Share this:
tdemaria
@tdemaria

Posts: 9
Joined: Dec 11, 2018

Neuropathy started during a gout spell

Posted by @tdemaria, Dec 10, 2018

Ok, my neuroaphy started during a gout attack. It started in my toes and spread to my feet and hands within a few weeks. I never had it before and the Dr. continue to say I am not diabetic. I was is good health up to that 3 week point never having it before. The treated the gout with Colchicine, steroids and allopurinol during the 3 week time. I have every blood test known with no direct cause. I have some RA factor but not enough for clear diagnosis of RA. Seen a neurologist and dont have permanent damage yet but have flares from food and sometimes without. I ate a single chocolate cookie last night and now my feet are on fire along with arms hands and legs. No DR can figure this out, seems like something attacked my nerves during the treatment. Can it be something attacking nerves and why can we not find the connection between sugar and the neuropathy. Anyone that has some idea i am open to anything.

REPLY

@tdemaria It could be be the sugar, but It can also be a food allergy to anything in the cookie. I've have been through this too. After giving up wheat and gluten, I still had other food allergies I had to figure out. I remember my hand feeling like it was hit with a hammer, and then I gave up dairy, and the pain stopped. You have to do an elimination diet to figure that out, but when you get all the foods out of your diet that cause inflammation, you'll feel much better, and it is so worth it. Apparently there are a lot of foods that are triggers for gout. https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/gout-diet/art-20048524 Eating foods that reduce inflammation will go a long way toward good health as almost every disease starts with inflammation. Clogged arteries starts first with inflammation in the arterial wall that cause swelling, and then plaque builds up later on the inflamed area. Stevia is a natural extract of a plant and a good substitute for sugar and doesn't raise your blood sugar. You might want to work with a nutritionist for help figuring out what is safe to eat.

@jenniferhunter

@tdemaria It could be be the sugar, but It can also be a food allergy to anything in the cookie. I've have been through this too. After giving up wheat and gluten, I still had other food allergies I had to figure out. I remember my hand feeling like it was hit with a hammer, and then I gave up dairy, and the pain stopped. You have to do an elimination diet to figure that out, but when you get all the foods out of your diet that cause inflammation, you'll feel much better, and it is so worth it. Apparently there are a lot of foods that are triggers for gout. https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/gout-diet/art-20048524 Eating foods that reduce inflammation will go a long way toward good health as almost every disease starts with inflammation. Clogged arteries starts first with inflammation in the arterial wall that cause swelling, and then plaque builds up later on the inflamed area. Stevia is a natural extract of a plant and a good substitute for sugar and doesn't raise your blood sugar. You might want to work with a nutritionist for help figuring out what is safe to eat.

Jump to this post

I guess I was not clear, I dont have gout pain any longer only the neuropathy stayed. I have not had a gout flare in a year just the neuropathy. The neuropathy gets better first thing in the am but worsens as the day goes on. I still have a bulging disc in my lower back but the connection between sweets and the neuropathy does not make sense. I have been tested for diabeties many times and not even close to diabetic is what I have been told. I have tried a total vegie diet and it help but it dont take it away. I am on day 11 after neck surgery for bulging disc and told it may be mechanical and though it has helpd my neck pain the nerves in my arms are not healed yet. Its changed my life from a fit guy who ran and biked daily to a couch riden bitter man. I hate what i have become and would love to get a real authentic diagnosis. I know I will never be 100 percent but 80 would be nice, hell ill take 50.

Hello @tdemaria, welcome to Mayo Clinic Connect. I've never heard of gout causing neuropathy but I have had several occurrences of gout in my right foot which went away fairly quickly when treated with Colchicine. I do have idiopathic small fiber peripheral neuropathy with only numbness, no pain. I did find a very short article that was interesting on the National Institutes of Health site and the Journal of the American Medical Association site..

NIH – Gouty neuropathy
https://www.ncbi.nlm.nih.gov/pubmed/6314947

JAMA – Gouty neuropathy
https://jamanetwork.com/journals/jamaneurology/article-abstract/582532

Have you been diagnosed with neuropathy? I know pinched or compressed nerves can also be the source of nerve pain/damage. I'm glad you are advocating for you own health. I think the more we learn about our health problems the better we can work with our doctors to come up with treatment plans. I would keep asking my medical team if they have any solutions or treatments to help. I wouldn't be too hard on yourself. 11 days does not seem very long in a recovery process.

