Aquagenic Pruritus

Posted by GeeZeeCakes @geezeecakes, Oct 20, 2012

For years, after showering, I have suffered with a horrible, unbearable itch usually all over my arms, legs and thighs. In the past I assumed it was dry skin, and would maybe last about 15 minutes. Recently these attacks on my skin are longer, usually 30 to 90 minutes long. I use heat (a blow dryer) on the skin hoping that will help, or sometimes I stand in front of a fan blowing cold air. I usually find some relief in that, but not recently. I googled the symptoms and it sounds like a rare skin disorder called Aquagenic Pruritus. If anyone has this condition, Id like some information on symptoms and on treatment. Thank you!

I have Aquagenic Pruritus and find air condition the only thing that helps plus natural fabrics like cotton and linen. I have it for 25 or 30 years. Tried changing everything in my life including soaps, fabric cleaners, diet, household furnishings like wooden floors and curtains. It nearly drove me mad especially at night when you wake in the middle of the night itching – and you can’t scratch as it does not help. Cold air is the only thing that helps me.

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@frank2521

I have Aquagenic Pruritus and find air condition the only thing that helps plus natural fabrics like cotton and linen. I have it for 25 or 30 years. Tried changing everything in my life including soaps, fabric cleaners, diet, household furnishings like wooden floors and curtains. It nearly drove me mad especially at night when you wake in the middle of the night itching – and you can’t scratch as it does not help. Cold air is the only thing that helps me.

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AQUAGENIC PRURITUS, Hello Frank, i cut out sugars and sweets totally and increased my salt intake, within the first week i felt a good change, and it continued to slowly improve, and about 3 months later that stinging prickling itch became a thing of the past but if i eat incorrectly it will start to come back, check with your doctor and get started on this plan today !

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@frank2521

I have Aquagenic Pruritus and find air condition the only thing that helps plus natural fabrics like cotton and linen. I have it for 25 or 30 years. Tried changing everything in my life including soaps, fabric cleaners, diet, household furnishings like wooden floors and curtains. It nearly drove me mad especially at night when you wake in the middle of the night itching – and you can’t scratch as it does not help. Cold air is the only thing that helps me.

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Thank You — I will try it.

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@frank2521

I have Aquagenic Pruritus and find air condition the only thing that helps plus natural fabrics like cotton and linen. I have it for 25 or 30 years. Tried changing everything in my life including soaps, fabric cleaners, diet, household furnishings like wooden floors and curtains. It nearly drove me mad especially at night when you wake in the middle of the night itching – and you can’t scratch as it does not help. Cold air is the only thing that helps me.

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Let me make sure I’m reading this right: you’re eating MORE salt? That’s counter to any advice we’re given about salt intake, at least if you have high blood pressure or diabetes.

When you say “sweets”, do you mean just sweetened drinks, candies, cookies, cakes and the like? Surely you haven’t cut out fruits, have you?

I wonder why that helps. I suppose it’s worth a try. I already avoid sugars and sweets.

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I have a problem with my body that is causing me pain and agony ,is a disease call an Aquagenic pruritus I have search for solution I couldn’t find to be out of my pain ,pls can l have any solution here

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@destiny

I have a problem with my body that is causing me pain and agony ,is a disease call an Aquagenic pruritus I have search for solution I couldn’t find to be out of my pain ,pls can l have any solution here

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Air Conditioner. Portable air con is the answer for me. Avoid humidity and after bathing(no shower) use air con to cool down. If you wake in the middle of the night with the itch use air con for a while until it eases.
I hope this helps.

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@destiny

I have a problem with my body that is causing me pain and agony ,is a disease call an Aquagenic pruritus I have search for solution I couldn’t find to be out of my pain ,pls can l have any solution here

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Sir, thanks for your respond and I heard all what you said I ‘ll make sure I do it,  but if there is anyway else to solve this problem me and my family we don’t  care whatever it will take and we have spend a lot to sure it out of my life

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My mother had this condition. I remember as a child watching her after she got out of the shower, it was awful. Her doctor told her she was allergic to water. Then when I got pregnant with my first son (23 years old) it happened to me. It was terrible. My husband thought I was crazy and that it was in my head. Now I'm almost 50 and two of my boys have this condition. So I can definitely tell you it is hereditary. It has gotten better with age. Although now that I'm in menopause my hot flashes are triggering the stinging attacks. There is a medicine that helps and I'm living proof, it's Gabapentin and/or Neurontin. As long as I take one before I shower I will not sting. This medicine works better and faster than Benadryl. I found out about Gabapentin by accident. I had injured my right hip very badly and was having severe sciatic nerve pain and was put on Gabapentin and my itching/stinging was gone. There is hope. Talk to your doctor. Never take a hot shower, it will make it worse. Yes cool air does help but for me it does not stop it fast enough. From someone who lives in middle Georgia and the humidity is a killer, I have opted for the meds.

