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4,144 total results
Comments (3,929)
Hi, I have DADS-M a sensory motor neuropathy. I can no longer sense temperature very well....
Hi, I have DADS-M a sensory motor neuropathy ... This is what helps me: Keeping house ... my bed that wick away moisture and help ... It helps with balance immensely. ... Hope this helps
Support Group: Neuropathy
Posted: Oct 14, 2023
Oh, this neuropathy and what it does to us. I am so grateful for Connect because...
Oh, this neuropathy and what it does ... many of you feel like you developed neuropathy ... Has anyone seen a helpful neurologist ... appreciated and the support on Connect is what
Support Group: Neuropathy
Posted: Oct 14, 2023
Yes, it is common to cut back on the Oxaliplatin... maybe first to 75%, or even...
Sometimes just skipping a cycle can really help ... If switching chemo regimens... what ... Any neuropathy... or cold sensitivity
Support Group: Esophageal Cancer
Posted: Dec 27, 2023
Hello @cwallen9. I'm sorry to hear of your terrible pain. It's awful when pain increases and...
I've even thought about what I ate ... that could have intensified pain or what ... Journaling can be a great help to try ... Neuropathy and it's progression ... Stay true to what your body tells you
Support Group: Neuropathy
Posted: Mar 27, 2020
Good evening @murs. Welcome. I see you have received some helpful responses about your numb feet....
I see you have received some helpful ... I will briefly explain what has worked ... the severity of my SFN (small fiber neuropathy
Welcome to Connect,@j2c There are a number of other members in the MGUS support group who...
others sharing their experiences of what ... they’re going through and what may ... I hope you find some helpful information ... Does anyone have neuropathy related ... connect.mayoclinic.org/discussion/mgus-neuropathy
Posted: Jan 3 9:05am
Hi @numby25, I see that you are a fairly new member to Connect and I would...
some sound advice which I think might help ... site, it also has a lot of helpful ... information on living well with neuropathy ... Have you been diagnosed with neuropathy ... What symptoms do you have?
Hi! I have had neuropathy for 13 years. I had oral cancer, surgery but it came...
I have had neuropathy for 13 years. ... During this treatment period my neuropathy ... It helps but I am so foggy brained now ... Does anyone have a suggestion on what ... I might do to improve my neuropathy
Support Group: Neuropathy
Posted: Nov 9, 2023
Hello @weezie4u2 and @llevy0081, I would like to welcome you both to Connect. It sounds like...
both looking for answers for your neuropathy ... success along with things that have helped ... You may find it helpful to look through ... see if any of them sounds similar to what ... ;t anything they could offer me to help
Support Group: Neuropathy
Posted: Aug 16, 2023
I’m glad you generally got the bulk of what you were looking from at your appointment...
glad you generally got the bulk of what ... cure 😊) I pretty much have what ... a doc will say “poly” in front of Neuropathy ... or if they come to your home, can help ... x1f604;; and finally 5) They teach/help
Support Group: Neuropathy
Posted: Aug 10, 2023
I know how scared you are feeling. I now have neuropathy in both feet and it...
I now have neuropathy in both feet and ... have found my meditation practice has helped ... mind and the ridiculous wanderings of what ... If I can help you in any way please
Support Group: Neuropathy
Posted: Aug 10, 2023
Hi @jobli0, I agree with @julbpat that small fiber neuropathy can affect you bodily functions and...
agree with @julbpat that small fiber neuropathy ... as you can about the condition can help ... Here are a few that might be helpful ... : --- What is the peripheral nervous ... www.foundationforpn.org/understanding-peripheral-neuropathy
Support Group: Neuropathy
Posted: Aug 14, 2023
Hi! Happy to hear you have found your way to Mayo. I had an open Whipple...
street from St Mary’s while my family helped ... What regimen of chemo are you on? ... I would eat what I could in very small ... residual symptom is severe chemo induced neuropathy
Support Group: Pancreatic Cancer
Posted: Apr 3, 2023
I am taking one Horizant 600 at night. I order it from St. Louis with an...
It's helping. ... diagnosed in 2018 with Axonal Sensory Neuropathy ... There isn't any cure for what I
Support Group: Neuropathy
Posted: Jul 21, 2023
No chest pain but weight bearing balance problems that have made everything difficult. Waiting on biopsis...
Waiting on biopsis for short fiber neuropathy ... diseases that Low dose Naltrexone helps ... Stops what I call "non moving pain
Support Group: Autoimmune Diseases
Posted: Jul 14, 2023
Welcome @lisaklisa, Thanks for sharing what helps you. I definitely agree that the Winter months can...
Welcome @lisaklisa, Thanks for sharing what ... helps you. ... long have you been diagnosed with neuropathy
Support Group: Neuropathy
Posted: Jul 21, 2023
Hello @lorie99, Welcome to Connect. It seems to be yet another "nerves" pill to get your...
a few of the ones listed that may help ... on the Foundation for Peripheral Neuropathy ... So how does it help if that is not what ... is causing your neuropathy pain? ... You might find these sites helpful to
Support Group: Neuropathy
Posted: Jul 23, 2023
Chris, When I get frustrated with the so many unknowns of PN, I’m encouraged by this...
from others to draw from, so you’ve helped ... of patience with us going through what ... grieving, accepting, and living with Neuropathy ... exercise, meditation, staying active, and helping ... re alone or around people afraid to help
Support Group: Neuropathy
Posted: Jul 22, 2023