I was recently diagnosed with MGRS. My hematologist said that this is very rare but treatable. Started chemotherapy 3 weeks age consisting of CyBorD therapy once per week for 26 weeks. Anyone out there with a similar diagnosis? I would like to hear about your experience and progress. Overall, I feel fine but have low hemoglobin (8. 3) and high creatine (2.4) In time I hope to improve kidney function with this treatment.