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825 total results
Comments (756)
Interesting note you give us. Almost everything you mention, except the specific diagnoses, I can relate...
https://connect.mayoclinic.org/comment/595137/
Hopkins, no less) had heard of, called Amyloidosis ... from Cancer to Multiple Myeloma to Amyloidosis ... under the name Gelsolin, AKA Finnish Amyloidosis
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
https://connect.mayoclinic.org/comment/182119/
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... but it is still the gold standard, "Amyloidosis
@srodriguez Hi, my friend. So much compassion for where you're at with you Light Chain Amyloidosis....
https://connect.mayoclinic.org/comment/70302/
you're at with you Light Chain Amyloidosis ... Myeloma, or Gelsolin, of plain old Amyloidosis ... Look up the Amyloidosis Foundation
Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...
https://connect.mayoclinic.org/comment/1120375/
And find out anything I can about amyloidosis
Thank-you! In addition to my joint symptoms, I had these strange skin lesions, purpura, in, of...
https://connect.mayoclinic.org/comment/1046753/
, who did skin biopsies, came back Amyloidosis
Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...
https://connect.mayoclinic.org/comment/782599/
That had to be frightening when the Amyloidosis
I had COVID ,Feb 2022 and sufferred with every symptom listed. Finlly got into a Post...
https://connect.mayoclinic.org/comment/708406/
which inflamed a reactivation of my AL AMYLOIDOSIS
@eltrosewater Back to Crohn's. my family and I for several generations have been diagnosed with some...
https://connect.mayoclinic.org/comment/212159/
diagnosed with some form of hereditary Amyloidosis
I have pain everywhere, and one serious pain currently and for years is in the are...
https://connect.mayoclinic.org/comment/77708/
Mayo, may be related to some form of Amyloidosis
@basslakebabe19 Here is a link to some of the nephrologists at the Mayo Clinic Rochester campus...
https://connect.mayoclinic.org/comment/111722/
M.D., a nephrologist with a focus on Amyloidosis
I understand every feeling you're having and relate to the fact hat it's difficult to find...
https://connect.mayoclinic.org/comment/104705/
I started treatment for amyloidosis/
@jwillits8 Yes, sometimes it seems that Mayo and most similar orgs are only helpful for the...
https://connect.mayoclinic.org/comment/635742/
be some form of Myeloma, probably Amyloidosis ... this way: Cancer > Myeloma > Amyloidosis
@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...
https://connect.mayoclinic.org/comment/81213/
For information on amyloidosis try this ... website from the Amyloidosis Foundation ... https://amyloidosis.org/facts/ You
I assume the stiffening of your heart is on the outside of your heart, and you...
https://connect.mayoclinic.org/comment/1099290/
If so, this is (Cardiac Amyloidosis)
I went to the Mayo Clinic. And had 5 days of testing to confirm the Amyloidosis....
https://connect.mayoclinic.org/comment/1258777/
had 5 days of testing to confirm the Amyloidosis
Jim, I know that finding the right MD is the toughest part of chronic illness. My...
https://connect.mayoclinic.org/comment/95088/
stomach, esophagus, thyroid, and proven amyloidosis
mikee and Jewel8888, yes, these are tough nuts to crack, and getting legitimate treatment is very...
https://connect.mayoclinic.org/comment/128397/
quite expensive, and in the case of amyloidosis
In my case, my "stiff heart" is apparently the result of cardiac amyloidosis. The V and...
https://connect.mayoclinic.org/comment/102954/
is apparently the result of cardiac amyloidosis
Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...
https://connect.mayoclinic.org/comment/88315/
connect.mayoclinic.org/discussion/al-amyloidosis
@knecht and @mommiesboy1 I was diagnosed with HCM as an early teen, probably about 14. I...
https://connect.mayoclinic.org/comment/203839/
what I really have, apparently, is Amyloidosis
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