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Comments (755)

I get these patches of macular skin any place on my body. Arms, back, belly, forehead........

https://connect.mayoclinic.org/comment/624322/

Boston area, with close access to the Amyloidosis

Discussion: Grid/Net shaped rash

Support Group: Skin Health

Posted: Aug 8, 2021

@kking11879 3-8 times per week I have hematuria, blood in the urine. Sometimes it is just...

https://connect.mayoclinic.org/comment/78088/

normal occurrence and expected with AL Amyloidosis

Discussion: blood in urine with no cause

Support Group: Kidney & Bladder

Posted: Oct 29, 2017

Hi, @kidsmomof9 I also have a few AI conditions. RyR2 (heart wall dystrophy), FKTN (Fukuyama limb...

https://connect.mayoclinic.org/comment/238634/

both proven, and Gelsolin,(Finnish Amyloidosis

Discussion: Multiple autoimmune diseases

Support Group: Autoimmune Diseases

Posted: May 6, 2020

Hi, mojoearle. I, too, grew up in Idaho, and I also go to Mayo AZ when...

https://connect.mayoclinic.org/comment/95237/

remind me to put in another note about amyloidosis ... So the diseases are all forms of amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 11, 2017

@lailaamin , One of my life-long problems is HCM. Mine was first diagnosed at about age...

https://connect.mayoclinic.org/comment/298702/

Gelsolin (Meretoja's, Finnish Amyloidosis ... Gertz big book on Amyloidosis, so several

Discussion: Heart Disease: Let’s Talk About the Emotional Side

Support Group: Heart & Blood Health

Posted: May 31, 2020

@ssbionicknee I looked at your notes. "besides the osteoarthritis, ... degenerate disc disease in my spine...

https://connect.mayoclinic.org/comment/213378/

package of symptoms and signs of various Amyloidosis ... Grogan's Mayo video on diagnosing Amyloidosis

Discussion: Questions about osteoarthritis.

Support Group: Bones, Joints & Muscles

Posted: Aug 26, 2018

Hi Amanda, Thank you so much for this helpful info:) I'm not on any medications. This...

https://connect.mayoclinic.org/comment/652165/

My 83yr old Father has amyloidosis. ... me the only way they detected the amyloidosis

Discussion: Slurred, nasal speech, Scallop tongue with ringing or buzzing sounds

Support Group: Brain & Nervous System

Posted: Nov 7, 2021

@Skye13 Hi, Skye. That is one of the best names in the English language. Anyway, I...

https://connect.mayoclinic.org/comment/182342/

it MCTD, I know it by another name, Amyloidosis ... free, from https://bit.Ly/1w7j4j8 "Amyloidosis

Discussion: Possible MCTD and Vasculitis

Support Group: Autoimmune Diseases

Posted: Jan 26, 2018

Hi, Darlia. Two quick notes. 1. I agree with @Jimhd. Sleep Study and potential narcolepsy. However,...

https://connect.mayoclinic.org/comment/92035/

Like Amyloidosis but without the biopsy

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 2, 2017

@whiterose67 Hi, friend. My " painful feet and calves due to hypothyroidism bought on from thyroid...

https://connect.mayoclinic.org/comment/110672/

cancer brought on by my Light Chain Amyloidosis

Discussion: Hypothyroidism and Thyroid Cancer

Support Group: Thyroid Cancer

Posted: Mar 31, 2018

Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other...

https://connect.mayoclinic.org/comment/157940/

Disorders > Current diagnosis is Amyloidosis

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 3, 2019

OldKarl here. I am already a member of several other Mayo groups. When you have multiple...

https://connect.mayoclinic.org/comment/185132/

from excess vitamin D to Polio to Amyloidosis

Discussion: Heart Rhythm Conditions – Welcome to the group

Support Group: Heart Rhythm Conditions

Posted: Feb 13, 2020

S. I suggest you chat with your doctor. I found these two references that you may...

https://connect.mayoclinic.org/comment/889926/

for myeloma, macroglobulinemia, or amyloidosis

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am...

https://connect.mayoclinic.org/comment/1082496/

cardiologist that specializes in cardiac and amyloidosis

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7 11:08am

Lori, Thank you for the article, and for your inquiry also I am still uncertain as...

https://connect.mayoclinic.org/comment/775063/

The wild type and AL cardiac amyloidosis

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Thank you for your positive submissions relating to stage 4 prostate cancer. They give hope in...

https://connect.mayoclinic.org/comment/774841/

referred to Mayo Clinic for evaluation of amyloidosis

Discussion: Stage 4 prostate cancer treatment options

Support Group: Prostate Cancer

Posted: Nov 18, 2022

@techi Sure, Techi. Has anyone taken a good CT or MRI of our brain, especially around...

https://connect.mayoclinic.org/comment/175002/

of several different mutations of amyloidosis

Discussion: Headache

Support Group: Brain & Nervous System

Posted: Nov 16, 2017

My husband has MGUS and amyloidosis and received treatments and then a stem cell transplant in...

https://connect.mayoclinic.org/comment/847175/

My husband has MGUS and amyloidosis

Discussion: Has anyone experienced or is familiar with a high PTHrp?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

You are so right!!! I found out about a year ago that I have wild type...

https://connect.mayoclinic.org/comment/986909/

year ago that I have wild type ATTR ( Amyloidosis

Discussion: Chronic pain and upper abdomen? Please see added messages!!!

Support Group: Chronic Pain

Posted: Dec 26, 2023

Well, I have found a great deal of help in a book written by staff at...

https://connect.mayoclinic.org/comment/114564/

Morey Gertz, Amyloidosis: Diagnosis

Discussion: Mayo Scottsdale Gastro experience?

Support Group: Digestive Health

Posted: Oct 3, 2016