Just found out I have prostate cancer...

Posted by jeb0505 @jeb0505, Sep 12 4:48pm

I'm 51, and for the past 2 years, i've been getting my PSA levels checked about every 6 months. In December 2021, my PSA numbers were 'elevated' so the doc took notice (i tested at 4.7, the doc said it should be around 3.5). So i tested again in Feb, 2022 and the number had dropped to 4.3. Great news, i thought, so we tested again in July, 2022, and the level was a calming 3.6. Next test, in December 2022, was 4.1… then, out of nowhere (June, 2023), i found myself at 6.6 and have since been more and more concerned that this might be cancer. Prostate exam suggested that it was possible, followed by an ultrasound that was 'inconclusive'… followed by one of the most unpleasant experiences of my 51 years… the biopsy (the recovery was worse than the procedure by far).

I got my results last week, showing adenocarcinoma in the right lateral base (60%) and the right lateral mid (1%) both having a gleason score of 3+3=6.

Though my results are that i am in a Gleason grade 1, which i have learned is the most favorable, it's still VERY concerning for me… Especially considering i'm barely into my 50's.

There is so much information on the internet, not all of it great, so i've been trying my best to get accurate information from reliable sources, which is what brought me to the Mayo.

I've decided to do nothing for now (Watchful waiting/Active Surveillance; getting PSA tests every 3 months)… I'm curious if others would agree with this approach.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I agree with your approach Good luck I hope that you remain a 6 or 7 gleason for 30 years or more!!

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I agree, too, but it is an individual choice. I am 62, Gleason 3+3, and most recent PSA was 4.8. I had my biopsy (locally) back in February and my immediate reaction was to have surgery. I was referred to Mayo and, after Consulting with the doctor there I went down for a series of test, including an MRI. Based on those results, I am also in active surveillance. In addition, I found out my prostate is enlarged to the point of impeding, urine flow, so I am scheduled to have a HoLep procedure this month… there’s a book I found recommended here in the forums called Surviving Prostate Csncer I can’t recall the author’s name off the top of my head, but it was very informative!
Again, it is an individual choice. Take care.

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@southgeorgia

I agree, too, but it is an individual choice. I am 62, Gleason 3+3, and most recent PSA was 4.8. I had my biopsy (locally) back in February and my immediate reaction was to have surgery. I was referred to Mayo and, after Consulting with the doctor there I went down for a series of test, including an MRI. Based on those results, I am also in active surveillance. In addition, I found out my prostate is enlarged to the point of impeding, urine flow, so I am scheduled to have a HoLep procedure this month… there’s a book I found recommended here in the forums called Surviving Prostate Csncer I can’t recall the author’s name off the top of my head, but it was very informative!
Again, it is an individual choice. Take care.

Jump to this post

Dr. Patrick Walsh is the author.

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I agree also, especially with getting a PSA every 3 months. Hopefully you stay at 6 forever. You may want to quit processed meats and whole milk as both are not good for PCa.

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Prostate Cancer Foundation (PCF.org) has free downloadable Patient Guides that are very helpful.
Dr Walsh's book: There may be an updated version released soon, just FYI. Some treatment protocols have evolved.
Best wishes.

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I think you might want to get the PMSA Pet Scan. It shows any cancer spots. I went through the surgery 41 days ago. It was fuc=ing very painful. I did the physical annually and it came on very fast but the Lab of the lymph nodes showed no spead as well as the CT S and Bone S. I had 500
people praying for me and God delivered as I was a Gleason 8 downgraded to a 7 after surgery and my PSA was 6.9. They kept me in the hospital for one night and really put me to sleep for the Biopsy. It was full of cancer. In two months now, new blood work and if any move off 0, then a PMSA Pet Scan and Lupron if inside where the prostate was and if any spot found outside of the prostate then targeted Beam Radiation. I hope that helps some and if you are vigilant, you might get it at a very low stage and then easy to treat.

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I'm not a doctor so I can't comment on your decision. A very good web/youtube site is the Prostate Cancer Research Institute (PCRI.ORG). They have several videos addressing your situation and the New England Journal of Medicine had an extensive article about gleason 6 and monitoring.
What ever you do, your choice should be a collaborative decision with your oncologist.

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I for one would not wait. I would seek another opinion from a reputable urologist. Sum up all treatment options from research on each and choose the one with the best outcome with the least amount of side effects. Good luck,

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I agree with harvey44. I too would not wait. But we are all individuals and whether you can deal with anxiety, worry and the risks associated with "wait and see" to the risks of each treatments that are available. For me I did not want to worry but address and deal with the prostrate cancer diagnosis. I could have done wait and see but it was not recommended by the two consultations I had even though I had a Gleason only 1 biopsy that was 3+4 and the others at 3+3. After the biopsies I had a test called Decipher test which came back low risk.

But having said that you will read that 1 in 6 men will be diagnosed with prostrate cancer. And that eventually all will get it if you live long enough. There are histories of those who chose to wait and had excellent long term results and those that waited and PSA rose and had to treat. Early stages are the most easy to treat along with best cure rates and outcomes.

I think multiple consultation with highly recognized medical providers is best recommendation I can give as it is what I did along with extensive research. I had every test available (MRI, biopsies, CT, bone scan, PET scan, Decipher, and another test with a contrast injection I had not heard others have done).

The hormone treatment was recommended at first by first consultation and then changed saying not needed due to Decipher test results and to radiation treatment only. Hormone treatments don't kill the cancer. They only help stop the growth of it as prostrate cancer feeds of testosterone.

I have PTSD anxiety/panic disorder that medication and psychology has made the condition something minor but pops up with stress and worry and cancer diagnosis really affected it. So you can see each individual is different in how they feel and what treatments they chose.

I am 76, have heart failure (diagnosed 23 years ago), Pacemaker/ICD device (last 17 years) but I am an extensive exerciser and do Sprint Triathlons. It is why it is so hard to give advice as everyone is different and how they deal with a cancer diagnosis. Heck when I was going to Mayo Clinic decades ago PSA testing had become "do you want one." Now is back to you need it and now even at an early age.

Treatments have evolved with many new excellent type radiation treatments along with new medications. My advice would be to seek at least two consultations and be frank and honest with the oncologist about your worries, what you are willing to undergo, risks associated with waiting and risk associated with treatments.

Good luck in whatever you choose.

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Jeb decipher test can let you know if you what level of risk you are, it is done using your biopsy samples . I am 59 was 3+3 but high risk by decipher test. Had surgery June 12th and was then upgraded to 3+4. Before surgery psa was 5.2 up from 3.5 a year earlier. I did not want cancer left in me, would worry about it. As it turned out going from 6 to 7 Gleason I feel very good about my decision. 0 psa so far another psa tomorrow. Nothing about cancer is easy including decisions about what to do. Hope you do well will all.

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