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Comments (2,131)

Thank you Becky for posting both of the articles. The AARP one I’m sending around to...

https://connect.mayoclinic.org/comment/627006/

I only manifested Sjogren’s Syndrome

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Aug 16, 2021

I went to Walgreens to get a prescription filled and ended up walking out with the...

https://connect.mayoclinic.org/comment/626677/

but I think they are a result of my Sjogren

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2021

Sjogren’s is pretty weird I have to say. I hope I can find a good Rheumatologist....

https://connect.mayoclinic.org/comment/623046/

Sjogren’s is pretty weird I have to ... institutions have more of a team approach to Sjogren ... be several organizations there for Sjogren

Discussion: Topical cream brings relief for PN

Support Group: Neuropathy

Posted: Aug 3, 2021

Thanks again for the links, I am reading more and more about Sjogren's Syndrome. It can...

https://connect.mayoclinic.org/comment/622825/

, I am reading more and more about Sjogren

Discussion: Topical cream brings relief for PN

Support Group: Neuropathy

Posted: Aug 3, 2021

Yes, water is important. In addition to the drying symptoms of Sjogren’s, I have to take...

https://connect.mayoclinic.org/comment/622684/

addition to the drying symptoms of Sjogren

Discussion: Topical cream brings relief for PN

Support Group: Neuropathy

Posted: Aug 2, 2021

there are numerous forums on Facebook regarding SFN and Sjögren’s to which I subscribe. It seems...

https://connect.mayoclinic.org/comment/617352/

forums on Facebook regarding SFN and Sjögren

Discussion: Repeated UTI & Yeast infection w/ autonomic neuropathy

Support Group: Neuropathy

Posted: Jul 17, 2021

Oh, Valcyte…I took that along with Bactrim for 3 months post transplant. I’m glad the CMV...

https://connect.mayoclinic.org/comment/616895/

ongoing thing with oral thrush due to Sjogren

Discussion: What do you order when eating at a restaurant?

Support Group: Transplants

Posted: Jul 15, 2021

Hi Everyone, I have had ear pain from a blocked parotid gland for over 10 years...

https://connect.mayoclinic.org/comment/608353/

#39;t take amlytripoline as I have Sjogren

Discussion: Trigeminal Neuralgia*

Support Group: Brain & Nervous System

Posted: Jun 11, 2021

My labs and symptoms sparked some interest at my rheumatology appointment. I’m apparently an “anomaly” and...

https://connect.mayoclinic.org/comment/604151/

www.hopkinssjogrens.org/disease-information/sjogrens-syndrome ... https://www.uptodate.com/contents/sjogrens-syndrome-beyond-the-basics

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: May 23, 2021

There are a lot of unknowns with the vaccine. I’ve only had neuropathy since November, now...

https://connect.mayoclinic.org/comment/603719/

November, now believed related to Sjogren

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 21, 2021

My rheumatologist tested for many things, not sure what all. From what I could discern from...

https://connect.mayoclinic.org/comment/602880/

disease (which I believe could be SFN or Sjögren ... that often people test negative for Sjögren

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: May 18, 2021

Hello Helen, I see a PA in rheumatology on Thursday. I have PBC and Raynaud’s, both...

https://connect.mayoclinic.org/comment/602845/

and Raynaud’s, both associated with Sjogren

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: May 18, 2021

I would like to know this as well. I have B12 levels >6,000 for the last...

https://connect.mayoclinic.org/comment/602305/

I have Sjogren’s, Secondary Autonomic

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2021

Thank you Becky. I appreciate your insights! Yes, I’m rereading all the info I downloaded about...

https://connect.mayoclinic.org/comment/602262/

rereading all the info I downloaded about Sjogren

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: May 16, 2021

I’m curious to know how many people in this discussion, who believe their neuropathy symptoms increased...

https://connect.mayoclinic.org/comment/595157/

to PBC, I just tested positive for (Sjogren

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Apr 17, 2021

I have had Mixed Connective Tissue Disease for 24 years and your symptoms seem to match....

https://connect.mayoclinic.org/comment/239868/

It has overlapping symptoms of Sjogrens

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Mar 21, 2021

I have an autoimmune condition called Sjogrens. The Erythromelagia started about 10 years ago, but was...

https://connect.mayoclinic.org/comment/213770/

have an autoimmune condition called Sjogrens

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 17, 2021

Hi everyone, I have recently been experiencing the most annoying tingling/buzzing feeling in my toes which...

https://connect.mayoclinic.org/comment/334927/

I also think I may have Sjorgrens since

Discussion: Has medical marijuana helped your nerve pain?

Support Group: Neuropathy

Posted: Feb 15, 2021

I am new to this group. Diagnosed 5 years ago with Scleroderma, Sjogrens and Raynauds. Had...

https://connect.mayoclinic.org/comment/272468/

Diagnosed 5 years ago with Scleroderma, Sjogrens

Discussion: Anyone have Scleroderma?

Support Group: Autoimmune Diseases

Posted: Feb 13, 2021

I have had MCTD for 20 years. I have symptoms of Sjogrens, Reynauds, interstitial lung disease,...

https://connect.mayoclinic.org/comment/80639/

I have symptoms of Sjogrens, Reynauds

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Jan 28, 2021