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Comments (6,711)

Hi Heidi @erythromelalgiaca, Actually we are all in this together and learning what we can so...

https://connect.mayoclinic.org/comment/879774/

use the search box at the top of the page ... of discussions on the Connect home page

Discussion: Neuropathy and Keeping Your Cool

Support Group: Neuropathy

Posted: Jun 16, 2023

Hello. I have not been formally diagnosed and just recently started feeling all everyone is mentioning...

https://connect.mayoclinic.org/comment/888188/

research and check the Facebook Support Page

Discussion: Aquagenic Pruritus

Support Group: Skin Health

Posted: Jul 1, 2023

Hi @mariannelarsen, Welcome to Connect. It's great that you are doing your own research and learning...

https://connect.mayoclinic.org/comment/880514/

information and the videos on their webinars page

Discussion: Maximum daily amount of B12 one can take

Support Group: Neuropathy

Posted: Jun 18, 2023

Hi @ro_batista, welcome to Mayo Clinic Connect. I think @sandyjr may have some experience with cold...

https://connect.mayoclinic.org/comment/322339/

chemotherapy https://connect.mayoclinic.org/page

Discussion: Chemo cold cap, socks and mitts: Share your experiences

Support Group: Breast Cancer

Posted: Sep 17, 2020

Welcome to the club no one wanted to join, but we are all in this together,...

https://connect.mayoclinic.org/comment/927518/

us are newbies, but I lurk on this page

Discussion: Newbie & scared

Support Group: Breast Cancer

Posted: Sep 10, 2023

...our family talking about that - middle income? - have way too much "stuff" really... realize...

https://connect.mayoclinic.org/comment/928520/

have to register it on line read a 50page

Discussion: Things I loved about the old days....how about you?

Support Group: Just Want to Talk

Posted: Sep 11, 2023

Join this discord, thousands of sufferers in here discussing cure options too https://discord.gg/fFM3y7aM or you can...

https://connect.mayoclinic.org/comment/928614/

can go on Reddit and search the tmau page

Discussion: Unknown Body Odor

Support Group: Digestive Health

Posted: Sep 12, 2023

Carcinoid Cancer Foundation is having a "Lunch with the Experts" tomorrow, July 14. This is another...

https://connect.mayoclinic.org/comment/929411/

Eastern Time Where: CCF’s Facebook Page ... Just come to the page at noon and the

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2023

Hello @beetlejeuse, Welcome to Connect. I know it must be difficult watching your father in pain...

https://connect.mayoclinic.org/comment/702438/

how-to-avoid-quacks-and-snake-oil-treatments/ FDA's Health Fraud Page

Discussion: Has anyone tried treatment for diabetic neuropathy?

Support Group: Neuropathy

Posted: Apr 25, 2022

Hello, My first time writing here but want to thank all for your questions and comments....

https://connect.mayoclinic.org/comment/846372/

matters lungs matter blog and Facebook page

Discussion: Getting home water tested

Support Group: MAC & Bronchiectasis

Posted: Apr 20, 2023

I found this 5 minute video worth the time. Quote: "Just because something is natural and...

https://connect.mayoclinic.org/comment/848523/

Curcumin and Tumeric (do search at home page

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Hi @freunch, I think it is really helpful to add evidence based information that can help...

https://connect.mayoclinic.org/comment/849003/

link at the bottom of every Connect page

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Apr 25, 2023

so sorry to hear about this and so glad you have finally reached a stage of...

https://connect.mayoclinic.org/comment/849271/

probably not on the right page, but

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Apr 25, 2023

I have to say that sounds like a lot of treatment for just a zero DCIS....

https://connect.mayoclinic.org/comment/857891/

On Page 172 it states 'In some women

Discussion: Aromatase Inhibitors: Did you decide to go on them or not?

Support Group: Breast Cancer

Posted: May 10, 2023

I'd suggest making a document where you can write your questions and the answers and who...

https://connect.mayoclinic.org/comment/842064/

surgery I wanted them on the same page ... easy to get them to get on the same page

Discussion: I’m new, concerned, NERVOUS and worried NO Diagnosis

Support Group: Breast Cancer

Posted: Apr 12, 2023

@bustrbrwn22 - The Patient Revolution website has lots of great tips for learning how to advocate...

https://connect.mayoclinic.org/comment/630866/

x1f601; Check out the topics on this page ... I like the Tools for the Visit page

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 28, 2021

Hi Heidi. It is now 2023, so unsure if you still visit this page, but I...

https://connect.mayoclinic.org/comment/852578/

so unsure if you still visit this page

Discussion: High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Support Group: Blood Cancers & Disorders

Posted: May 1, 2023

Hellow @browser3 Welcome to Mayo Connect. You were recently diagnosed with HES ~ Hypereosinophilic Syndrome. We...

https://connect.mayoclinic.org/comment/850536/

link will take you to Mayo’s home page

Discussion: Hypereosinophilic syndrome (HES)

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

There are also non stain options available it you decide it's not for you. Keep asking...

https://connect.mayoclinic.org/comment/749500/

the doctors need to be on the same page

Discussion: Important information about statins that I’m going to ask my doc about

Support Group: Aging Well

Posted: Sep 14, 2022

@hello2 I took the first two Covid shots in January of 2021. Two days after I...

https://connect.mayoclinic.org/comment/839636/

I looked at the VAERS page in the CDC

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Apr 7, 2023