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846 total results

Comments (773)

Hello @soonerfan, How did your appointment on the 29th of March turn out? Were you able...

https://connect.mayoclinic.org/comment/1048610/

still think you have both HOCM and Amyloidosis

Discussion: Does any one have HOCM & Systemic Amyloidosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10, 2024

This is interesting, and potentially very helpful. The real point is that if you feel the...

https://connect.mayoclinic.org/comment/900332/

A have been found to have Crohns, Amyloidosis

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Just a few small things. First, exactly where in your chest do you hurt, and what...

https://connect.mayoclinic.org/comment/103844/

Morie Gertz, of Mayo-MN, in "Amyloidosis

Discussion: Pacemaker recipients: Looking for support from others

Support Group: Pacemaker & ICDs

Posted: Mar 28, 2020

just found out my so called cysts are plantar fibroma cysts on the bottom of both...

https://connect.mayoclinic.org/comment/194232/

really do think amyloidosis could very

Discussion: Zero appetite, not getting adequate nutrition

Support Group: Autoimmune Diseases

Posted: Mar 31, 2018

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

when I exercised 12 years ago… But my Amyloidosis ... the bone marrow that can accompany Amyloidosis ... I was concerned in March that the Amyloidosis

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

@lorraine06 - I debated for a while whether or not to share my experience. I'm sharing...

https://connect.mayoclinic.org/comment/896747/

minutes, he diagnosed I have Macular Amyloidosis ... to take .it Looks like Macular Amyloidosis ... this pill can be used for Macular Amyloidosis

Discussion: Macular Amyloidosis and skin rash

Support Group: Skin Health

Posted: Jul 16, 2023

Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...

https://connect.mayoclinic.org/comment/969673/

The suspicion is AL amyloidosis.

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

@Techi Hi, Lisa. You really said what's real in your note to @brie. Doctors who work...

https://connect.mayoclinic.org/comment/108661/

And as I noted in my Amyloidosis Dossier

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jan 7, 2018

Hi there ChefT, thank you kindly for your reply :) I have been concerned about amyloidosis,...

https://connect.mayoclinic.org/comment/883702/

reply :) I have been concerned about amyloidosis ... echocardiogram which did not show amyloidosis ... to check the samples for a type of amyloidosis

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I would like people to know that the diagnosis could be something other than PMR. I...

https://connect.mayoclinic.org/comment/1204349/

Diagnosis came back as Amyloidosis. ... The Amyloidosis is similar, however, ... doubts I had PMR and feels that my Amyloidosis

Discussion: Progression of other ailments after PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5 8:42am

I get these patches of macular skin any place on my body. Arms, back, belly, forehead........

https://connect.mayoclinic.org/comment/624322/

Boston area, with close access to the Amyloidosis