Sarcoidosis – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

414 total results

Comments (370)

Hi @rosegirl1 I have had a benign hematuria since I was a young girl. I am...

https://connect.mayoclinic.org/comment/235354/

I have been diagnosed with sarcoidosis

Discussion: Have hematuria. Trying to find cause.

Support Group: Kidney & Bladder

Posted: Jan 4, 2019

Hi Kevin. I live in Tucson so I was traveling back and forth to Phoenix so...

https://connect.mayoclinic.org/comment/271993/

heart/lung transplant because I had sarcoidosis

Discussion: What can I Expect for my Lung Transplant Review?

Support Group: Transplants

Posted: Aug 12, 2019

I think you can Jodi, but you need a physician's documentation. It is a process requiring...

https://connect.mayoclinic.org/comment/130816/

My husband has sarcoidosis in his lungs

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jul 23, 2017

Your symptoms and labs are certainly consistent with an autoimmune disease. Inflammatory markers and an ANA...

https://connect.mayoclinic.org/comment/1003112/

A blood test for sarcoidosis might be

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jan 24 3:56pm

Myocarditis can be caused by an autoimmune disease which are difficult to diagnose. I was finally...

https://connect.mayoclinic.org/comment/201270/

I was finally diagnosed with sarcoidosis

Discussion: Pulmonary Hypertension

Support Group: Heart & Blood Health

Posted: Jun 18, 2018

@nana4 Hi Dee - I had hoped someone else might answer, because I really couldn't remember...

https://connect.mayoclinic.org/comment/784861/

why he concluded why you do not have sarcoidosis

Discussion: Lymphocytes

Support Group: MAC & Bronchiectasis

Posted: Dec 14, 2022

@twocatmama I had quite a time to convince the company that approved all procedures for my...

https://connect.mayoclinic.org/comment/260740/

Because my heart failure was due to sarcoidosis

Discussion: Post Transplant Symptoms

Support Group: Transplants

Posted: Jun 29, 2019

@mamasitalucita I appreciate your honest and inspiring post so much. I have had so many autoimmune...

https://connect.mayoclinic.org/comment/97105/

treatment for lung diseases(sarcoidosis-prednisone

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 5, 2018

@51trudelator and all...Yes, my friend, thankfully I have lost that 35 pounds several times. I regain...

https://connect.mayoclinic.org/comment/845378/

each time I'm taking steroids for Sarcoidosis

Discussion: Double Vision and Autoimmune Diseases like MG: Can anyone relate?

Support Group: Autoimmune Diseases

Posted: Apr 18, 2023

Thanks for your comment! Like I said so far I have blood labs schedule the first...

https://connect.mayoclinic.org/comment/876114/

nephrologist recently diagnosed me with sarcoidosis

Discussion: Repeat Kidney biopsy at clinic visit?

Support Group: Kidney & Bladder

Posted: Jun 10, 2023

One other thing - has anyone been told that the fever and effects of MAC was...

https://connect.mayoclinic.org/comment/187736/

yet he refuses to read about MAC, Sarcoidosis

Discussion: Long-term Antibiotics for Bronchiectasis & MAC

Support Group: MAC & Bronchiectasis

Posted: Mar 5, 2018

I have a GP for BP and cold meds and see him every four months. I...

https://connect.mayoclinic.org/comment/82729/

see once a year for osteoarthritis, sarcoidosis ... staff.I have an eye dr who got my sarcoidosis

Discussion: Managing fibromyalgia

Support Group: Fibromyalgia

Posted: May 3, 2016

Many causes must be investigated. Cannot post link Here are some in ncib article Structural heart...

https://connect.mayoclinic.org/comment/1165435/

Infiltrative conditions: sarcoidosis

Discussion: Left Bundle Branch Block (LBBB) life expectancy?

Support Group: Heart Rhythm Conditions

Posted: Oct 30 5:28pm

I’ve had pulmonary sarcoidosis, MS and 3 others on and off since the 70.s, plus a...

https://connect.mayoclinic.org/comment/681198/

I’ve had pulmonary sarcoidosis, MS and

Discussion: Sarcoidosis Treatment: Tips for an effective path to better health

Support Group: Autoimmune Diseases

Posted: Feb 15, 2022

I just got visit notes from the Duke pulmonologist... "This is a 62 y.o. male who...

https://connect.mayoclinic.org/comment/899977/

(would be an atypical picture for sarcoidosis

Discussion: Monitoring a lung nodule - when to biopsy?

Support Group: Lung Health

Posted: Jul 21, 2023

Hi Colleen. Thank you so much for the reply and reference. I have had many workups;...

https://connect.mayoclinic.org/comment/312151/

They were thinking that it might be sarcoidosis

Discussion: Liver Resection: Is surgery the only option?

Support Group: Digestive Health

Posted: May 30, 2020

Hi, thank you for your reply. I am just learning about this kidney thing and my...

https://connect.mayoclinic.org/comment/137202/

GERD, chronic bronchitis and I had sarcoidosis

Discussion: Possible low kidney function

Support Group: Kidney & Bladder

Posted: Feb 12, 2017

I am sorry you have sarcoid. My husband has it and was diagnosed in 2001 when...

https://connect.mayoclinic.org/comment/931722/

I had never heard of sarcoidosis till

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Sep 18, 2023

I have Autoimmune Inner Ear Disease. My otolaryngologist is pretty much at a loss with me....

https://connect.mayoclinic.org/comment/80536/

already taking both for pulmonary sarcoidosis

Discussion: Extreme outer ear pain: What can it be?

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 18, 2019

Hi Bitsy Girl. First, I am sorry about your husband's situation. It is definitely hard to...

https://connect.mayoclinic.org/comment/1046139/

(IE: sarcoidosis, vascular spasm, bicuspid

Discussion: Besides managing BP, what else can slow the growth rate?

Support Group: Aortic Aneurysms

Posted: Apr 6 7:28am