I have beeen diagnosed with this disease but am not sure that this is what I have. I have been suffering with this for about 6 years. My feet burn as if they are on fire, but the feet and up to the knees are numb. I take lyrica and hydrocodone for pain but lately this is not enough. Another doctor said that I have MAG (Myelin Assoc. Glycoprotein). Blood test shows that my antibodies have increased to 104,000 and should be about 1,000. When given intravenous cancer drug they decrease to 25,000. I need someone to stop the progression and the pain.
PS: I am looking diligently for someone who has similiar experience and possibly diagnosed differently. All responses appreciated.