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Comments (10,000+)

@heatherdexter59, your story is like so many HOCM'ers. Misdiagnosed for many years before finally getting it...

https://connect.mayoclinic.org/comment/909013/

and the Hypertrophic Cardiomyopathy groups ... can learn so much from the Camzyos group

Discussion: Trouble eating with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 7, 2023

@marymaryoregon There are other discussions within this Autoimmune group. I don’t know about groups on Facebook,...

https://connect.mayoclinic.org/comment/842242/

discussions within this Autoimmune group ... I don’t know about groups on Facebook ... I even found a Fb group for my disease ... re thinking about finding a support group

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 12, 2023

Hello @mayodoug, Welcome to Connect. I don't have chronic pain but do have some unrelenting numbness...

https://connect.mayoclinic.org/comment/834903/

wait for others to welcome you to group ... helpful: --- Chronic Pain Support Group ... : https://connect.mayoclinic.org/group ... /pain/ --- Neuropathy Support Group ... : https://connect.mayoclinic.org/group

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 31, 2023

Please check out resources for the Epstein Barr virus, It has been associated with Covid long...

https://connect.mayoclinic.org/comment/770175/

Two long hauler groups that have helped

Discussion: Almost dead from Long COVID! HELP!!!!!

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 7, 2022

To: Mentor John - I suppose I am also part of those who neurologists consider lucky,...

https://connect.mayoclinic.org/comment/736465/

the past year, I joined two support groups

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Aug 12, 2022

My doc for the depression and anxiety which is at an all time high is the...

https://connect.mayoclinic.org/comment/720119/

one that said I need to join this group ... , but I fit in quite a few groups.

Discussion: Several opinions-collapsed arch, jaw, bite. Osteoporosis Implants

Support Group: Osteoporosis & Bone Health

Posted: Jun 22, 2022

I could be wrong but I believe this thread is discussing apples and oranges. I am...

https://connect.mayoclinic.org/comment/695923/

of traumatic accidents are the two groups

Discussion: What might be causing electric feelings in my body?

Support Group: Brain & Nervous System

Posted: Apr 4, 2022

Hello @lassen, Welcome to Connect. I'm sorry to hear that your treatment with Solu Medrol (Methylprednisolone...

https://connect.mayoclinic.org/comment/652245/

To join a private Facebook group you ... their FB page and follow any rules the group ... are referring to the following FB group ... Neuropathy: -- https://www.facebook.com/groups ... 735210727192623 As with joining any private group

Discussion: TS-HDS Antibody and Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Nov 8, 2021

My husband has PMR. He was on Prednisone for about 18 months even though he was...

https://connect.mayoclinic.org/comment/327887/

because he isn’t in any of the age groups

Discussion: Is it safe to get the Corona Virus (COVID-19) vaccine with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2021

Hi @terridrag and welcome to Connect. I moved your message about c-difficille and combined it with...

https://connect.mayoclinic.org/comment/242211/

be interested in this discussion: > Groups ... > Digestive Health group > Trying to

Discussion: C. difficile – Are your guts ever normal again?

Support Group: Digestive Health

Posted: Feb 3, 2020

Hi @choover22, Welcome to Connect. There is another discussion where your post will receive more visibility....

https://connect.mayoclinic.org/comment/225319/

> Groups > Autoimmune Diseases

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Dec 17, 2019

Hi @dsteede, My mother had rheumatoid arthritis and it was easy to tell she was in...

https://connect.mayoclinic.org/comment/274887/

should move your post here: > Groups

Discussion: RA affecting feet

Support Group: Autoimmune Diseases

Posted: Sep 4, 2019

@samy,- Good morning Samy. Maybe a serious face-to-face conversation with your Oncologist would help. I know...

https://connect.mayoclinic.org/comment/219820/

this set of breast cancer discussion groups

Discussion: Aromatase Inhibitors: Did you decide to go on them or not?

Support Group: Breast Cancer

Posted: Apr 27, 2019

Hello @ibclng, welcome to Connect. There is another discussion on Connect where your post may receive...

https://connect.mayoclinic.org/comment/143881/

> Groups > Autoimmune Diseases > Erosive

Discussion: Erosive oral lichen planus

Support Group: Autoimmune Diseases

Posted: Mar 29, 2019

Hello @7510cahill and @elained, I would like to welcome you both to Mayo Clinic Connect and...

https://connect.mayoclinic.org/comment/156965/

Groups > Neuropathy > Living with Neuropathy ... - Welcome to the group -- https://connect.mayoclinic.org ... living-with-neuropathy-welcome-to-the-group

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 4, 2019

Hello @usmccam, I have been using a CPAP machine since last summer and have went through...

https://connect.mayoclinic.org/comment/207618/

Groups > Sleep Health > Cpap and sleep

Discussion: Paralyzed Diaphragm

Support Group: Lung Health

Posted: Jan 19, 2019

Hello @cartagena13, welcome to Mayo Clinic Connect. I'm sorry you are having to deal with so...

https://connect.mayoclinic.org/comment/170192/

It is a larger and more active group ... Groups > Digestive Health > Mesenteric