Cold feet due to neuropathy - need help

Posted by napa @napa, Feb 9 1:31pm

Hello, I have extremely cold feet due to my neuropathy. The doctors cannot help. Any suggestions or help? Thank you!

Hello @napa, Welcome to Connect. We listen, accept, and try our best to understand member’s concerns. This one is new to me. Fortunately, I have a life partner who warms the bed every night and then my feet, Here in MN, you can get sweatshirts with warming devices, especially for folks working outside. Perhaps they have socks.

How long since your diagnosis? When was the last time you visited a doctor and what information did you ask for when it came to your symptoms? I can’t imagine that a clinician working with neuropathy patients didn’t want to know about your cold feet. Are you diabetic?

This online community is here to support you so that you can have the best quality of life possible. Be well and at ease. Chris

REPLY

Hi @napa and welcome to the group! Glad to have you join us. I'm sorry to hear about your neuropathy and cold feet. I share cold feet symptoms. Mine are from Small Fiber Polyneuropathy.

For me, Drs needed to rule out vascular and heart problems as I also have extreme variations of color (red, purple) and had a nasty bout of Chilblains. Once, chalked up to being SFPN, I learned it's just about the blood vessels not being able to contract properly

I suggest a warm water soak with Epsom salts, microwavable heat packs, massage with warm hands…then lock in warmth with warm, soft comfortable socks and/or a blanket or sherpa lined slippers or boots. Extreme temps are not good so be careful to gradually warm.

Neuropathy presents so many mitigating factors, each persons needs may be unique regarding whether you can tolerate socks, certain fabrics, etc…

I hope these tips help! Have a pleasant day.
Rachel

REPLY

@napa Have your thyroid function checked. I used to have very cold feet, and now not so much because I take thyroid hormones to correct for my low thyroid function. That regulates your metabolism and feeling cold is a sign of low metabolism.

REPLY

@napa

I have idiopathic small fiber peripheral polyneuropathy and I often have a hard time deciding if my feet are cold or burning.

Jim

Liked by dckuke, rwinney

REPLY

Hello, @napa, and welcome to Mayo Clinic Connect. I deal with cold feet not in a neuropathy-related way but have cold feet that prevent me from sleeping at night if I don't wear socks. Dealing with extremely cold feet regularly would be challenging.

@margaretob @lyssia @italapino have also mentioned cold feet due to neuropathy and may have some insights from what their doctors have suggested or what they have found to work at home to bring relief. @cehunt57 @inspired123 also may have some input.

@napa – what do you usually do to help your feet when they get cold like you described?

REPLY

If you're thin/ very slender you have less fat that insulates the body..there's no physical reason not to wear socks to bed . Those "bags" of rice and such that you heat up in the microwave are handy to warm your feet until you are asleep..

REPLY

@ken82 Im by no means thin but still have cold feet I do wear socks to bed but they are still cold . Im going to try the rice bags ,thanks

Liked by Lisa Lucier

REPLY

I rub them together until they get WARM then put socks on after a skin softener like AVEENO. That helps the circulation and gets some heat on them.
Mine get like ICE sometimes for no reason at all, rubbing them together gives them EXERCISE and warms them up…TRY IT…Margaret

Liked by Lisa Lucier

REPLY

I have had cold feet for a long time so I always were socks to bed. I now have numbness in one foot I was told by my Primary to see a Vascular doctor. I have been a member on Mayo for a long time but somehow I got disconnected. I want to let John know I am the 80 yr.old had success with Lung Cancer operation and Grandson w/Erythema is on a high dose of Predisone

REPLY
@babyur4me

I have had cold feet for a long time so I always were socks to bed. I now have numbness in one foot I was told by my Primary to see a Vascular doctor. I have been a member on Mayo for a long time but somehow I got disconnected. I want to let John know I am the 80 yr.old had success with Lung Cancer operation and Grandson w/Erythema is on a high dose of Predisone

Jump to this post

Hi @babyur4me, I also have cold feet but sometimes it's hard for me to distinguish the cold from the numbness. I also wear ankle socks to bed and use a heated blanket which helps some. It's cold where I live during the Winter so I normally wear two pairs of socks which helps a little during the day. I have lymphedema in my legs so have to wear knee length compression socks which I think adds to my problem since they are really thin and make the numbness worse. I also saw a vascular doctor who determined the blood flow to the legs was OK and then I had a lymphoscintigram to test the the lymph system in the legs. I didn't have any blockage which is what they were looking for but it wasn't working normally hence a prescription to wear compression socks which helps with the swelling.

Do you have an appointment setup with a vascular doctor? Hope you can update us after your appointment and you find some answers. Here's a link to Mayo Clinic Lymphedema Diagnosis & Treatment page:
https://www.mayoclinic.org/diseases-conditions/lymphedema/diagnosis-treatment/drc-20374687

REPLY

Hello @val1980, Thank you for the private message and welcome to Mayo Clinic Connect. I thought I would answer your private message in this discussion — Cold feet due to neuropathy – need help, so that you could meet other members discussing cold feet and neuropathy and learn what they have shared about cold feet. If you scroll up one post you will see what I have posted about my cold feet and what has helped me.

You may also be interested in some information I found on cold feet and causes.

Medical News Today – Causes and remedies for cold feet: https://www.medicalnewstoday.com/articles/320327
Mayo Clinic News Network – Cold Feet That Aren't Cold to the Touch May Indicate Neurologic Problem
https://newsnetwork.mayoclinic.org/discussion/cold-feet-that-arent-cold-to-the-touch-may-indicate-neurologic-problem/

@jenniferhunter mentioned in a post earlier in this discussion that you might want to have your thyroid function checked. Here is a link to her post:
https://connect.mayoclinic.org/discussion/cold-feet-need-help/?pg=1#comment-365195
@val1980 did your doctor have any suggestions or tests to diagnose the cause of your cold feet?

REPLY

Thanks, need to have my thyroid checked again

REPLY
@val1980

Thanks, need to have my thyroid checked again

Jump to this post

Hi @val1980, If you can, will you let us know how the checkup goes for your thyroid? I'm sure other members will find it helpful also.

REPLY
@jimhd

@napa

I have idiopathic small fiber peripheral polyneuropathy and I often have a hard time deciding if my feet are cold or burning.

Jim

Jump to this post

Personally, my feet are cold and burning severely at the same time. I have found that stretching or warm soak give some temporary relief. By the afternoon,, I stretch legs, ankle, feet and fingers then soak while showering—and take pain meds. I can no longer let my feet or fingers be cold—not even for a few minutes. Topical CBD almost instantly relieves burning pain—but I have to use it 3 times per day. Good luck to you.

REPLY
Please login or register to post a reply.