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907 total results
Comments (825)
About chronic bronchiectasis. Several sources name this as a Positive Obligate sign of Gelsolin, or some...
https://connect.mayoclinic.org/comment/321181/
Gelsolin, or some call it Finnish Amyloidosis
Although I am diabetic (II), my neuropathy does not seem to be connected to the Glucose...
https://connect.mayoclinic.org/comment/211009/
seems to be my Gelsolin (AGel or GSN) Amyloidosis
Upcoming webinar of interest... Foundation for Peripheral Neuropathy Webinar: Hereditary Neuropathy & Genetic Testing Thu, Oct...
https://connect.mayoclinic.org/comment/749431/
He co-founded the Penn Amyloidosis Center ... patients with hereditary and acquired amyloidosis
@pedie Sorry to hear about your tough spot, but it is not too surprising. First, in...
https://connect.mayoclinic.org/comment/182048/
corneal lattice effect from systemic Amyloidosis ... If you read my larger story, Amyloidosis
Initial diagnosis of MGUS in 2005, in 2025 after 20 years of monitoring, and increasing pain...
https://connect.mayoclinic.org/comment/1627424/
Diagnosis changed to Multiple Myeloma with Amyloidosis
I'm so sorry you're having to deal with all of this, it is indeed a big...
https://connect.mayoclinic.org/comment/1216639/
m glad you're being tested for amyloidosis
This is one of the articles that I found online about light chain amyloidosis: http://cjasn.asnjournals.org/content/1/6/1331.full. It...
https://connect.mayoclinic.org/comment/64605/
that I found online about light chain amyloidosis
@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and...
https://connect.mayoclinic.org/comment/383391/
what I have, a hereditary Gelsolin Amyloidosis
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
https://connect.mayoclinic.org/comment/182119/
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... but it is still the gold standard, "Amyloidosis
Just a bit more for you. I have many dis-eases, and am learning they are all...
https://connect.mayoclinic.org/comment/149849/
springing from or piggybacking on my amyloidosis
@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...
https://connect.mayoclinic.org/comment/217290/
14 have been dX with some form of Amyloidosis
@mrsbubbles Yes the alcohol septal ablation was a must. I still get chest pain and shortness...
https://connect.mayoclinic.org/comment/1559986/
I also now have cardiac amyloidosis
Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...
https://connect.mayoclinic.org/comment/883525/
Have you been checked for Amyloidosis
@cousinvinney My Kappa FLC bloodwork level of 5 was ten years ago. IF you have MGUS,...
https://connect.mayoclinic.org/comment/1490467/
necessary to determine IF you have amyloidosis
Thank-you! In addition to my joint symptoms, I had these strange skin lesions, purpura, in, of...
https://connect.mayoclinic.org/comment/1046753/
, who did skin biopsies, came back Amyloidosis
Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...
https://connect.mayoclinic.org/comment/1120375/
And find out anything I can about amyloidosis
@eltrosewater Back to Crohn's. my family and I for several generations have been diagnosed with some...
https://connect.mayoclinic.org/comment/212159/
diagnosed with some form of hereditary Amyloidosis
I have pain everywhere, and one serious pain currently and for years is in the are...
https://connect.mayoclinic.org/comment/77708/
Mayo, may be related to some form of Amyloidosis
@basslakebabe19 Here is a link to some of the nephrologists at the Mayo Clinic Rochester campus...
https://connect.mayoclinic.org/comment/111722/
M.D., a nephrologist with a focus on Amyloidosis
I understand every feeling you're having and relate to the fact hat it's difficult to find...
https://connect.mayoclinic.org/comment/104705/
I started treatment for amyloidosis/
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