Mayo Clinic Connect
i was told by mayo its nothing serious, any other opinions?
Liked by Merry, Volunteer Mentor
@chris, welcome to Mayo Connect. I'd like to ask you a few questions. Who told you that ground glass isn't dangerous? Have you recently been diagnosed with lung cancer? Do you have symptoms at all?
Ground glass is an appearance on a CT of a cluster of lung cells that have changed. It can be, and often is, a precusor to lung cancer. Usually adenocarcinoma of the lung. I do not know if this type of cell change shows up anywhere else.
i was just told that it has been seen in a few er ct chest scans at mayo and that no further action is needed
But who told you? A nurse? Technician, doctor?
What symptoms did you have that sent you to Mayo?
i think i was having chest pain so they er ordered a ct chest scan. its been seen on several ct chest scans over the months , the er dr as well as the final report said no follow up needed reguarding it even tho i have gone and had a few follow up scans done on my own
Chris..I would contact you PCP and get a referral to a lung surgeon or pulmonologist. Have specialists take a close look at the scans themselves. Then you will be reassured of what you are dealing with.
Did you have any blood work done to see if your heart is involved?
yes they did blood work and everything there at the Mayo Er. On the final report it said no further follow up needed per the radiologist as well as I spoke with the Er Dr and she said it's nothing. But as I stated I did go and have another follow up CT scan done on my own.
i appreciate you being concerned, in my mind i wanna get it scanned every 6 months unless any other issues arrise but the er dr said you dont need it and its documented , but i still will follow up on it
Chris..I agree, it needs to be followed. Ground glass can change unexpectedly. Does your private Dr agree?
Please let me know how you fare. Documented scans are a good baseline.
no he said mayo is the best of the best they have a very big reputation to uphold and for them to give me a printed document saying no follow up needed then if it turned into more they would be held liable so i cant imagine they would put themself on the line in that way
Oh, I see. I misunderstood. Sorry. Mayo Clinic is definitely one of the best. I'm on the east coast and go to MGH. Will you just go to the ER in 6 months?
sure thing i will, 🙂 i have a few other posts in other areas maybe u can respond to some of those to?
I'll look Chris. Thank you.
Chris. I read your posts. I am not familiar with menengitis, strokes, etc. I t seems to me that you are having a pretty rough time. Do you have a doctor at Mayo who can help coordinate appointments or tests for you? Have you any certain diagnosis!
Hi @chris8515, I'd like to bring in a few other members who have had scans that reported ground glass opacity (GGO), such as @reibur1951 @jewel8888 @merilee @irene5 @kaystrand and @llwortman.
I agree with Merry, Chris. You should ask questions until you fully understand the results of your scans and lab results. Ask what follow-up is necessary and how often. If no follow-up is necessary, be sure to ask why not. It is important that you are clear about the reasons why if indeed no follow-up is required at this time and what your next steps are.
Have you considered asking these questions on the Mayo Clinic patient portal: Online Patient Services https://gpsnetx.mayoclinic.org/psi/content/staticpatient/showpage/patientonline
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@colleenyoung He is a part of a clinical study and I U Medcial/Simon Cancer Center group is wonderful He has his 6 week CT-scan Thurs and then goes back on Monday for labs/Dr/Infusion which is Prembo every 3 weeks and has he done the genetic bio testing so that is any new better treatments come along or if the Prembo Some say I am crazy driving all the way to Indy just for the scan should have it done locally – but they are on top of everything they know what they want done, looking for/at and there is no hassle to make sure its there in time for the next labs/Dr/Infusion date. He done amazing with his Chemo so 12 weeks no nausea, diarrhea etc. minimal hair loss and it even grew back thicker; has not been sick only some minor nephropathy in his feet and its about gone Hopefully things will continue well but one always knows there are the "What if's" and with Stage 4B Lung Cancer thus far it what was there has shrank and not growing. They are very up front, question as to how feels, if any symptoms, reactions, rash, itching etc. etc. a check list they go down each time. The attitude is side effects are important and not the "be dam" like had with his dad – they keep questioning as to if any Its not a rush in and rush out visit like around here; they take the time to talk to you ask how things going etc, they have even called when we have run late asking where we are and if we are okay something that does not happen around here; and even an e-mail to say Happy Thanksgiving. Just hoping weather does not get to bad its been colder than a… since the last of 2 weeks October and last year at this time we were in the 60's part of the time here in Northern Indiana.
Liked by Colleen Young, Connect Director, Merry, Volunteer Mentor
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