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@destiny

I have a problem with my body that is causing me pain and agony ,is a disease call an Aquagenic pruritus I have search for solution I couldn’t find to be out of my pain ,pls can l have any solution here

Jump to this post

There is a medicine that helps and I'm living proof, it's Gabapentin and/or Neurontin. As long as I take one before I shower I will not sting. This medicine works better and faster than Benadryl. I found out about Gabapentin by accident. I had injured my right hip very badly and was having severe sciatic nerve pain and was put on Gabapentin and my itching/stinging was gone. There is hope. Talk to your doctor. Never take a hot shower, it will make it worse. Yes cool air does help but for me it does not stop it fast enough. From someone who lives in middle Georgia and the humidity is a killer, I have opted for the meds.

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For anyone following this thread: Come to the Facebook Aquagenic Pruritis Support Group! Also do some research on an amino acid called beta Alanine. It's used by body builders and others pre workout to improve endurance. Well it just so happens that one of our members was taking it before exercising and accidentally discovered that it stops her itch! Many of us have had success with it since. Of course, talk to your doctor before trying anything. And a heads-up – Beta Alanine can cause your skin to tingle (ironic, I know). You should start with a very small amount (like a pinch) or you may end up as itchy as you would from an Aquagenic Pruritis attack, but for a shorter time. Then you work your way up to an effective dose without too much tingle.

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@jdeal8139

There is a medicine that helps and I'm living proof, it's Gabapentin and/or Neurontin. As long as I take one before I shower I will not sting. This medicine works better and faster than Benadryl. I found out about Gabapentin by accident. I had injured my right hip very badly and was having severe sciatic nerve pain and was put on Gabapentin and my itching/stinging was gone. There is hope. Talk to your doctor. Never take a hot shower, it will make it worse. Yes cool air does help but for me it does not stop it fast enough. From someone who lives in middle Georgia and the humidity is a killer, I have opted for the meds.

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Gabapentin did not work for me =/ My allergist put me on it for about 2 months and never had any relief. On to the next medication…

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Hey all! I've suffered with AP since I was about 13 (currently 27) and in the last 6 year it has increasingly gotten more severe and more frequent. I have tried EVERYTING! Diet changes, lotions, creams, oils, change in body wash, razors, shaving cream, etc. Finally started seeing a doctor for it because I am going crazy! I've called my mom after a shower many times in the last few years in full on tears and explaining how crazy I feel! So far my doctor has tried me on individual and combinations of meds including Zyrtec, Cyproheptadine, Amitriptyline, and Gabapentin. Now about to start naltrexone with the Xolair shots as the next option if the naltrexone fails. I am happy to have finally found a doctor that listened to me and is working with me every step of the way. She is literally running down the list of medications that follow separate physiological pathways that can result in severe itching. My doctor also linked my cold uticaria to my AP; apparently most AP sufferers have an allergic reaction when their body heats up; but mine does it when it gets to cold too fast. Unfortunately my AP is triggered by humidity as well and I live in Florida where it rains and is super humid constantly. And moving to a cooler dry climate is supposed to help but my allergy to the cold restricts me from doing so..

I have seen that some people get relief from beta-alanine supplementation. I know beta-alanine is most commonly found in pre-workouts and I can't recall ever having relief from itching while I was taking pre-workout. Recent heart issues prevent me from taking pre-workout any longer. So I am thinking of trying the beta alanine on its own if the naltrexone doesn't work; prior to starting the Xolair shots (which have me a little nervous). I was just curious if anyone had any evidence based text about beta alanine in the treatment of AP; the healthcare professional in me is curious how it works physiologically/pathologically to stop the itch..

And I am so sorry that everyone here suffers from AP; I would never wish this condition on anyone!

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