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159 total results

Comments (135)

Hello Emily @emh011, Welcome to Connect. I think there may be quite a few active members...

https://connect.mayoclinic.org/comment/879816/

@larryh123 share the Muscular Dystrophy

Discussion: Myotonia Congenita

Support Group: Neuropathy

Posted: Jun 16, 2023

My neuropathy seems to be a result of my Gelsolin/Fukutin Limb Girdle Muscular Dystrophy. I finally...

https://connect.mayoclinic.org/comment/233861/

of my Gelsolin/Fukutin Limb Girdle Muscular ... Dystrophy.

Discussion: Neuropathy started during a gout spell

Support Group: Neuropathy

Posted: Feb 19, 2021

John, I have had Chronic Bronchiectasis most of my life. I struggled hard with it for...

https://connect.mayoclinic.org/comment/180325/

GSN and FKTN (Fukutin Limb Girdle Muscular ... Dystrophy) I agree with them.

Discussion: Bronchiectasis: Understanding symptoms

Support Group: MAC & Bronchiectasis

Posted: Feb 24, 2021

Thankyou so much for replying!I have had muscle weakness for years,but I always thought it had...

https://connect.mayoclinic.org/comment/1045128/

uncertain significance.It was for a couple Muscular ... Dystrophy type diseases including limb ... girdle muscular dystrophy.I am in my

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Apr 4, 2024

@rabbit10 I have had neuropathy over most of my body for about 20 years, I am...

https://connect.mayoclinic.org/comment/92461/

autoimmune, including rheumatoid arthritis, muscular ... dystrophy, Cardiomyopathy, cerebral

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 1, 2018

Great advice!!! Make sure that they know about all of the health issues. I was getting...

https://connect.mayoclinic.org/comment/624391/

info about LBD nd Parkinsonism or Muscular ... Dystrophy wasn’t in the anastelogists

Discussion: Recent LBD with Parkinsonism diagnosis

Support Group: Parkinson's Disease

Posted: Aug 8, 2021

Watchful waiting is probably the best thing to do right now. My guess, after 15 years...

https://connect.mayoclinic.org/comment/933215/

Raynaud's, encephaly, Limb Girdle Muscular ... Dystrophy r23, basal C on ears and

Discussion: Just found out I have prostate cancer...

Support Group: Prostate Cancer

Posted: Sep 20, 2023

WHAT IS ARE RARE DISEASES? Ehlers Danlos Syndrome, Charcot-Marie-Tooth disease, Congenital muscular dystrophy, CRPS, and so...

https://connect.mayoclinic.org/comment/335017/

Charcot-Marie-Tooth disease, Congenital muscular ... dystrophy, CRPS, and so on.

Discussion: Living with Rare Disease and Chronic Pain: What's your story?

Support Group: Chronic Pain

Posted: Feb 14, 2021

Hi @aithnie, Welcome to Connect. Thank you so much for joining in and sharing your history....

https://connect.mayoclinic.org/comment/128339/

encourage you to view this conversation,"Muscular ... Dystrophy & Diverticulitis" http

Discussion: Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

Support Group: Digestive Health

Posted: May 25, 2017

I did discover my late onset muscular dystrophy ( I am a young 78!) after a...

https://connect.mayoclinic.org/comment/1280651/

I did discover my late onset muscular ... dystrophy ( I am a young 78!)

Discussion: Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Support Group: Autoimmune Diseases

Posted: Apr 13 8:51am

@dorisena Just a little info about try skin on arms and legs and itch. You probably...

https://connect.mayoclinic.org/comment/313486/

Amyloidosis, with Fukuyama Limb Girdle Muscular ... Dystrophy and probably some others,

Discussion: Itchy shins and diabetes or thyroid

Support Group: Diabetes & Endocrine System

Posted: Jun 18, 2020

Welcome to Mayo Connect. Every day I learn of a new disorder here - I have...

https://connect.mayoclinic.org/comment/727757/

/22347-myotonia-congenita And the Muscular ... Dystrophy Association: https://www.mda.org

Discussion: Myotonia Congenita

Support Group: Neuropathy

Posted: Jul 17, 2022

cathylc58, I share your electric shocks, although min can be any place around the body. Legs,...

https://connect.mayoclinic.org/comment/54960/

likely, on my FKTN Fukuyama Limb Girdle Muscular ... Dystrophy.

Discussion: "Electric Shock" type pain in my scalp!

Support Group: Chronic Pain

Posted: Apr 30, 2020

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Myeloma>Amyloidosis>Gelsolin, Muscular ... Dystrophy (FKRP and FKTN with Walker

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

I took a look at the lung scan posted on this page. It looks very much...

https://connect.mayoclinic.org/comment/233681/

FKTN muscular dystrophy seems to be

Discussion: What is ground glass on a lung CT scan?

Support Group: Lung Health

Posted: Mar 9, 2021

Hello! I am afraid I am still in pretty bad shape. I think I might have...

https://connect.mayoclinic.org/comment/1163068/

Testing that showed a few types of Muscular ... dystrophy including Limb Girdle Muscular ... Dystrophy, but the Specialists don&

Discussion: Problems walking after covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 26, 2024

I have been SOB most of my life, and I am 80 now. Honestly, I have...

https://connect.mayoclinic.org/comment/203036/

RyR2 (Cardiac Wall Dystrophy), FKTN ... (Fukuyama limb girdle muscular dystrophy

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 11, 2020

Judging from the groaning and complaining coming from my monitor when I opened this page a...

https://connect.mayoclinic.org/comment/721438/

Gelsolin (Amyloidosis) and Limb Girdle Muscular ... Dystrophy (LGMDr23).

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 27, 2022

Haha! After I sent it I realized it could read that way! Lol. My battles with...

https://connect.mayoclinic.org/comment/1228924/

atrophy in limbs ( possible adult onset muscular ... dystrophy, ) iGg IV theropy for low

Discussion: Moving to a retirement home?

Support Group: Aging Well

Posted: Feb 3 8:08pm

Here is a little info about a nerve conduction study. Ive had them - not very...

https://connect.mayoclinic.org/comment/614206/

They confirmed a diagnosis of Muscular ... Dystrophy 2 in my case - so they are

Discussion: Neuromuscular Testing and Waiting for ALS confirmation

Support Group: Brain & Nervous System

Posted: Jul 5, 2021