Meniere's Disease

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?

Hi @morninglory, thanks for starting this discussion specific to Meniere's Disease. I'm tagging @pedie @trishanna and @huoda to join the conversation.

MorningGlory, are you currently taking Betahistine? Is dizziness or vertigo the symptom you experience the most with Meniere's?

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Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.

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@morninglory

Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.

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Had not heard of Betahistine, but will be interested in any comments. From what I am able to learn on the internet, it does not seem to be very effective even though widely used.

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@morninglory

Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.

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Very interesting that you saw negative info about it as Dr. Kaylie experienced much success with Betahistine. I am most interested to hear from those that have used it.

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Does anyone have a success story to tell? I tried an injection of Genta Miacin into the ear. My 3rd injection is due in 2 weeks. No Meniere's attacks for 3 years. However, the medication causes loss of balance… Rehab to regain not working to well. Perhaps it is my age as others have succeed. (88)

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@ginomayo

Does anyone have a success story to tell? I tried an injection of Genta Miacin into the ear. My 3rd injection is due in 2 weeks. No Meniere's attacks for 3 years. However, the medication causes loss of balance… Rehab to regain not working to well. Perhaps it is my age as others have succeed. (88)

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@ginomayo Since possible side effects of this antibiotic include vertigo and dizziness, have you discussed this with your doctor? For Meniere's disease, it's terribly important to be on a low-salt diet. Stay with the rehab – sometimes it just takes time.

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Hi @ginomayo and welcome to Connect. You may have noticed I moved your post to this existing thread on Meniere's Disease so that you can hopefully learn from others who have this disease.

I wanted to thank @trishanna for posting a response and @morningglory may have some thoughts on this as well, or advice to offer.

Back to you @ginomayo I also wanted to ask if you have spoken to your doctor about your continued loss of balance?

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@ethanmcconkey

Hi @ginomayo and welcome to Connect. You may have noticed I moved your post to this existing thread on Meniere's Disease so that you can hopefully learn from others who have this disease.

I wanted to thank @trishanna for posting a response and @morningglory may have some thoughts on this as well, or advice to offer.

Back to you @ginomayo I also wanted to ask if you have spoken to your doctor about your continued loss of balance?

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Ive had meinieres since I was in my 30,s Dr at that time said there,s nothing can be done Im no76 and the ringing,humming hasnt gone away now Im haven't ng more vertigo ,have to hold o to things when I get up .Is there anything out there ?
Id appreciate any comments

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@lioness

Ive had meinieres since I was in my 30,s Dr at that time said there,s nothing can be done Im no76 and the ringing,humming hasnt gone away now Im haven't ng more vertigo ,have to hold o to things when I get up .Is there anything out there ?
Id appreciate any comments

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@lioness. Dizziness upon arising may not be Meniere's, but rather a blood pressure problem. Do check with doctor. Otherwise, I have the same symptoms and to the best of my knowledge, there is still no cure.

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@trishanna

@lioness. Dizziness upon arising may not be Meniere's, but rather a blood pressure problem. Do check with doctor. Otherwise, I have the same symptoms and to the best of my knowledge, there is still no cure.

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@trishann Thanks for replying. I,ve had my blood pressure checked its always 130/72 .When I,m busy I don't notice it its when I,m still my ears aren't. There are so many diseases Dr,s just don't know about.

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@ginomayo

Does anyone have a success story to tell? I tried an injection of Genta Miacin into the ear. My 3rd injection is due in 2 weeks. No Meniere's attacks for 3 years. However, the medication causes loss of balance… Rehab to regain not working to well. Perhaps it is my age as others have succeed. (88)

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Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus – the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid – available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.

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@estrada53

Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus – the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid – available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.

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@estrada53 Thanks for this information I'm glad you are safe Haven't tried Lipo -flavonaid Will get some payday My problem now is the vertigo I have done the ear exercises but they haven't helped this so I don't know what to that think.

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