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mcphee
@mcphee

Posts: 5
Joined: Dec 14, 2016

High Calcium Score

Posted by @mcphee, Dec 14, 2016

I have a calcium score of 1,950 which is extremely high which means I am at a very high risk for a cardiac event,heart attack,stroke or sudden death.
I take a statin and baby aspirin.
I have never been sick,have excellent cholesterol,low blood pressure and I am not overweight.
I have no other health problems and I have never been sick.
But I feel like a walking time bomb which has caused me a lot of stress.
I wonder how others with this condition feel emotionally?
I am 70 yrs old.

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Welcome @mcphee. Such a good question to ask the community. Several people have used your exact phrase “I feel like a walking time bomb which has caused me a lot of stress” when talking about heart complications. I’m tagging a few members who may be able to share some of their experiences with high calcium levels, heart complications and the stress this causes. Please meet @jrismyname @hopeful33250 @predictable @michellr. I’m sure others will jump in as well.

In the meantime you may be interested in watching this video Q&A with Dr. Brott on stroke prevention.
– Let’s talk stroke prevention with Thomas Brott, M.D. http://mayocl.in/1sS5xvN

MacPhee – what has your doctor suggested to help lower the calcium score?

I’m on the way out the door @mcphee, so I’ll be brief. Have you had your parathyroid gland examined, especially through lab tests, to see whether your excess calcium might be attributable to that? If not, you should attend to that right away. If you’re like me, you get your calcium from vegetables — like broccoli — and that’s less worrisome, but really high levels of calcium in the blood suggest attention to the parathyroid. Keep us posted!

Thanks for the quick response as you’re heading out @predictable.

@MacPhee – You may be interested in messages that @jmbjar @upnorthnancy and @gailfaith have written about calcium levels and the parathyroid.

@mcphee I agree with @predictable I also have high calcium caused by hyperparathyroidism. It can affect many areas of your health. Ask for a blood test to check the parathyroid hormone. Then, if it is high, ask for a scan of the parathyroid. Best wishes and keep in touch and let us know how you are doing.

@hopeful33250

@mcphee I agree with @predictable I also have high calcium caused by hyperparathyroidism. It can affect many areas of your health. Ask for a blood test to check the parathyroid hormone. Then, if it is high, ask for a scan of the parathyroid. Best wishes and keep in touch and let us know how you are doing.

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@gailfaith here. Even though my PCP said to ignore my high blood calcium which have been high for years as the surgical risks are so high at my age (80), I still flew out to Mayo in Minnesota this past June. I had read on the internet that you should find a surgeon that does at least 3 a week successfully and each with 15 minutes. I was sure a surgeon out there would that level of expertise. Dr. Melanie Richards told me she as done over 4500 and she only does thyroid and parathyroid surgery and she works only 3 days a week. After the tests mentioned that were in another discussion were completed out there, she only needed to removed one of the four. They can tell during surgery how many they need to remove. Now my blood Ca levels are in the normal range. I will be sending her the results of my current lab tests next week which my local endocrinologist is ordering for me. Needless to say surgery was a success and I was on a plane the next morning headed for home.

@hopeful33250

@mcphee I agree with @predictable I also have high calcium caused by hyperparathyroidism. It can affect many areas of your health. Ask for a blood test to check the parathyroid hormone. Then, if it is high, ask for a scan of the parathyroid. Best wishes and keep in touch and let us know how you are doing.

Jump to this post

Hello @gailfaith, I’m so pleased to hear of your successful surgery. I’m also glad that you mentioned the name of the surgeon. Sounds like you had a great Mayo experience!

@colleenyoung

Welcome @mcphee. Such a good question to ask the community. Several people have used your exact phrase “I feel like a walking time bomb which has caused me a lot of stress” when talking about heart complications. I’m tagging a few members who may be able to share some of their experiences with high calcium levels, heart complications and the stress this causes. Please meet @jrismyname @hopeful33250 @predictable @michellr. I’m sure others will jump in as well.

