting out with secondary Sjogren's (I have had relatively mild lupus for...

https://connect.mayoclinic.org/comment/1237453/

am just starting out with secondary Sjogren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 15 10:32am

Hi, can I ask how you were diagnosed. I’ve been positive ANA since 2017 and tests...

https://connect.mayoclinic.org/comment/1242887/

tests related to connective tissue and Sjogrens

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 22 9:32am

72 year old male. Went on blood pressure medicine (Calcium Blocker) 8 months ago. Doctor raised...

https://connect.mayoclinic.org/comment/759962/

see if I’m the 1 in 10 men to get Sjogren

Discussion: I have both dry eyes and dry mouth!

Support Group: Eye Conditions

Posted: Oct 11, 2022

This is kind of a simple question as related to the discussion but do you have...

https://connect.mayoclinic.org/comment/1273401/

I have anemia, RA, Sjorgrens, double

Discussion: Ana positive

Support Group: Autoimmune Diseases

Posted: Apr 3 12:58pm

Have you had any testing for r/a , lupus or Sjögren’s syndrome?

https://connect.mayoclinic.org/comment/1275085/

had any testing for r/a , lupus or Sjögren

Discussion: Desperate for Advice

Support Group: Autoimmune Diseases

Posted: Apr 5 5:14pm

@tricia7 I have Rheumatoid Arthritis and Sjogrens Syndrome, both autoimmune illnesses. I always have swollen submandibular...

https://connect.mayoclinic.org/comment/1275202/

I have Rheumatoid Arthritis and Sjogrens

Discussion: submandibular gland swollen and hurts

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 5 10:15pm

I am living proof that you can have SFN and no symptoms. Mine was proven by...

https://connect.mayoclinic.org/comment/1233967/

SFN cause by Sjogren's.

Discussion: Is loss of balance your primary complaint with neuropathy?

Support Group: Neuropathy

Posted: Feb 10 5:26pm

(disclaimer: I am not a doctor or medical professional...I just research a lot) Lots of autoimmune...

https://connect.mayoclinic.org/comment/1269884/

retested for 3 years, I was dx with Sjogren ... insisted on bloodwork (including an Early Sjogren

Discussion: Ana positive

Support Group: Autoimmune Diseases

Posted: Mar 30 8:39am

Sjogren's can give you small fiber neuropathy (with or without sensory symptoms) which can lead to...

https://connect.mayoclinic.org/comment/1278712/

Sjogren's can give you small fiber

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 10 1:22pm

My sensorymotor neuropathy was confirmed by an EMG/nct. (Nerve conduction test.) Dr Anne Oaklander is a...

https://connect.mayoclinic.org/comment/1282182/

I have tested positive for Sjogrens, ... Sjogrens causes dry eyes and dry mouth ... www.mayoclinic.org/diseases-conditions/sjogrens-syndrome

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 15 5:00am