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826 total results

Comments (757)

I would like people to know that the diagnosis could be something other than PMR. I...

https://connect.mayoclinic.org/comment/1204349/

Diagnosis came back as Amyloidosis. ... The Amyloidosis is similar, however, ... doubts I had PMR and feels that my Amyloidosis

Discussion: Progression of other ailments after PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5 8:42am

Hi there ChefT, thank you kindly for your reply :) I have been concerned about amyloidosis,...

https://connect.mayoclinic.org/comment/883702/

reply :) I have been concerned about amyloidosis ... echocardiogram which did not show amyloidosis ... to check the samples for a type of amyloidosis

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...

https://connect.mayoclinic.org/comment/1279867/

still MGUS) was tested last summer for amyloidosis

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:23am

I have something like yours except that min is spread all over my body, from forehead...

https://connect.mayoclinic.org/comment/766144/

said they are part of the Myeloma-Amyloidosis

Discussion: Scab inside of left nose not healing

Support Group: Ear, Nose & Throat (ENT)

Posted: Oct 27, 2022

Colleen, thanks for the link. I did a lot of reading and realized one sad fact....

https://connect.mayoclinic.org/comment/738604/

With my Amyloidosis hanging in the balance

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

group of AI hits, including Myeloma>Amyloidosis

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

I get these patches of macular skin any place on my body. Arms, back, belly, forehead........

https://connect.mayoclinic.org/comment/624322/

Boston area, with close access to the Amyloidosis

Discussion: Grid/Net shaped rash

Support Group: Skin Health

Posted: Aug 8, 2021

@kking11879 3-8 times per week I have hematuria, blood in the urine. Sometimes it is just...

https://connect.mayoclinic.org/comment/78088/

normal occurrence and expected with AL Amyloidosis

Discussion: blood in urine with no cause

Support Group: Kidney & Bladder

Posted: Oct 29, 2017

Hi, mojoearle. I, too, grew up in Idaho, and I also go to Mayo AZ when...

https://connect.mayoclinic.org/comment/95237/

remind me to put in another note about amyloidosis ... So the diseases are all forms of amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 11, 2017

I have been to many neurologists and cardiologists over the past 5 years in my home...

https://connect.mayoclinic.org/comment/91986/

related tests) and it appears to be amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 19, 2017

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

temporarily moving someplace with a good amyloidosis

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024

I took a look at the lung scan posted on this page. It looks very much...

https://connect.mayoclinic.org/comment/233681/

Gelsolin / GSN (AGel AKA: Finnish Amyloidosis

Discussion: What is ground glass on a lung CT scan?

Support Group: Lung Health

Posted: Mar 9, 2021

Do not worry Jenrico. Your symptoms are common for AL but will improve the more you...

https://connect.mayoclinic.org/comment/88307/

live but if you can try and attend an Amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2016

@lily2013 Lily2013 I, too, have the facial swelling and skin sagging (cutis laxa). Mine is the...

https://connect.mayoclinic.org/comment/656192/

result of Gelsolin (GSN, AGEL, Finnish Amyloidosis

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Nov 21, 2021

Hi Amanda, Thank you so much for this helpful info:) I'm not on any medications. This...

https://connect.mayoclinic.org/comment/652165/

My 83yr old Father has amyloidosis. ... me the only way they detected the amyloidosis

Discussion: Slurred, nasal speech, Scallop tongue with ringing or buzzing sounds

Support Group: Brain & Nervous System

Posted: Nov 7, 2021

@Skye13 Hi, Skye. That is one of the best names in the English language. Anyway, I...

https://connect.mayoclinic.org/comment/182342/

it MCTD, I know it by another name, Amyloidosis ... free, from https://bit.Ly/1w7j4j8 "Amyloidosis

Discussion: Possible MCTD and Vasculitis

Support Group: Autoimmune Diseases

Posted: Jan 26, 2018

@lailaamin , One of my life-long problems is HCM. Mine was first diagnosed at about age...

https://connect.mayoclinic.org/comment/298702/

Gelsolin (Meretoja's, Finnish Amyloidosis ... Gertz big book on Amyloidosis, so several

Discussion: Heart Disease: Let’s Talk About the Emotional Side

Support Group: Heart & Blood Health

Posted: May 31, 2020

@ssbionicknee I looked at your notes. "besides the osteoarthritis, ... degenerate disc disease in my spine...

https://connect.mayoclinic.org/comment/213378/

package of symptoms and signs of various Amyloidosis ... Grogan's Mayo video on diagnosing Amyloidosis

Discussion: Questions about osteoarthritis.

Support Group: Bones, Joints & Muscles

Posted: Aug 26, 2018

Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other...

https://connect.mayoclinic.org/comment/157940/

Disorders > Current diagnosis is Amyloidosis

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 3, 2019

@whiterose67 Hi, friend. My " painful feet and calves due to hypothyroidism bought on from thyroid...

https://connect.mayoclinic.org/comment/110672/

cancer brought on by my Light Chain Amyloidosis

Discussion: Hypothyroidism and Thyroid Cancer

Support Group: Thyroid Cancer

Posted: Mar 31, 2018