In the meantime you may be interested in watching this video Q&A with Dr. Brott on stroke prevention.
– Let’s talk stroke prevention with Thomas Brott, M.D. http://mayocl.in/1sS5xvN

MacPhee – what has your doctor suggested to help lower the calcium score?

Jump to this post

My high calcium score if from the calcium heart scan.(scan of coronary arteries.)
I take a baby aspirin and Crestor 40 mg.
Dr wants me to do a lot of aerobic exercise and limit red meats to twice a month.

@colleenyoung

Thanks for the quick response as you’re heading out @predictable.

@MacPhee – You may be interested in messages that @jmbjar @upnorthnancy and @gailfaith have written about calcium levels and the parathyroid.

Jump to this post

Thank you for your post,see above reply.

@hopeful33250

@mcphee I agree with @predictable I also have high calcium caused by hyperparathyroidism. It can affect many areas of your health. Ask for a blood test to check the parathyroid hormone. Then, if it is high, ask for a scan of the parathyroid. Best wishes and keep in touch and let us know how you are doing.

Jump to this post

Thank you for your post.See above reply.

@hopeful33250

@mcphee I agree with @predictable I also have high calcium caused by hyperparathyroidism. It can affect many areas of your health. Ask for a blood test to check the parathyroid hormone. Then, if it is high, ask for a scan of the parathyroid. Best wishes and keep in touch and let us know how you are doing.

Jump to this post

Thank you for your post.
Please see my above reply.

I am 45 with a very high calcium score (a brother that had a heart attack at 45 and ended up needing a heart transplant and a cousin that just had a heart attack at 48, I am in the same boat- i have been taking lipitor for 8 years and they doubled it and added zetia, but i want more answers. I had a stress test and echo and it was normal. I feel like everyone is just waiting for something to happen.
For the rest of the group, this test measures buildup of plaque in the arteries of the heart not free floating calcium in your blood. It is used as a way to predict an elevated risk of heart attack and stroke. An elevated score shows a risk for a major event such as heart attack.or stroke within the next 5-10 years

@mcristodero Welcome to Mayo Connect – we are pleased that you have joined this online patient support community. I am sorry to hear of the build up of plaque in the arteries of your heart. I can certainly understand your concern given your family history as well as your age of only 45. If I were in this situation I would probably want to consult with a large medical center, even if it meant a longer drive than your current doctors. Have you considered a second opinion? Teresa

What Teresa, Volunteer Mentor @hopeful33250 Sez… Additionally, I would go further, and highly recommend and suggest that, if you live close enough to one of the Mayo Clinic Centers, you making an appointment with their Cardiovascular Diseases Department to get a second opinion medical evaluation. Mayo Clinic has “Top Nationally-Recognized Cardiovascular Docs.”

Hello @mcristodero,

I’d like to add my welcome, and thank you so much for sharing your history; this is what Connect is all about: learning from one another’s experiences and journeys.

I would encourage you to read about Mayo Clinic’s Preventive Cardiology Program in the Cardiovascular Research Center, which s designed to increase understanding and education about ways to prevent heart disease and to encourage preventive care:
http://mayocl.in/2t31zEk

The Clinic’s Center for Individualized Medicine is a fantastic resource that offers genomic testing to patients, and where health care providers use knowledge about a patient’s DNA to potentially diagnose, predict, treat and prevent disease:
http://mayocl.in/2tCJh9V

You may also wish to view this discussion on Connect:
What are the best methods for removing plaque from the artery? http://mayocl.in/2s3z7gO

Please meet @ram675 @scottb @abespizza @bayouhawk @loyd1934deborah @mlemieux @truhealth76 @HeartPatches @mcphee @michellr @gailfaith. I’m sure others will jump in as well.

@mcristodero, what follow-up has your doctor recommended?

I just found this group today. Ten years ago when I was 73 I found out I have a calcium score of 2274. I will be 84 years old next week. I feel fine and have had no heart related problems. That's why my user name is LuckyG. I am on a statin and a 325 aspirin every day and I try to limit my saturated fat intake and keep my weight down, When I first found out I was scared to death but I don't think about it much at this point. Good luck. Gary

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