Is the amyloid microclot test available in US?

Posted by ebergfeld @ebergfeld, May 19 10:57am

Referencing this paper: https://www.researchsquare.com/article/rs-1205453/v1
I am writing to ask if anyone knows what medical facilities (Mayo?) are doing the amyloid microclot test? and are any willing to try the treatment that is provided in the referenced paper? The work was done in S Africa.

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I haven’t but also was wondering why more aren’t pursuing this. Makes good sense to do tests for this.

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So I’ve been researching and heard this is the only place in US doing the micro blood clot test:

Found via Twitter researcher Prof Doug Kell — “In the US rthm.com is a place to contact.”

I went to website and they aren’t in my state yet but put myself on waitlist. They are in AZ, CA, FL, OR and WA.

I recommend researching this more but sharing what I’m finding. I feel like Mayo Clinic would be my first choice if they offered it.

Also as with anything scammers are already sending emails about fake tests. Dr Kell notes that on his website. Here is link:http://dbkgroup.org/longcovid/

To be clear, I have not researched Dr. Kell so I’m not recommending this. But sharing what I’m finding.

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Thank you for the link to Dr. Kell's web site. Great information!

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I talked with the rthm today. They have waitlist on website. They are definitely the ones who will offer in US first microclot test. However, they aren’t there yet and probably won’t have anything until October. A bit out but wanted to share latest. Thry are currently only five states but Virginia and many more seem to be on list. They aren’t accepting any new patients until August. They are in process of hiring and training more staff to help them. Again not recommending them as I haven’t validated this group, but they are being referred by FDA and do seem to have reputable partnerships at first glance. There are a ton of scams out there so we all need to be extra diligent to be aware of things that sound too good to be true.

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@tiredmommy

I talked with the rthm today. They have waitlist on website. They are definitely the ones who will offer in US first microclot test. However, they aren’t there yet and probably won’t have anything until October. A bit out but wanted to share latest. Thry are currently only five states but Virginia and many more seem to be on list. They aren’t accepting any new patients until August. They are in process of hiring and training more staff to help them. Again not recommending them as I haven’t validated this group, but they are being referred by FDA and do seem to have reputable partnerships at first glance. There are a ton of scams out there so we all need to be extra diligent to be aware of things that sound too good to be true.

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Thank you. What's rthm? I live in MI. If you hear anything, please let me know. Appreciate you.

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