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826 total results
Comments (754)
My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...
https://connect.mayoclinic.org/comment/898857/
husband was diagnosed with Cardiac Amyloidosis ... started with Vyndamax to control his Amyloidosis ... As a RN I never heard about Amyloidosis
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: Jul 20, 2023
@sheeb My gfr has been down in the 30s and 40s, but now has jumped back...
https://connect.mayoclinic.org/comment/173133/
Rather, it is evidence of progressing amyloidosis ... Read the Red Light Warnings on Amyloidosis ... ALNYLAM.com, and view the videos on Amyloidosis ... on Mayoclinic.org, and Amyloidosis.org
Discussion: GFR estimates: How can I improve them?
Support Group: Kidney & Bladder
Posted: Oct 29, 2017
Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...
https://connect.mayoclinic.org/comment/687154/
fellow members who have experience with Amyloidosis ... related discussion: - Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia
Support Group: Blood Cancers & Disorders
Posted: Mar 7, 2022
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... almost 20% of patients with MM have Amyloidosis
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 28 12:00pm
@casey1329 My husband who is 80 yrs old has been suffering for months with the same...
https://connect.mayoclinic.org/comment/900586/
as well as finding he has Cardiac Amyloidosis ... hematologist ordered 2 biopsies to confirm Amyloidosis ... : the results confirmed Amyloidosis ... these proteins which are causing his Amyloidosis ... He started with Vyndamax for his Amyloidosis
Discussion: Possible Al Amylodiois
Support Group: Blood Cancers & Disorders
Posted: Jul 23, 2023
Julie, I moved your message to the Cancer group where you can meet others who may...
https://connect.mayoclinic.org/comment/113902/
discussion called "Diagnosed with AL Amyloidosis ... treatments you've been getting for amyloidosis
Discussion: Waldenstroms and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Sep 8, 2016
I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...
https://connect.mayoclinic.org/comment/1101928/
How ever mine just added Amyloidosis ... , but not uncommon for MGUS to add Amyloidosis ... people with MGUS to have this because Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Jul 8 9:48pm