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Comments (445)

@lisalucier Lisa Lucier, Connect Moderator My first symptom of sjogren ’s was 23 years ago. One...

https://connect.mayoclinic.org/comment/111308/

I had Sarcoidosis in my lungs within

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 5, 2018

Hello Everyone, Many of your stories sound familiar. I was diagnosed with lupus in 2001 at...

https://connect.mayoclinic.org/comment/114618/

diagnosis, and we are currently waiting on sarcoidosis

Discussion: Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Support Group: Autoimmune Diseases

Posted: May 25, 2017

Hi fellow lung nodule worriers/warriors! I had a PET scan in Nov because I learned I...

https://connect.mayoclinic.org/comment/1041767/

My mom has sarcoidosis and my sister

Discussion: Multiple Lung Nodules elevated D-Dimer: How do I stay calm?

Support Group: Lung Health

Posted: Mar 28, 2024

@blossomgirl, and all...Blossom, why are you considering Prednisone and Cellcept? Are you currently in a flare...

https://connect.mayoclinic.org/comment/866630/

Have you been to the Sarcoidosis site

Discussion: Sarcoidosis Treatment: Tips for an effective path to better health

Support Group: Autoimmune Diseases

Posted: May 25, 2023

This is a great question. when I got my 24hr urine calcium tested after op diagnosis,...

https://connect.mayoclinic.org/comment/1176877/

may cause calcium kidney stones •Sarcoidosis

Discussion: 24 hour urine test: Hold supplements?

Support Group: Osteoporosis & Bone Health

Posted: Nov 20, 2024

Hello, I have loss of sensation on the left side of my body. Facial down to...

https://connect.mayoclinic.org/comment/781105/

I have pulmonary sarcoidosis which my

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 5, 2022

I've had sarcoidosis since 2011. I am almost 65 years old. Mine has never spread to...

https://connect.mayoclinic.org/comment/130824/

I've had sarcoidosis since 2011.

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Aug 1, 2017

@cropdoc, @emo, @ae2024, and all... YES! ITS AWFUL! Since Covid last July and again in November,...

https://connect.mayoclinic.org/comment/1026834/

10mg Prednisone for PMR, GCA, and Sarcoidosis

Discussion: Anyone with head sweating, dripping water with no to little exertion?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 3, 2024

@emo, @ch47, @ch47 and all...I have a small suggestion to add to your great conversation here...

https://connect.mayoclinic.org/comment/904605/

fibromyalgia, stress and tension, Sarcoidosis

Discussion: Topical creams and lotions for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Jul 30, 2023

@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and...

https://connect.mayoclinic.org/comment/736559/

while they saved my life when I had Sarcoidosis

Discussion: Double Vision and Autoimmune Diseases like MG: Can anyone relate?

Support Group: Autoimmune Diseases

Posted: Aug 12, 2022

Hi @kimhal. I've have hearing issues since my early thirties, was diagnosed with Meniere's at 40...

https://connect.mayoclinic.org/comment/200239/

up that I was later diagnosed with sarcoidosis

Discussion: Anyone with Meniere's Disease been prescribed Betahistine?

Support Group: Ear, Nose & Throat (ENT)

Posted: Jul 21, 2019

I am so absolutely exhausted with my Sarcoidosis which has spread through most of my body....

https://connect.mayoclinic.org/comment/77280/

am so absolutely exhausted with my Sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Oct 7, 2012

Hello everyone, I'm not sure who will be able to see this as the thread has...

https://connect.mayoclinic.org/comment/746754/

Immunosuppression Goals: Long-term prednisone for sarcoidosis

Discussion: "What is the quality of your "match"?"

Support Group: Transplants

Posted: Sep 7, 2022

@hopefu33250, @parus, @jenniferhumt, @tinyknit, and all...Thank you for this youtube, Teresa. I'm listening to another with...

https://connect.mayoclinic.org/comment/657632/

diagnosed with a lung biopsy with Sarcoidosis

Discussion: Music Helps Me

Support Group: Just Want to Talk

Posted: Nov 26, 2021

Hi all. It's been a little while since my last post, so I just wanted to...

https://connect.mayoclinic.org/comment/969137/

Two ideas she mentioned were sarcoidosis

Discussion: Mystery illness — pain in abdomen, back, chest, and head; no rash

Support Group: Just Want to Talk

Posted: Nov 22, 2023

I want to step in here and restate some of my experiences with RLS and its...

https://connect.mayoclinic.org/comment/894088/

boost for me in many years due to Sarcoidosis

Discussion: RLS Dead End?

Support Group: Sleep Health

Posted: Jul 11, 2023

Hi guys, I think i'm in something of a similar situation here. In June 2019 I...

https://connect.mayoclinic.org/comment/161538/

d like to get ruled out: nasal Sarcoidosis

Discussion: Nose cartilage pain, no redness or swelling

Support Group: Ear, Nose & Throat (ENT)

Posted: Feb 18, 2020

@ddr, @ropnrose, and all... You are correct to watch your bone density and talk clearly with...

https://connect.mayoclinic.org/comment/1225178/

when I was 40 years old and developed Sarcoidosis

Discussion: Prednisone duration

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30, 2025

Hello, Sue. @ashby1947 Good to see you and hope all is well. Sounds like you're working...

https://connect.mayoclinic.org/comment/336408/

leg, multiple vertebrae injuries, sarcoidosis

Discussion: Marijuana for Chronic Pain Experiences

Support Group: Chronic Pain

Posted: Mar 5, 2021

My Story That I Call "Maisha" Is this really happening? No way! Yes, way…because here I...

https://connect.mayoclinic.org/comment/1168617/

I was diagnosed with sarcoidosis (an ... nephrologist informed me that the sarcoidosis

Discussion: Organ Donation and Transplant: What is Your story?

Support Group: Transplants

Posted: Nov 5, 2024