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570 total results
Comments (535)
Hello @stumpjumper, welcome to Mayo Clinic Connect. There is another active discussion that may be helpful...
https://connect.mayoclinic.org/comment/239810/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments
— https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
I tried to post and it deleted it. Trying again. I, too, was diagnosed with CS...
https://connect.mayoclinic.org/comment/91041/
and not constant), but bc of SEID/ME ... /CFS. ... /CFS. ... The ME/CFS symposium was this weekend ... FB has a good ME/CFS support group also
Hi, I’m so sorry to hear about your situation! I live in Norway. Here we strongly...
https://connect.mayoclinic.org/comment/767586/
Because of certain similarities to ME ... /cfs, both knowledge and understanding ... I have ME/cfs, and am familiar with
I have PET from ME/CFS that developed from having Long Covid. My doctor set me up...
https://connect.mayoclinic.org/comment/1294514/
I have PET from ME/CFS that developed ... My doctor set me up with physical therapy
You are so right! I live in a somewhat smaller city than yours, but my diagnosis...
https://connect.mayoclinic.org/comment/254280/
city than yours, but my diagnosis of ME ... /CFS has very few specialists even in
Diagnosed with ME/CFS and recently reactivated EBV. Have been bed bound for years. The EBV has...
https://connect.mayoclinic.org/comment/1161492/
Diagnosed with ME/CFS and recently reactivated
Thank you for your thoughtful reply. Celiac disease is a serious matter and not the more...
https://connect.mayoclinic.org/comment/1287728/
I was diagnosed with ME/CFS in 1984 ... chemicals that had never bothered me ... I think the ME/CFS made me more vulnerable
Interesting to listen to all Brain Fog comments.I've had Brain Fog for 40 years. I have...
https://connect.mayoclinic.org/comment/676571/
I have ME/CFS. ... Since ME/CFS , according to the English ... encephalitis, it seems amazing to me ... Brain Fog off and on but it stopped me ... With the addition of ME/CFS and Covid
And FWIW, it seems the tests for microclots used to be possible, see here: cfsremission.com/2020/04/15/hemexs-isac-panel-for-me-cfs-is-available And...
https://connect.mayoclinic.org/comment/794438/
cfsremission.com/2020/04/15/hemexs-isac-panel-for-me-cfs-is-available
One of the most debilitating symptoms of ME/CFS is "Post Exertion Malaise", which is severe pain...
https://connect.mayoclinic.org/comment/784915/
the most debilitating symptoms of ME ... /CFS is "Post Exertion Malaise" ... research indicates that patients with ME ... /CFS have low blood volume, which results
Hi, @iamwell, I'm tagging @welchllb @suzanne2 and @uldiver who I believe have been to Mayo Clinic...
https://connect.mayoclinic.org/comment/1015363/
encephalomyelitis/chronic fatigue syndrome (ME ... /CFS).
I forgot to mention that, because of the similarity between the symptoms of ME/CFS and Long...
https://connect.mayoclinic.org/comment/1170315/
similarity between the symptoms of ME ... /CFS and Long Covid, you may find the
For those who wish additional information on PEM: Definition: Post-Exertional Malaise (PEM) is a worsening of...
https://connect.mayoclinic.org/comment/1226861/
encephalomyelitis/chronic fatigue syndrome (ME ... /CFS) and long COVID. ... 02/Pacing-and-Management-Guide-for-ME_CFS ... -9.pdf
https://www.cdc.gov/me-cfs
I am in the same situation. Long hauler for 1 1/2 yr. I had to quit...
https://connect.mayoclinic.org/comment/906988/
exertional malaise that comes due to the me ... /CFS. https://www.cdc.gov/me-cfs/healthcare-providers ... completely understands and supports me
And if I can recover (and I will recover), then I'm convinced that like 99.99% of...
https://connect.mayoclinic.org/comment/831286/
As I had ME/CFS for 4 years prior to ... COVID getting me.
I know this is an old post but wanted to share that my EBV was also...
https://connect.mayoclinic.org/comment/1032879/
unfortunately, was just diagnosed with ME ... /CFS and it is an insidious disease!
julesmango that is great that is helping you. Due respect, do your research. Dr. Martin Lerner...
https://connect.mayoclinic.org/comment/990919/
and helped hundreds of patients with me ... /cfs and reactivated EBV get their lives ... saved my life as I knew it before Me ... /CFS Via reactivated EBV and long covid ... Search on his name and me/cfs.
I know this is not very helpful in some ways, but I think with long covid...
https://connect.mayoclinic.org/comment/1246633/
, and my doctors at the Long Covid/ME ... /CFS clinic at Stanford say no way to
Yes thanks Colleen, I did see Jennifer Brea's TED talk and her movie Unrest. I can...
https://connect.mayoclinic.org/comment/200370/
I can agree that ME/CFS is difficult ... decades and dozens of doctors for me ... According to the CDC, only 10% with ME ... /CFS are diagnosed. ... /CFS.
No ME/CFS near me. Wish I could find one in Augusta, GA or North Augusta, SC...
https://connect.mayoclinic.org/comment/676736/
No ME/CFS near me.
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