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monoclonal gammopathy of undetermined significance

Posted by @concernedlady in Just Want to Talk, Nov 23, 2011

I have beeen diagnosed with this disease but am not sure that this is what I have. I have been suffering with this for about 6 years. My feet burn as if they are on fire, but the feet and up to the knees are numb. I take lyrica and hydrocodone for pain but lately this is not enough. Another doctor said that I have MAG (Myelin Assoc. Glycoprotein). Blood test shows that my antibodies have increased to 104,000 and should be about 1,000. When given intravenous cancer drug they decrease to 25,000. I need someone to stop the progression and the pain.

PS: I am looking diligently for someone who has similiar experience and possibly diagnosed differently. All responses appreciated.

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