MAC and getting the COVID vaccine

Posted by cmi @cmi, Jan 6 6:34am

This is a wonderful team…like a real cooperativa family…we are a band of patients that strategize together…amazing. All good dialogue for “rits”…I also believe the CAT scan would be a good step…it arms the doctor with evidence.

I have another question for the group…what are the feelings on “us” being candidates for the Covid vaccine? Has anyone yet vaccinated? I see my ID doc this afternoon…it is one of my concerns. Any feedback appreciated.
Regina

I think I want a little more research on vaccine for Covid

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@jr2366

I think I want a little more research on vaccine for Covid

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Same here. Not totally comfortable with it yet. Self self isolation is working for me.

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@cmi… I am looking forward to the vaccine. I am not afraid of the scientific breakthrough that led to these new types of vaccines. The old technique using eggs was problematic to many people and takes a long time to prepare. Ask yourself, "what am I afraid of?" If you've had extreme allergic reactions, then do not take it yet. The danger of COVID is far more severe than the side effects for those of us with lung problems.

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@cmi My ID doctor wants me to get the Covid vaccine. She said I would be in phase 2 which is in February. That would also apply to my husband with sarcoidosis. We are both over 70 with pre existing conditions. irene5

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I'll be in line for the vaccine the minute it is offered. Both my primary & lung docs say that I am high risk, so will be in group 1C. Our state estimates late February. It is possible mine will come earlier if my daughter has to go back into her school, as I will then be a "front line worker" – her daycare provider.

My other daughter is a telehealth nurse, on the front lines of hearing any reactions in health care workers and long-term care residents. A few have reported feeling bad, mainly after the second dose. A sore arm or a few days feeling ill with fever and or aches are not considered severe – this is evidence the body is "listening" to the vaccine and building an immune response.

Caution is still being urged for people prone to SEVERE ALLERGIC reactions to prior vaccines – anaphylaxis, swelling of face tongue, lips, etc. Those people should consult their doctor before getting the vaccine.
Sue

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I look forward to getting the vaccine! I will be in group 1c as I will turn 65 in April. If it is offered before April, I’m told I’ll have to wait. I was wrongly diagnosed as having COPD before I had my CT. I would’ve been able to have the vaccine before April as I’d be considered as having an underlying condition. I don’t understand why Bronchiectasis isn’t included as having an underlying condition.

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@sueinmn

I'll be in line for the vaccine the minute it is offered. Both my primary & lung docs say that I am high risk, so will be in group 1C. Our state estimates late February. It is possible mine will come earlier if my daughter has to go back into her school, as I will then be a "front line worker" – her daycare provider.

My other daughter is a telehealth nurse, on the front lines of hearing any reactions in health care workers and long-term care residents. A few have reported feeling bad, mainly after the second dose. A sore arm or a few days feeling ill with fever and or aches are not considered severe – this is evidence the body is "listening" to the vaccine and building an immune response.

Caution is still being urged for people prone to SEVERE ALLERGIC reactions to prior vaccines – anaphylaxis, swelling of face tongue, lips, etc. Those people should consult their doctor before getting the vaccine.
Sue

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I’ve asked my allergy Dr. because I’m anaphylactic to bee stings and shrimp and was told to read up on the different Covid vaccines and make my decision after doing so. It didn’t sound like to me he wanted to be responsible.

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@cavlover

I look forward to getting the vaccine! I will be in group 1c as I will turn 65 in April. If it is offered before April, I’m told I’ll have to wait. I was wrongly diagnosed as having COPD before I had my CT. I would’ve been able to have the vaccine before April as I’d be considered as having an underlying condition. I don’t understand why Bronchiectasis isn’t included as having an underlying condition.

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@cadlover I wish this were federally mandated so each state would be the same. irene5

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@irene5

@cadlover I wish this were federally mandated so each state would be the same. irene5

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Irene – I think we all wish there was
1) a nationwide standard
2) a nationwide plan
3) a consistent process and
4) clear communication.
But then I remember this is all being done "on the fly" because of how new the virus is, the speed at which the vaccine was developed, and the overall pandemic policy of leaving as much as possible to the states. The saddest thing is that the Federal government can "deficit spend" to put things in place, but most states cannot. In order to do Covid-related work, states must get money from the Feds or cut something else, which creates an additional complication.
Sue

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Well said Sue. When I learned our state ( Connecticut) had a “committee” to decide who gets the vaccine and when I just shook my head. And of course the committee can’t agree so I shook my head again. My ID doctor is in Massachusetts. They are better organized with distribution. No committees to decide who and when there. Irene

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Thank everyone that spoke/wrote a response. I live in NC….Mecklenburg County is having “distribution issues “…but perhaps I will have clarity after 4pm today. My friends in South Florida…front line healthcare received, staff/residents in long term care have, and yesterday friends of mine with “no reportable underlying medical issues” (all 65 or older) received their first dose. I agree that novelty of this virus, speed of vaccine release, and lack of consistency whether communication and/or action has left many of us in doubt. My ID doc did not hesitate 2 seconds to inject me for this year expected Flu villians, so I am very curious to hear what his decision is. Will keep in touch.
Regina

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@cmi You are wanting to know member's thoughts regarding the COVID-19 vaccine and people diagnosed with, "MAC & Bronchiectasis."

There isn't very much data on the COVID-19 virus so I linked the COVID-19 group below. I did this so you could explore the questions and comments in that group more easily, if you choose to do so.
https://connect.mayoclinic.org/group/covid-19/

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