Hoping someone else can join your discussion and offer some suggestions.

@tdemaria

I guess I was not clear, I dont have gout pain any longer only the neuropathy stayed. I have not had a gout flare in a year just the neuropathy. The neuropathy gets better first thing in the am but worsens as the day goes on. I still have a bulging disc in my lower back but the connection between sweets and the neuropathy does not make sense. I have been tested for diabeties many times and not even close to diabetic is what I have been told. I have tried a total vegie diet and it help but it dont take it away. I am on day 11 after neck surgery for bulging disc and told it may be mechanical and though it has helpd my neck pain the nerves in my arms are not healed yet. Its changed my life from a fit guy who ran and biked daily to a couch riden bitter man. I hate what i have become and would love to get a real authentic diagnosis. I know I will never be 100 percent but 80 would be nice, hell ill take 50.

Jump to this post

@tdemaria I've had cervical spine surgery and the best thing you can do is rest and relax and give yourself time. Don't put expectations on yourself. Recovery from this surgery is slow and I didn't feel recovered (as in pain free until 3 months post op). I lost muscle in my arms and shoulders because of spinal cord compression and it is coming back, but I'm still working on rebuilding it. It took years to grow those muscles the first time. I am 2 years post op. I also have a lumbar bulging disc and I work on my core strength to support that and keep it from getting worse. Make sure you are eating a healthy diet now while you are recovering from surgery. Be patient. You'll get there.

I am 2 1/2 months (9/28/19) from surviving from Septacimia (sepsis). Still suffering in every way with muscle depreciation, EXHAUSTION GALORE

@peach414144

I am 2 1/2 months (9/28/19) from surviving from Septacimia (sepsis). Still suffering in every way with muscle depreciation, EXHAUSTION GALORE

Jump to this post

@peach414144 Hi peach sorry for the sepsis you had it takes a long time to recover did you get P.T while in hospital?I looked up on a website and it said rest eat small meals ,nutrtious no junk food and everyday do a little exercise hope you get better each day

@lioness

@peach414144 Hi peach sorry for the sepsis you had it takes a long time to recover did you get P.T while in hospital?I looked up on a website and it said rest eat small meals ,nutrtious no junk food and everyday do a little exercise hope you get better each day

Jump to this post

@I thank you Lioness for your concern and advice. Yes, I see now it will take a very long time. I was giving up when I pushed myself to look it up on the internet and wow. It really does take much time. I am pushing hard to get there but I have never, never had it this tough to get at least a little bit better. I will not allow myself to give up but damn it is very hard to do. As a smile is forced onto my face.

@peach414144

@I thank you Lioness for your concern and advice. Yes, I see now it will take a very long time. I was giving up when I pushed myself to look it up on the internet and wow. It really does take much time. I am pushing hard to get there but I have never, never had it this tough to get at least a little bit better. I will not allow myself to give up but damn it is very hard to do. As a smile is forced onto my face.

Jump to this post

@peach414144 your welcome I,ll be praying for your recovery

I had a neuro dr., a chiropractor that treats neuropathy, say that sugar is like a blow torch to nerves. He specialized in neuropathy treatment with diet and electric stimulation, with alot of success with alot of patients. But mine is nerve damage from chemo and didnt do as well
But cutting back on sugar does seem to lower the severity of my pain.

Liked by lioness

Hi Lennie @lwbible, welcome to Mayo Clinic Connect. Thank you for sharing your experience. I also think cutting back on the sugar is a key to a lot of health issues along with diet and exercise of some sort. There is another discussion here on Connect you might find helpful:

Groups > Neuropathy > Living with Neuropathy – Welcome to the group
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

An often overlooked feature here on Connect is the ability to search and find information. There is another discussion with some great search tips here:

Groups > Just Want to Talk > Search – It can help you!
https://connect.mayoclinic.org/discussion/search-it-can-help-you/

Lennie may I ask if you have found any other treatments that help with your chemo induced neuropathy?

John

Please login or register to post a reply.