Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?
Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.
Hi @morninglory, thanks for starting this discussion specific to Meniere's Disease. I'm tagging @pedie @trishanna and @huoda to join the conversation.
MorningGlory, are you currently taking Betahistine? Is dizziness or vertigo the symptom you experience the most with Meniere's?
Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.
Jump to this post
Had not heard of Betahistine, but will be interested in any comments. From what I am able to learn on the internet, it does not seem to be very effective even though widely used.
Very interesting that you saw negative info about it as Dr. Kaylie experienced much success with Betahistine. I am most interested to hear from those that have used it.
Does anyone have a success story to tell? I tried an injection of Genta Miacin into the ear. My 3rd injection is due in 2 weeks. No Meniere's attacks for 3 years. However, the medication causes loss of balance… Rehab to regain not working to well. Perhaps it is my age as others have succeed. (88)
@ginomayo Since possible side effects of this antibiotic include vertigo and dizziness, have you discussed this with your doctor? For Meniere's disease, it's terribly important to be on a low-salt diet. Stay with the rehab – sometimes it just takes time.
Hi @ginomayo and welcome to Connect. You may have noticed I moved your post to this existing thread on Meniere's Disease so that you can hopefully learn from others who have this disease.
I wanted to thank @trishanna for posting a response and @morningglory may have some thoughts on this as well, or advice to offer.
Back to you @ginomayo I also wanted to ask if you have spoken to your doctor about your continued loss of balance?
Ive had meinieres since I was in my 30,s Dr at that time said there,s nothing can be done Im no76 and the ringing,humming hasnt gone away now Im haven't ng more vertigo ,have to hold o to things when I get up .Is there anything out there ?
Id appreciate any comments
@lioness. Dizziness upon arising may not be Meniere's, but rather a blood pressure problem. Do check with doctor. Otherwise, I have the same symptoms and to the best of my knowledge, there is still no cure.
@trishann Thanks for replying. I,ve had my blood pressure checked its always 130/72 .When I,m busy I don't notice it its when I,m still my ears aren't. There are so many diseases Dr,s just don't know about.
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In