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207 total results

Comments (196)

Mar2a, here's another discussion about hypogammaglobulinemia and common variable immune deficiency (CVID) - Hypogammaglobulinemia https://connect.mayoclinic.org/discussion/hypogammaglobulinemia/ -...

https://connect.mayoclinic.org/comment/672343/

common variable immune deficiency (CVID ... hypogammaglobulinemia/ - Asthma, COPD, CVID

Discussion: Low values on SPEP enough to diagnose hypogammaglobulinemia?

Support Group: Autoimmune Diseases

Posted: Jan 18, 2022

You are young to have osteoporosis! I encourage you to pursue why you do. Same with...

https://connect.mayoclinic.org/comment/90487/

In my case something called CVID or

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Aug 6, 2017

My Immunologist is Dr. Patricia Lugar, a medical doctor on the faculty at Duke University Medical...

https://connect.mayoclinic.org/comment/246252/

is Immune Deficiency, particularly CVID

Discussion: Affects on smell?

Support Group: Neuropathy

Posted: Feb 9, 2019

My situation is identical with elevated numbers on the sweat test run at NJH. I have...

https://connect.mayoclinic.org/comment/1594129/

already receive IgG infusions because of CVID

Discussion: Anyone been tested for Cystic Fibrosis since Bronchiectasis diagnosis?

Support Group: MAC & Bronchiectasis

Posted: 3 days ago

I get reactivations of Epstein Barr Virus. I had to have tooth out despite a root...

https://connect.mayoclinic.org/comment/890025/

My CVID is worsening. ... My cousin has CVID and problems with

Discussion: Does anyone else have CVID?

Support Group: Neuropathy

Posted: Jul 4, 2023

I have very low levels of IgG and was diagnosed with Common Variable Immune Disorder (CVID)....

https://connect.mayoclinic.org/comment/240447/

with Common Variable Immune Disorder (CVID ... would like to hear from others with CVID

Discussion: Low levels of IgG IgA IgM

Support Group: Autoimmune Diseases

Posted: Jan 28, 2019

@lkel Years ago, we didn't have the internet for research into medical issues, and you did...

https://connect.mayoclinic.org/comment/697797/

older discussion on Connect about CVID ... /connect.mayoclinic.org/discussion/cvid

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: Apr 10, 2022

@klancee47 Hi, unfortunately, I can't speak of the MCS, as I don't have that. You will...

https://connect.mayoclinic.org/comment/1414835/

late 2023 from an Immunologist with CVID ... With CVID- my antibodies aren't

Discussion: Has anyone had Granulomas on or around their stoma?

Support Group: Ostomy & J-Pouch

Posted: Oct 13, 2025

I don't have EDS but I have CVID, common variable immunodepression. (Boy in the Bubble Disease)...

https://connect.mayoclinic.org/comment/1007818/

I don't have EDS but I have CVID ... is that a lot of people that have CVID

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Feb 1, 2024

How long did it take to feel it was working in the sinuses? I've been on...

https://connect.mayoclinic.org/comment/958334/

I have CVID too and Myasthenia Gravis

Discussion: Pseudomonas in sinuses

Support Group: Ear, Nose & Throat (ENT)

Posted: Nov 3, 2023

I am glad you got into NJH, What kind of appointments do you have? I did...

https://connect.mayoclinic.org/comment/993738/

know and if you are diagnosed with CVID

Discussion: Bronchiectasis treatment - best places to go?

Support Group: MAC & Bronchiectasis

Posted: Jan 8, 2024

@westwoman3698 I agree with you. They keep finding new conditions/diagnoses. At some point your mental health...

https://connect.mayoclinic.org/comment/1560428/

I have hx of ITP, CVID, PBC and have

Discussion: Anyone else have multiple autoimmune diseases?

Support Group: Autoimmune Diseases

Posted: Apr 26 9:09pm

@xfirerose Hi there. Welcome to our group. I have never heard of that term 'CVID', but,...

https://connect.mayoclinic.org/comment/65527/

have never heard of that term 'CVID ... What does having CVID entail?

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2018

@america, I have had a battle with thrush in my mouth and throat. It finally took...

https://connect.mayoclinic.org/comment/65563/

I also have CVID and I am on antibiotics

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 29, 2018

Hello just curious if anyone has a similar medical profile. My igg's are dropping. Dx with...

https://connect.mayoclinic.org/comment/748296/

Immunologist says not a true CVID because

Discussion: Low levels of IgG IgA IgM

Support Group: Autoimmune Diseases

Posted: Sep 11, 2022

Just read this article on fracture risk when Prolia is discontinued. It covers risk when oral...

https://connect.mayoclinic.org/comment/1086594/

ocid=msedgntp&pc=ACTS&cvid=583f1aee88974a24886a1443198639fa

Discussion: Support For Those Quitting Prolia

Support Group: Osteoporosis & Bone Health

Posted: Jun 14, 2024

Thanks, @lisa53 - seems we've been on a similar path. I stopped gluten/dairy and many other...

https://connect.mayoclinic.org/comment/710427/

even knowing my GI symptoms were also CVID-related ... more research comes about with the CVID

Discussion: Does anyone else have CVID?

Support Group: Neuropathy

Posted: May 22, 2022

@gussie - I understand about the walking... keeps the entire body lubricated. and wow- I've never...

https://connect.mayoclinic.org/comment/1567468/

wow- I've never heard of that CVID

Discussion: Left hip pain

Support Group: Bones, Joints & Muscles

Posted: May 5 4:07pm

Yes, I have 4 of them. 2 of them are on my upper thighs and I...

https://connect.mayoclinic.org/comment/1413016/

I have CVID- Common Variable Immune ... lung nodules can be associated with CVID

Discussion: Has anyone had Granulomas on or around their stoma?

Support Group: Ostomy & J-Pouch

Posted: Oct 11, 2025

All of my doctors have said "likely autoimmune" but no one knows for sure. There are...

https://connect.mayoclinic.org/comment/668881/

autoimmune conditions (hypothyroid and CVID

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 7, 2022