lupus – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,669 total results

Comments (2,436)

Hello, yes feel misdiagnosed.. I have had postive ANA TESTING SINCE 2015 n platelets been up...

https://connect.mayoclinic.org/comment/703619/

I believe it lupus ..but at the time

Discussion: Feeling helpless

Support Group: Chronic Pain

Posted: Apr 29, 2022

I have many of these symptoms as part of Mixed Connective Tissue Disease, which is a...

https://connect.mayoclinic.org/comment/650056/

Tissue Disease, which is a subset of Lupus

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 31, 2021

I agree, wouldnt want shots or steroids either. An okd dr of mine gave me way...

https://connect.mayoclinic.org/comment/95072/

I also have psoriatic arthritis, lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 26, 2017

I noticed your posts were from March. I hope by now you have made some progress...

https://connect.mayoclinic.org/comment/1161920/

I have Lupus and had many classic symptoms ... of it for 10 years before my lupus

Discussion: Could it be Leukemia with normal bloodwork?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2024

I relate. It was since my early 20’s until about 5 years ago. Even then, my...

https://connect.mayoclinic.org/comment/1082730/

, my doctor did NOT do the ANA for Lupus ... would smile and say “You don’t have Lupus

Discussion: Aggravation with results

Support Group: Autoimmune Diseases

Posted: Jun 7, 2024

Hi there.... sending you my biggest hug... about 8 years ago or so it all started...

https://connect.mayoclinic.org/comment/1021387/

teenager of SLE ... my grandma had lupus ... Lupus is attacking my heart with inflamation

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2024

Hello Kelsey, thank you for this group. I don't know where to start describing my pain....

https://connect.mayoclinic.org/comment/96711/

learned I also had multiple sclerosis, lupus ... between the pain from my back, the lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 3, 2018

Hello again, As I am taking Coumadin, the recommended antibiotic protocol includes those which interact warfarin...

https://connect.mayoclinic.org/comment/108513/

I was diagnosed with Lupus in 2014. ... and it came back negative for RA, Lupus

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 25, 2016

I have Systemic lupus, Sjögren’s and Graves’ disease is now hashimotos since having my thyroid out....

https://connect.mayoclinic.org/comment/1197160/

I have Systemic lupus, Sjögren’s and

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

I am still not sure. I have cervical stenosis, myelopathy that means communication of pain from...

https://connect.mayoclinic.org/comment/1217756/

damage (Babinski reflex is positive) lupus

Discussion: Facial/temporal and ear spasms, tinnitus, vertigo, pain. Please help

Support Group: Brain & Nervous System

Posted: Jan 20 7:46pm

They caused me to get drug induced lupus which carried on long after the drug was...

https://connect.mayoclinic.org/comment/1149881/

They caused me to get drug induced lupus

Discussion: Side effects of drugs

Support Group: MAC & Bronchiectasis

Posted: Sep 30, 2024

If you have idiopathic pulmonary fibrosis, a dry cough is part of the symptoms that go...

https://connect.mayoclinic.org/comment/1123904/

associated with autoimmune disorders like lupus

Discussion: Autoimmune and oxygen therapy has anybody tried and whats the result.?

Support Group: Autoimmune Diseases

Posted: Aug 15, 2024

EMG/nerve conduction test Small fiber neuropathy is Two to three skin biopsies One doctor did three...

https://connect.mayoclinic.org/comment/1112204/

Diagnosis: Mine is autoimmune RA/Lupus

Discussion: Question: What testing have you had for neuropathy?

Support Group: Neuropathy

Posted: Jul 26, 2024

Hello, thank you so much for your reply. You answered some of my questions. Yes, my...

https://connect.mayoclinic.org/comment/1094280/

injection treatment for SLE, which is lupus

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

@hopefullibrarian I think it's great that you tried to report on a positive experience and hope...

https://connect.mayoclinic.org/comment/1080001/

I also have lupus. Who knows.

Discussion: Evenity and side effects: What helps joint and muscle pain?

Support Group: Osteoporosis & Bone Health

Posted: Jun 3, 2024

My doctor, who specializes in osteo as well as RA and lupus, just put me on...

https://connect.mayoclinic.org/comment/1052950/

specializes in osteo as well as RA and lupus

Discussion: After bisphosphonates then what

Support Group: Osteoporosis & Bone Health

Posted: Apr 18, 2024

You were lucky with having such a great doctor - seems when I tell my doctors...

https://connect.mayoclinic.org/comment/959812/

not your heart, internist thought Lupus

Discussion: How to get a diagnosis for fatigue faster

Support Group: Just Want to Talk

Posted: Nov 6, 2023

SusanEllen66 et al: The pads of my fingers are no longer red, inflammed, nor painful… now...

https://connect.mayoclinic.org/comment/934514/

most alarming blood tests (i e Lupus

Discussion: Finger pain

Support Group: Neuropathy

Posted: Sep 22, 2023

@mjfisch you like me are tapering during an already stressful time in our lives so expect...

https://connect.mayoclinic.org/comment/919524/

I am tapering during a lupus flare and

Discussion: Tips on minimizing withdrawal symptoms from Effexor (aka Venlafaxine)

Support Group: Depression & Anxiety

Posted: Aug 27, 2023

Hi @kathleen123 and @johnbishop, I have non-lenght dependent SFN. I also have markers from Sjogren and...

https://connect.mayoclinic.org/comment/336001/

also have markers from Sjogren and Lupus

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Mar 14, 2021