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Comments (795)

@srodriguez Hi, my friend. So much compassion for where you're at with you Light Chain Amyloidosis....

https://connect.mayoclinic.org/comment/70302/

you're at with you Light Chain Amyloidosis ... Myeloma, or Gelsolin, of plain old Amyloidosis ... Look up the Amyloidosis Foundation

Discussion: Like I'm dying: Nausea, stomach pains, body weak, flushed, wt loss

Support Group: Just Want to Talk

Posted: Aug 26, 2018

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

connect.mayoclinic.org/discussion/al-amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

@knecht and @mommiesboy1 I was diagnosed with HCM as an early teen, probably about 14. I...

https://connect.mayoclinic.org/comment/203839/

what I really have, apparently, is Amyloidosis

Discussion: My 11 year old was diagnosed with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 30, 2018

@tracyann Just a quick note. My sister is in the final stages of life with Crohn's....

https://connect.mayoclinic.org/comment/137325/

close family with various types of amyloidosis

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

I do have celiac and I am vigilant about no gluten and it's not hard because...

https://connect.mayoclinic.org/comment/70306/

He says I have Amyloidosis and my husband

Discussion: Like I'm dying: Nausea, stomach pains, body weak, flushed, wt loss

Support Group: Just Want to Talk

Posted: Aug 26, 2018

I assume the stiffening of your heart is on the outside of your heart, and you...

https://connect.mayoclinic.org/comment/1099290/

If so, this is (Cardiac Amyloidosis)

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 4, 2024

I've been taking alendronate for osteopenia since October 2023. I was diagnosed with Myeloma and Amyloidosis...

https://connect.mayoclinic.org/comment/1289613/

I was diagnosed with Myeloma and Amyloidosis

Discussion: Has anyone taken Alendronate?

Support Group: Osteoporosis & Bone Health

Posted: Apr 25, 2025

I went to the Mayo Clinic. And had 5 days of testing to confirm the Amyloidosis....

https://connect.mayoclinic.org/comment/1258777/

had 5 days of testing to confirm the Amyloidosis

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 15, 2025

Jim, I know that finding the right MD is the toughest part of chronic illness. My...

https://connect.mayoclinic.org/comment/95088/

stomach, esophagus, thyroid, and proven amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 28, 2017

mikee and Jewel8888, yes, these are tough nuts to crack, and getting legitimate treatment is very...

https://connect.mayoclinic.org/comment/128397/

quite expensive, and in the case of amyloidosis

Discussion: Fibromyalgia and autonomic peripheral neuropathy

Support Group: Autoimmune Diseases

Posted: Jan 20, 2017

@jwillits8 Yes, sometimes it seems that Mayo and most similar orgs are only helpful for the...

https://connect.mayoclinic.org/comment/635742/

be some form of Myeloma, probably Amyloidosis ... this way: Cancer > Myeloma > Amyloidosis

Discussion: Autonomic nervous system malfunction: 2 yrs, yet no diagnosis or help

Support Group: Brain & Nervous System

Posted: Sep 15, 2021

I’ve been on Tramadol since 2008 about a year after my stem cell transplant…. Per trauma...

https://connect.mayoclinic.org/comment/1209556/

being able to use nsaids because of my amyloidosis

Discussion: What are your experiences with tramadol ?

Support Group: Chronic Pain

Posted: Jan 12, 2025

I had the same issue when I started PT. I had COVID February 2020. My Pulmonary...

https://connect.mayoclinic.org/comment/688075/

My Amyloidosis returned and spread,

Newsfeed Post: Early Care Tips for COVID Longhaulers

Blog: Post-COVID Recovery

Posted: Mar 10, 2022

@rvickert I am still not sure I know the size of bumps you speak of, but...

https://connect.mayoclinic.org/comment/313062/

Gelsolin and perhaps other forms of Amyloidosis

Discussion: Extreme fatigue and pain

Support Group: Spine Health

Posted: Jun 12, 2020

This isn't going to be much help, I'm afraid. I don't have arachnoiditis, but I do...

https://connect.mayoclinic.org/comment/103294/

but I do have Primary Systemic AL Amyloidosis

Discussion: Arachnoiditis: Trying to find a specialist

Support Group: Spine Health

Posted: Jan 23, 2020

I have an appt coming up in March at Mayo. I received some interesting literature yesterday....

https://connect.mayoclinic.org/comment/147195/

explanation: a person has Familial amyloidosis

Discussion: This and That and Talk - My Transplant

Support Group: Transplants

Posted: Feb 15, 2018

In my case, my "stiff heart" is apparently the result of cardiac amyloidosis. The V and...

https://connect.mayoclinic.org/comment/102954/

is apparently the result of cardiac amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Nov 8, 2017

@dorisena Just a little info about try skin on arms and legs and itch. You probably...

https://connect.mayoclinic.org/comment/313486/

Gelsolin style Amyloidosis, with Fukuyama

Discussion: Itchy shins and diabetes or thyroid

Support Group: Diabetes & Endocrine System

Posted: Jun 18, 2020

To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...

https://connect.mayoclinic.org/comment/1250436/

She ended up with Amyloidosis (AL) and

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

sharonryanbless Have you checked the Blood Cancers & Disorders Group? That is where you will find...

https://connect.mayoclinic.org/comment/113487/

for someone with such conditions as: amyloidosis

Discussion: NASH and cirrhosis of the liver.

Support Group: Liver Diseases

Posted: Dec 30, 2018