Amyloidosis – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

872 total results

Comments (795)

I would like to view the video but receive a message that it is not available....

https://connect.mayoclinic.org/comment/1337037/

Central PA.... have any experience with Amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

Thank you so much for sending all of this information I will read and look at...

https://connect.mayoclinic.org/comment/715963/

overriding factors due to wild type cardiac amyloidosis

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

Glad to help. Yes, dive in and take the genetic sequencing test. I, personally, would start...

https://connect.mayoclinic.org/comment/627632/

epilepsy and/or Multiple Myeloma, perhaps Amyloidosis

Discussion: Autoimmune Fatigue and/or Chronic Fatigue

Support Group: Autoimmune Diseases

Posted: Aug 18, 2021

@indianascott, I have a form of cerebral angiopathy sometimes called "disappearing White Matter". It is diagnosed...

https://connect.mayoclinic.org/comment/336454/

portion of my Gelsolin, or AKA Finnish Amyloidosis

Discussion: Cerebral amyloid angiopathy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 3, 2021

@peach414144 Hi, Peach. So sorry to hear about your issue. However, I have been reading about...

https://connect.mayoclinic.org/comment/102958/

to have you tested for some form of Amyloidosis ... And for treatment of any form of Amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Nov 9, 2017

That's a tough row to how, Lisabeans. I have some of the same stuff, but not...

https://connect.mayoclinic.org/comment/137308/

99 % sure) that I have some form of amyloidosis ... themselves that there is no such thing as amyloidosis

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: May 13, 2017

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

The mm and amyloidosis were diagnosed

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

gastroenterologist do a biopsy for Amyloidosis

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

@davej It is interesting how much can be seen on a good EKG, TEE or not,...

https://connect.mayoclinic.org/comment/330291/

and rest, a strong sign of cardiac amyloidosis

Discussion: I'm worried about chest pain/pressure

Support Group: Heart & Blood Health

Posted: Mar 4, 2021

My husband’s heart was not affected by amyloid. His was localized to the kidneys. His kidney...

https://connect.mayoclinic.org/comment/1024115/

Amyloidosis is tricky, and MD Anderson

Discussion: Newly dx with stiff heart

Support Group: MAC & Bronchiectasis

Posted: Feb 28, 2024

I'm so sorry you're having to deal with all of this, it is indeed a big...

https://connect.mayoclinic.org/comment/1216639/

m glad you're being tested for amyloidosis

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

This is one of the articles that I found online about light chain amyloidosis: http://cjasn.asnjournals.org/content/1/6/1331.full. It...

https://connect.mayoclinic.org/comment/64605/

that I found online about light chain amyloidosis

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jun 12, 2018

@lazyironman What a name! Anyway,I respond to your input, and am glad to see you popped...

https://connect.mayoclinic.org/comment/177363/

(probably AL, ACys, AGel, etc), of Amyloidosis ... them could even recognize the word, Amyloidosis

Discussion: Living with Pulmonary Fibrosis (sometimes): Finding strength

Support Group: Lung Health

Posted: Dec 28, 2017

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

14 have been dX with some form of Amyloidosis

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

Hi there, I have the exact same symptoms as you and I am scheduled for a...

https://connect.mayoclinic.org/comment/980344/

the 29th to confirm or rule out AL Amyloidosis

Discussion: Amyloidosis and Polyneuropathy?

Support Group: Autoimmune Diseases

Posted: Dec 14, 2023

@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and...

https://connect.mayoclinic.org/comment/383391/

what I have, a hereditary Gelsolin Amyloidosis

Event: Video Q&A about Adult Congenital Heart Disease

Posted: Sep 20, 2018

@ocogram I also have headaches almost every day, right behind the eyes and around the crown...

https://connect.mayoclinic.org/comment/96329/

I have ocular amyloidosis, systemic,

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 13, 2017

About chronic bronchiectasis. Several sources name this as a Positive Obligate sign of Gelsolin, or some...

https://connect.mayoclinic.org/comment/321181/

Gelsolin, or some call it Finnish Amyloidosis

Discussion: Chest and upper back pain with bronchiectasis and pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Nov 21, 2020

Although I am diabetic (II), my neuropathy does not seem to be connected to the Glucose...

https://connect.mayoclinic.org/comment/211009/

seems to be my Gelsolin (AGel or GSN) Amyloidosis

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 7, 2020

Relocating to Phoenix at some point and called Mayo Clinic for an appt. I was told...

https://connect.mayoclinic.org/comment/1031626/

nerve biopsies, tests to r/o MS and Amyloidosis

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024