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821 total results
Comments (750)
@srodriguez Hi, my friend. So much compassion for where you're at with you Light Chain Amyloidosis....
https://connect.mayoclinic.org/comment/70302/
you're at with you Light Chain Amyloidosis ... Myeloma, or Gelsolin, of plain old Amyloidosis ... Look up the Amyloidosis Foundation
Discussion: I feel like I'm dying
Support Group: Digestive Health
Posted: Aug 26, 2018
Interesting note you give us. Almost everything you mention, except the specific diagnoses, I can relate...
https://connect.mayoclinic.org/comment/595137/
Hopkins, no less) had heard of, called Amyloidosis ... from Cancer to Multiple Myeloma to Amyloidosis ... under the name Gelsolin, AKA Finnish Amyloidosis
Discussion: Difficult case, several diagnosis, no solution yet
Support Group: Autoimmune Diseases
Posted: Apr 17, 2021
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
https://connect.mayoclinic.org/comment/182119/
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... but it is still the gold standard, "Amyloidosis
Discussion: Facial Swelling - no diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 23, 2018
@pedie Sorry to hear about your tough spot, but it is not too surprising. First, in...
https://connect.mayoclinic.org/comment/182048/
corneal lattice effect from systemic Amyloidosis ... If you read my larger story, Amyloidosis
Discussion: Acoustic neuroma, hydrocephalis, and vertigo
Support Group: Brain Tumor
Posted: Jan 20, 2018