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2,134 total results

Comments (1,973)

Thank you! Although, what you detail is what I've read so far and it sounds...well...horrible. Do...

https://connect.mayoclinic.org/comment/906091/

My AIED is due to the autoimmune Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 1, 2023

I am so sorry. Yes the pain everywhere from the dryness is incredible. I am not...

https://connect.mayoclinic.org/comment/725717/

but now with this scleroderma and sjogrens

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Jul 11, 2022

Hi! I'm 54 I have BMS along with severe dry mouth from Sjogrens. I have GERD...

https://connect.mayoclinic.org/comment/1176661/

BMS along with severe dry mouth from Sjogrens ... retention issues that one Dr blamed on the Sjogrens ... And having dry mouth from Sjogrens just

Discussion: Metallic taste in mouth

Support Group: Aging Well

Posted: 4 days ago

Hi Loke @loke, Welcome to Connect. Connect is a great safe place to meet other members...

https://connect.mayoclinic.org/comment/649702/

discussion/fibromyalgia-20d1d0/ -- Sjogren ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

My fibromyalgia is terrible and like you all I have to pace myself. It's really tough...

https://connect.mayoclinic.org/comment/593501/

I also have AFIB, sleep apnea and Sjogrens

Discussion: Fibromyalgia and adhesion & fascial issues

Support Group: Fibromyalgia

Posted: Apr 11, 2021

Hi I was diagnosed with CIPD about 7yrs ago, before that my doctors thought I was...

https://connect.mayoclinic.org/comment/900297/

Rheumatoid arthritis, Fibromyalgia, Sjogrens

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 22, 2023

Went to my appointment yesterday at UPenn Perelman Center, Rheumatology Department. The doctor expressed that he...

https://connect.mayoclinic.org/comment/996574/

Go for blood work, retesting for Sjogrens

Discussion: Have an appointment with rheumatology at Perelman Center - UPenn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 10:25am

First let me say I am NOT a medical professional though I was in premed until...

https://connect.mayoclinic.org/comment/750045/

In my case Sjogrens is the main culprit

Discussion: Can you have combined autoimmune disorders? I need a second opinion

Support Group: Autoimmune Diseases

Posted: Sep 15, 2022

My mother-in-Law did suffer with Sjogrens starting in her early 50's and always had symptoms. She...

https://connect.mayoclinic.org/comment/275030/

My mother-in-Law did suffer with Sjogrens

Discussion: Scalp and hair problems possibly from discoid lupus

Support Group: Autoimmune Diseases

Posted: Sep 17, 2019

Hi Thank y so much for replying I'm not positive for the antibodies bjt neither can...

https://connect.mayoclinic.org/comment/1014223/

positive antibodies that can go with sjogrens

Discussion: Sjogrens and dysautononia and mast cell activation

Support Group: Autoimmune Diseases

Posted: Feb 12 8:48am

Long term prednisone is not an ideal option and I don't think a reputable rheumatologist would...

https://connect.mayoclinic.org/comment/952780/

I've heard that the Sjogren' ... expertise in neurologic complications of Sjogrens ... MANY great pages of information on Sjogren

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Oct 23, 2023

Yes, that is my opinion. The JAMA meta study that came out in the spring of...

https://connect.mayoclinic.org/comment/905466/

My diseases, Celiac and Sjogrens, puts

Discussion: High Coronary Calcium Score: How do others feel emotionally?

Support Group: Heart & Blood Health

Posted: Aug 1, 2023

I'm now going back into history as this happened only once, and it must have been...

https://connect.mayoclinic.org/comment/932531/

weren't conclusive, he suspected Sjogrens

Discussion: Anyone else have PMR with some serious sternum/rib cage pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

I knew I had ms, I looked for 16 years. I have every symptom mainly falling....

https://connect.mayoclinic.org/comment/728978/

I knew I had the sjogrens, it took 6

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jul 21, 2022

I too have had an issue with my hematologist/oncologist not wanting to do a bone marrow...

https://connect.mayoclinic.org/comment/780298/

and they said it was stemmed from my sjogrens

Discussion: Need Help - Hematology won't do testing

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Hi RA Group: Bill here. I am 59 and have been living with RA since I...

https://connect.mayoclinic.org/comment/808722/

I also have, Sjogrens, osteoporosis,

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 9, 2023

I have been using Medical marijuana for 2 years and it has made a huge difference...

https://connect.mayoclinic.org/comment/192966/

column and all my joints, fibromyalgia, Sjogrens

Discussion: Can I go from daily Morphine to pain control from CBD oil

Support Group: Chronic Pain

Posted: May 8, 2020

Thanks for the nod. I have background in clinical neurophysiology, and managed non nursing departments in...

https://connect.mayoclinic.org/comment/984025/

Sadly I know almost nothing about Sjogren ... And people who really needed it - Sjogrens

Discussion: Just diagnosed with colitis...given Budesonide $$$$

Support Group: Digestive Health

Posted: Dec 20, 2023

I'm not sure this is helpful...I was diagnosed with AIED 8 maybe 9 years ago. This...

https://connect.mayoclinic.org/comment/1016470/

was perhaps my autoimmune disorder (Sjogrens

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Feb 15 6:10pm

Hi all. I have been following since early 2021 when I was diagnosed with osteoporosis, first...

https://connect.mayoclinic.org/comment/735193/

I have Sjogrens Syndrome and eating

Discussion: Exercise to strengthen bones (for osteoporosis)

Support Group: Osteoporosis & Bone Health

Posted: Aug 8, 2022