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106 total results

Comments (100)

I hope you found your answers by now since this post isn’t from two years ago!...

https://connect.mayoclinic.org/comment/134366/

not high enough to suggest Systemic Mastocytosis

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2019

I have had serious abdominal pain since childhood, urticarias, cough problems, and other symptoms that match...

https://connect.mayoclinic.org/comment/134292/

get me one of the genetic tests for mastocytosis ... form of leukemia; my guess is it was mastocytosis

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: May 3, 2017

It first started two weeks after getting over covid. My stomach ballooned up and then about...

https://connect.mayoclinic.org/comment/948086/

a bone biopsy to rule out systemic mastocytosis ... marrow biopsy to rule our systemic mastocytosis

Discussion: Getting new Covid booster and RSV

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 15, 2023

Doctors really need to stop saying things like “Sick people itch” my goodness. I had my...

https://connect.mayoclinic.org/comment/309046/

symptoms and told me to look in to Mastocytosis ... Nurses at the mastocytosis society helped

Discussion: What do you do for Neuropathy itch?

Support Group: Skin Health

Posted: Dec 20, 2020

I was confirmed as Case #138 ever diagnosed in America with Mastocytosis. The doctors at Vandy...

https://connect.mayoclinic.org/comment/773542/

#138 ever diagnosed in America with Mastocytosis ... Hematologist to get tested for Systemic Mastocytosis

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 15, 2022

Carolee888, I just happened to see your post and am floored! My mother had severe RA...

https://connect.mayoclinic.org/comment/780070/

Antihistamine for decades for my cutaneous mastocytosis

Discussion: Many medical issues: How do you manage multiple chronic conditions?

Support Group: Aging Well

Posted: Dec 2, 2022

You've been on quite a journey! Some legs of your trek have been horrifying! There are...

https://connect.mayoclinic.org/comment/747228/

My strictly cutaneous mastocytosis escalated

Discussion: Important information about statins that I’m going to ask my doc about

Support Group: Aging Well

Posted: Sep 8, 2022

Thanks for the broad perspective. I've been so focused on him that I do neglect myself....

https://connect.mayoclinic.org/comment/751171/

double jab, my strictly cutaneous mastocytosis

Discussion: What's a nuclear stress test like? Is it safe?

Support Group: Heart Rhythm Conditions

Posted: Sep 18, 2022

Wish I could find the hyperlink for you. Bear in mind I received the health newsletter...

https://connect.mayoclinic.org/comment/755307/

the Mayo Clinic, about my cutaneous mastocytosis

Discussion: Cardiologist suggests I can stop taking Eliquis. Any thoughts?

Support Group: Heart Rhythm Conditions

Posted: Sep 29, 2022

So grateful to you for starting this discussion, lovepeacejoy! I have been experiencing self-diagnosed A-fib for...

https://connect.mayoclinic.org/comment/754593/

double jab which caused my cutaneous mastocytosis

Discussion: Cardiologist suggests I can stop taking Eliquis. Any thoughts?

Support Group: Heart Rhythm Conditions

Posted: Sep 27, 2022

Hi Everyone, I am looking for any help, ideas or support. I feel so defeated. Still...

https://connect.mayoclinic.org/comment/134311/

experienced it all except the typical mastocytosis

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2017

I'm so grateful that the internet exists because otherwise I feel certain I'd STILL be looking...

https://connect.mayoclinic.org/comment/203169/

born with maculopapular cutaneous mastocytosis

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Sep 10, 2020

Hi Evie777 - I see the topic of Mast Cell Activation Syndrome (MCAS) has been raised...

https://connect.mayoclinic.org/comment/723329/

health care groups (Ehlers Danlos, Mastocytosis

Discussion: New Dermatographia: What is helping you?

Support Group: Autoimmune Diseases

Posted: Jul 3, 2022

Hi all, I have a similar itch condition, arms and legs, no rash...on a FB Group...

https://connect.mayoclinic.org/comment/642308/

...I also has itch associated with Mastosytosis

Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Support Group: Skin Health

Posted: Oct 5, 2021

Yeah I have really been struggling. I am an avid weightlifter so the breathing thing is...

https://connect.mayoclinic.org/comment/134357/

out that this could be full blown madtocytosis

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2019

My A-fib was verrrrrry noticeable. Jumping and fluttering! No heart trouble until the Pfizer double jab....

https://connect.mayoclinic.org/comment/729547/

Then my mastocystosis escalated to MCAS

Discussion: Asymptomatic Atrial Fibrillation: How do you monitor?

Support Group: Heart Rhythm Conditions

Posted: Jul 22, 2022

Hi “Dolan” I’m curious how you are doing since you mentioned you have systemic mastosytosis as...

https://connect.mayoclinic.org/comment/834820/

since you mentioned you have systemic mastosytosis

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Mar 30, 2023

I have no info to share about your questions since I don't have any answers. Not...

https://connect.mayoclinic.org/comment/730252/

have a doctor despite being born with mastocytotis

Discussion: Asymptomatic Atrial Fibrillation: How do you monitor?

Support Group: Heart Rhythm Conditions

Posted: Jul 24, 2022

Hi all, I have a similar itch condition, arms and legs, no rash…on a FB Group...

https://connect.mayoclinic.org/comment/744915/

Pruritus…I also has itch associated with Mastosytosis

Discussion: No rash, just ITCH so bad on arms and neck

Support Group: Skin Health

Posted: Sep 3, 2022

Here is my post from Oct... moylandavis | @moylandavis | Oct 5 12:41pm Hi all, I...

https://connect.mayoclinic.org/comment/661643/

Pruritus…I also has itch associated with Mastosytosis

Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Support Group: Skin Health

Posted: Dec 11, 2021