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140 total results

Comments (132)

I don't have EDS but I have CVID, common variable immunodepression. (Boy in the Bubble Disease)...

https://connect.mayoclinic.org/comment/1007818/

I don't have EDS but I have CVID ... is that a lot of people that have CVID

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Feb 1 11:15am

@lkel Years ago, we didn't have the internet for research into medical issues, and you did...

https://connect.mayoclinic.org/comment/697797/

older discussion on Connect about CVID ... /connect.mayoclinic.org/discussion/cvid

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: Apr 10, 2022

How long did it take to feel it was working in the sinuses? I've been on...

https://connect.mayoclinic.org/comment/958334/

I have CVID too and Myasthenia Gravis

Discussion: Pseudomonas in sinuses

Support Group: Ear, Nose & Throat (ENT)

Posted: Nov 3, 2023

@waterboy thank you I will look into an alpha 1 test as well as MAC and...

https://connect.mayoclinic.org/comment/270094/

an alpha 1 test as well as MAC and CVID ... smoking related conditions to ponder: CVID

Discussion: Asthma, COPD, CVID and MAC

Support Group: MAC & Bronchiectasis

Posted: Jul 26, 2019

Mac is a bacterial infection that prays on people with existing lung conditions. It is very...

https://connect.mayoclinic.org/comment/270126/

Cvid is a defective immune system which

Discussion: Asthma, COPD, CVID and MAC

Support Group: MAC & Bronchiectasis

Posted: Aug 9, 2019

@xfirerose Hi there. Welcome to our group. I have never heard of that term 'CVID', but,...

https://connect.mayoclinic.org/comment/65527/

have never heard of that term 'CVID ... What does having CVID entail?

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2018

I am glad you got into NJH, What kind of appointments do you have? I did...

https://connect.mayoclinic.org/comment/993738/

know and if you are diagnosed with CVID

Discussion: Bronchiectasis treatment - best places to go?

Support Group: MAC & Bronchiectasis

Posted: Jan 8 10:17am

@america, I have had a battle with thrush in my mouth and throat. It finally took...

https://connect.mayoclinic.org/comment/65563/

I also have CVID and I am on antibiotics

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 29, 2018

Hello just curious if anyone has a similar medical profile. My igg's are dropping. Dx with...

https://connect.mayoclinic.org/comment/748296/

Immunologist says not a true CVID because

Discussion: Low levels of IgG IgA IgM

Support Group: Autoimmune Diseases

Posted: Sep 11, 2022

Thanks, @lisa53 - seems we've been on a similar path. I stopped gluten/dairy and many other...

https://connect.mayoclinic.org/comment/710427/

even knowing my GI symptoms were also CVID-related ... more research comes about with the CVID

Discussion: Does anyone else have CVID?

Support Group: Neuropathy

Posted: May 22, 2022

@normacarlson Hi Norma - when in doubt, google - which I just did. (I did not...

https://connect.mayoclinic.org/comment/323354/

amp;pq=live+transc&sc=8-11&cvid

Discussion: Solutions: Live Transcribe reset and Zoom captions

Support Group: Hearing Loss

Posted: Oct 2, 2020

I have Bronchiectasis, MAC, 2 strains, on the big 3 right now (third time since 2005)...

https://connect.mayoclinic.org/comment/332022/

(third time since 2005) also have CVID

Discussion: MAC and getting the COVID vaccine

Support Group: MAC & Bronchiectasis

Posted: Feb 24, 2021

I'm not a medical person but it certainly sounds like you might have EDS. I have...

https://connect.mayoclinic.org/comment/1044141/

I have CVID and a lot of my people with

Discussion: I have stretchy skin and I'm hypermobility.

Support Group: Bones, Joints & Muscles

Posted: Apr 2 10:45am

All of my doctors have said "likely autoimmune" but no one knows for sure. There are...

https://connect.mayoclinic.org/comment/668881/

autoimmune conditions (hypothyroid and CVID

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 7, 2022

I was first on sub-q IGG then IVIG for a total of a few years. Neuropathy...

https://connect.mayoclinic.org/comment/735220/

are still low because I also have CVID

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Aug 8, 2022

Hello- Interest therapy caused my immune system to just basically quit! I have been diagnosed with...

https://connect.mayoclinic.org/comment/760738/

Common variable immuno deficiency (cvid

Discussion: Post Interferon Syndrome

Support Group: Infectious Diseases

Posted: Oct 13, 2022

@sb4ca Well, first off, what has your doctor said about the lymph nodes? There are many...

https://connect.mayoclinic.org/comment/1062867/

you’ve recently been diagnosed with CVID—that

Discussion: Inadvertent finding of cervical lymphadenopathy

Support Group: Cancer

Posted: May 5 7:43pm

Hi @sassykitten93, I’m tagging @dougmann and @miche as they’ve written about hypogammaglobulinemia in other discussions on...

https://connect.mayoclinic.org/comment/234487/

Since CVID or common variable immunodeficiency

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Jan 8, 2019

Hello, may I ask whom u r talking too? I am 10 yrs post interferon therapy...

https://connect.mayoclinic.org/comment/594455/

chronic fatigue syndrome, fibromyalgia, CVID

Discussion: Post Interferon Syndrome

Support Group: Infectious Diseases

Posted: Apr 14, 2021

YesI do get immunoglobulins for my CVID. Not sure it is concentrated, probably. I heard it...

https://connect.mayoclinic.org/comment/65533/

YesI do get immunoglobulins for my CVID

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2018