I’m a 34 yr old female mother of two. I started experiencing a hive like rash in 2014. It took three years before one of the many doctors I saw suggested biopsy. It confirmed uticarial vasculitis. My other main symptoms are as follows: sore throats, left flank pain, naseau and vomiting, fevers,sharp chest pains, swelling and redness of my hands and eyelids and area around eyes turning red, ray aids, fatigue, aches and pains in my legs and arms/ wrists,hematuria, occasional proteinuria, positive anti rnp and smith antibodies. Positive Ana speckled. My primary has referred me to a vasculitis clinic at John Hopkins. I’ve not been diagnosed or told definitively what is wrong or what my prognosis is. Anybody experience similar symptoms and test results as me? I’ve recently started feeling very down because I keep getting shuffled between doctors and being offered medicines but without being told what they are treating bc it seems they don’t know. I live in a rural area where maybe the medical care is not adequate.
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