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461 total results

Comments (413)

I have a GP for BP and cold meds and see him every four months. I...

https://connect.mayoclinic.org/comment/82729/

see once a year for osteoarthritis, sarcoidosis ... staff.I have an eye dr who got my sarcoidosis

Discussion: Managing fibromyalgia

Support Group: Fibromyalgia

Posted: May 3, 2016

I just got visit notes from the Duke pulmonologist... "This is a 62 y.o. male who...

https://connect.mayoclinic.org/comment/899977/

(would be an atypical picture for sarcoidosis

Discussion: Monitoring a lung nodule - when to biopsy?

Support Group: Lung Health

Posted: Jul 21, 2023

I’ve had pulmonary sarcoidosis, MS and 3 others on and off since the 70.s, plus a...

https://connect.mayoclinic.org/comment/681198/

I’ve had pulmonary sarcoidosis, MS and

Discussion: Sarcoidosis Treatment: Tips for an effective path to better health

Support Group: Autoimmune Diseases

Posted: Feb 15, 2022

Hi Colleen. Thank you so much for the reply and reference. I have had many workups;...

https://connect.mayoclinic.org/comment/312151/

They were thinking that it might be sarcoidosis

Discussion: Liver Resection: Is surgery the only option?

Support Group: Digestive Health

Posted: May 30, 2020

Hi, thank you for your reply. I am just learning about this kidney thing and my...

https://connect.mayoclinic.org/comment/137202/

GERD, chronic bronchitis and I had sarcoidosis

Discussion: Possible low kidney function

Support Group: Kidney & Bladder

Posted: Feb 12, 2017

I have sarcoidosis and have suffered from around-the-clock hot flashes, night sweats, episodes of freezing, lack...

https://connect.mayoclinic.org/comment/1191078/

I have sarcoidosis and have suffered

Discussion: Can’t regulate body temperature.

Support Group: Autoimmune Diseases

Posted: Dec 15, 2024

Hi Bitsy Girl. First, I am sorry about your husband's situation. It is definitely hard to...

https://connect.mayoclinic.org/comment/1046139/

(IE: sarcoidosis, vascular spasm, bicuspid

Discussion: Besides managing BP, what else can slow the growth rate?

Support Group: Aortic Aneurysms

Posted: Apr 6, 2024

I have Autoimmune Inner Ear Disease. My otolaryngologist is pretty much at a loss with me....

https://connect.mayoclinic.org/comment/80536/

already taking both for pulmonary sarcoidosis

Discussion: Extreme outer ear pain: What can it be?

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 18, 2019

I am sorry you have sarcoid. My husband has it and was diagnosed in 2001 when...

https://connect.mayoclinic.org/comment/931722/

I had never heard of sarcoidosis till

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Sep 18, 2023

I just found you all during a google search. I have been sick for 4 years...

https://connect.mayoclinic.org/comment/217859/

They did find that I had pulmonary sarcoidosis

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Nov 28, 2020

Good morning, @lcarrswan. You’ve already been on quite a ride with your AML. Having been there...

https://connect.mayoclinic.org/comment/1274725/

~Since sarcoidosis is an autoimmune ... for your AML it may also cure your sarcoidosis

Discussion: Would like to know the risks of BMT verses chemo.

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 5 9:44am

I have Pulmonary Sarcoidosis, was diagnosed in 2015. Since then I have painful headaches and it...

https://connect.mayoclinic.org/comment/130833/

I have Pulmonary Sarcoidosis, was diagnosed

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Apr 29, 2018

Hi. I was diagnosed with GFAP astrocytopathy in June 2024 after a month of worsening viral...

https://connect.mayoclinic.org/comment/1365505/

GFAP astrocytopathy with a ddx of Sarcoidosis

Discussion: Relapse after GFAP

Support Group: Autoimmune Diseases

Posted: Aug 7 8:25am

Here's a thought: as teachers and nurses and other helping professionals, we all tend to be...

https://connect.mayoclinic.org/comment/62094/

My husband with sarcoidosis brings up

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jun 26, 2017

@sue225, @ashby1947, and all...Interesting, I forgot to mention in previous messages that I find the best,...

https://connect.mayoclinic.org/comment/901347/

one visit as she saw some signs of Sarcoidosis

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Jul 24, 2023

Hi @patc55, Welcome to Mayo Clinic Connect. I have SFPN which started in the toes in...

https://connect.mayoclinic.org/comment/321697/

include lupus, rheumatoid arthritis, sarcoidosis

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Mar 4, 2021

@bboxer Just wanted to let you know, as others have too, that you aren't alone. I...

https://connect.mayoclinic.org/comment/130827/

I was diagnosed with sarcoidosis about

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Aug 26, 2017

Hi, I have a very close friend of 30 some odd years who is waiting for...

https://connect.mayoclinic.org/comment/182769/

waiting for a liver transplant and has sarcoidosis

Discussion: Are there any other pre-liver transplant caregivers out there?

Support Group: Transplants

Posted: Jul 25, 2018

Hello thanks for responding even though yours is osa. I’m glad you’re doing well with ur...

https://connect.mayoclinic.org/comment/814725/

Also sarcoidosis in my lungs but not

Discussion: Diagnosed with Central Sleep Apnea (CSA)? How's therapy going?

Support Group: Sleep Health

Posted: Feb 20, 2023

Hi. I have symptoms of numbness, loss of sensation, and tingling on the left side of...

https://connect.mayoclinic.org/comment/792984/

Pulmonary sarcoidosis, MAC, might be

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Jan 6, 2023