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Comments (10,000+)

RP, followed by BCR led to 4 mos ADT (Orgovyx) with 2 mos IMRT in the...

https://connect.mayoclinic.org/comment/962837/

Radiation after 1 month for me seemed ... fatigue; nap almost mandatory between 1

Discussion: Eligard and radiation: What can I expect?

Support Group: Prostate Cancer

Posted: Nov 11, 2023

I have been on a PMR journey for almost 1 1/2 years. I like (and consult)...

https://connect.mayoclinic.org/comment/959446/

have been on a PMR journey for almost 1 ... 1/2 years. ... 15 mg, the maximum taper would be 1.5

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

@cynthia69 These are both either fungal or yeast organisms, I don't remember which is which. In...

https://connect.mayoclinic.org/comment/946160/

Each is found in anywhere from 1/3 to ... 1/2 the population.

Discussion: Has anyone had Geotrichum or TRichosporon loubieri

Support Group: MAC & Bronchiectasis

Posted: Oct 11, 2023

Hi There, Scoop! I soak my neb and Aerobika parts in warm soapy water (I use...

https://connect.mayoclinic.org/comment/938224/

dawn, I then will soak the parts in a 1: ... 1 ratio of water to white vinegar about

Discussion: Is it okay to microwave nebulizer or in baby bottle sterilizer?

Support Group: MAC & Bronchiectasis

Posted: Sep 28, 2023

So I have been splitting my 20mg prednisone to 15 at breakfast and 5 at dinner....

https://connect.mayoclinic.org/comment/930692/

good news: * daytime pain level is 0-1 ... pain-free, and will keep on the 3/1

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2023

An excellent tapering discussion. I am tapering between 4mg. and 41/2 mg. Alternating days until I...

https://connect.mayoclinic.org/comment/896880/

level ,a week before decreasing by the 1/ ... November 2022, and now holding at 4 1/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

My Dr would have to change my dosage every 3 months on the generic. I use...

https://connect.mayoclinic.org/comment/890935/

I take 2 pills mostly, 1 day a week ... I take 1 pill or no pill.

Discussion: Anyone else have CHEK2 gene mutation? And have had multiple cancers?

Support Group: Cancer

Posted: Jul 6, 2023

@mariaeileen welcome to Mayo Clinic Connect. Your post was part of a discussion on Menopause &...

https://connect.mayoclinic.org/comment/879921/

discussion on Menopause & Type 1 ... I’m 66, Type 1 since age 18.

Discussion: Menopause and Type 1 Diabetes

Support Group: Diabetes & Endocrine System

Posted: Jun 16, 2023

@mamacatjane, although my cancer was in the throat area, I can empathize with this decision you...

https://connect.mayoclinic.org/comment/798217/

have increased my odds of survival by 1- ... your favor...not by the margin of 1-

Discussion: Neck Dissection Lymph Node Removal/Sampling - Yes or No?

Support Group: Head & Neck Cancer

Posted: Jan 18, 2023

Hi I celebrated my 1 year kidney transplant. It was a challenging year as I ended...

https://connect.mayoclinic.org/comment/784848/

Hi I celebrated my 1 year kidney transplant ... Tacrolimus dosage was 2 mg in am 1

Discussion: What did you experience when cutting down Tacrolimus?

Support Group: Transplants

Posted: Dec 14, 2022

Good evening @ssapp1, Thanks for explaining how you handled the needles. I also found it easy,...

https://connect.mayoclinic.org/comment/757293/

Good evening @ssapp1, Thanks for explaining ... Tymlos 2yrs building bone Prolia 1 ... yr protecting bone Evenity 1

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Oct 5, 2022

Hi Deb, My PMR started 1/24/21 36 hrs after my 2nd COVID Pfizer Vaccine. VAERS report...

https://connect.mayoclinic.org/comment/742592/

Hi Deb, My PMR started 1/24/21 36 hrs ... s up to 2 yrs but I just found out 1

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2022

Hello @flymetothemoon, Welcome to Connect. I saw in your first post that you have been dealing...

https://connect.mayoclinic.org/comment/732642/

months going back and forth between 1 ... mg and 1/2 mg until I could finally

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31, 2022

I am post 3 fusions with chronic pain. After doctor recommended trying Cannabis . It got...

https://connect.mayoclinic.org/comment/726911/

got me off all my pills except maybe 1 ... or 1/2 daily.

Newsfeed Post: Pittelkow - Peering through the weeds: A perspective on pain and medical cannabis (marijuana)

Blog: Adult Pain Medicine

Posted: Jul 14, 2022

I was diagnosed on my 50th birthday with stage 1, no nodes but lvi… so chem...

https://connect.mayoclinic.org/comment/722827/

diagnosed on my 50th birthday with stage 1, ... Honestly…My cancer was stage 1… grade

Discussion: Aromatase Inhibitors: Did you decide to go on them or not?

Support Group: Breast Cancer

Posted: Jul 1, 2022

PMR initiated in 2014 with all the pain endured for that many years. ( I was...

https://connect.mayoclinic.org/comment/701892/

I live in NOLA 1/2 yr & an island ... therapists, PT, OT, hypnotism, voodoo, plus 1/

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Apr 24, 2022

Age-- 73 Reason for starting Evenity--I have tried other meds such as Reclast, Tymlos, etc. &...

https://connect.mayoclinic.org/comment/672879/

I fractured my upper arm 1 1/2 years

Discussion: Anyone taken Evenity (romosozumab) for Osteoporosis?

Support Group: Osteoporosis & Bone Health

Posted: Jan 19, 2022

I agree we must keep moving! I do overhead pulldowns with an exercise band over the...

https://connect.mayoclinic.org/comment/658746/

Then the PT has me doing a 1-minute ... head to side and look at armpit for 1

Discussion: Anyone tried Dry Needling or Acupuncture for Pain or Neuropathy?

Support Group: Neuropathy

Posted: Nov 30, 2021

I've used the local dispensaries for the best CBD. They really pay attention to the quality...

https://connect.mayoclinic.org/comment/108465/

I like the 1:1 THC/CBD, but I buy them

Discussion: CBD oil for pain

Support Group: Chronic Pain

Posted: Mar 26, 2021

I think you mean 1/2 mg (.5 mgs) reduction after arriving at 10 mgs, which is...

https://connect.mayoclinic.org/comment/245742/

I think you mean 1/2 mg (.5 mgs) reduction ... which is what i did to arrive at 3 1/ ... the following method to reduce: 1wk

Discussion: PMR and the new Shingles vaccine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2021