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853 total results
Comments (780)
@lauriefrancis It is tough when you think there is something more, and the docs will not...
https://connect.mayoclinic.org/comment/196793/
have a "systemic" form of Amyloidosis ... read: https://bit.Ly/1w7j4j8 "Amyloidosis ... " "Amyloidosis and Old Karl&
Discussion: Symptoms?
Support Group: MAC & Bronchiectasis
Posted: Aug 20, 2018
My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...
https://connect.mayoclinic.org/comment/1180018/
diagnosed with AL (light chain lambda) Amyloidosis ... multimers which is a result of his AL Amyloidosis ... unbelievable hard for him to be tested for amyloidosis
Discussion: Acquired Von Willebrand syndrome
Support Group: Blood Cancers & Disorders
Posted: Nov 26, 2024
My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...
https://connect.mayoclinic.org/comment/898857/
husband was diagnosed with Cardiac Amyloidosis ... started with Vyndamax to control his Amyloidosis ... As a RN I never heard about Amyloidosis
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: Jul 20, 2023
Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...
https://connect.mayoclinic.org/comment/722050/
- Advice for Amyloidosis with ... connect.mayoclinic.org/discussion/advice-for-amyloidosis-with-waldenstroms-macroglobulinemia ... / - Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type
Support Group: Blood Cancers & Disorders
Posted: Jun 29, 2022
Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...
https://connect.mayoclinic.org/comment/687154/
fellow members who have experience with Amyloidosis ... related discussion: - Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia
Support Group: Blood Cancers & Disorders
Posted: Mar 7, 2022
@2011panc I know I am a poor adviser on the matter of weight loss, as I...
https://connect.mayoclinic.org/comment/182240/
Several mutations of Amyloidosis, particularly ... If you are not familiar, Amyloidosis ... list of them is available free in my Amyloidosis
Discussion: Questions about recovering from starvation after esophageal perf
Support Group: Digestive Health
Posted: Feb 6, 2018
@sheeb My gfr has been down in the 30s and 40s, but now has jumped back...
https://connect.mayoclinic.org/comment/173133/
Rather, it is evidence of progressing amyloidosis ... Read the Red Light Warnings on Amyloidosis ... ALNYLAM.com, and view the videos on Amyloidosis ... on Mayoclinic.org, and Amyloidosis.org
Discussion: GFR estimates: How can I improve them?
Support Group: Kidney & Bladder
Posted: Oct 29, 2017
Julie, I moved your message to the Cancer group where you can meet others who may...
https://connect.mayoclinic.org/comment/113902/
discussion called "Diagnosed with AL Amyloidosis ... treatments you've been getting for amyloidosis
Discussion: Waldenstroms and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Sep 8, 2016
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... almost 20% of patients with MM have Amyloidosis
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 28, 2024