Anyone have experience with Baclofen for back and neuropathy pain?

Posted by cwallen9 @cwallen9, Mar 26 9:01am

My doctor put me on Baclofen to treat severe muscle tightness in my back. I have been on 5mg twice a day for about four days now, and my back and neuropathy pain seem to be getting worse, not better. I have severe neck and upper back pain and neuropathy pain in my feet, legs, hands, and arms. Has anyone had success or worse symptoms?

Hello @cwallen — Have you told your doctor about the back pain and neuropathy pain getting worse since starting Baclofen? I did find an article on the National Institutes of Health from 2017 that mentions it can also make back pain worse even though it's prescribed to reduce the pain.

Baclofen and Back Pain: A Paradoxical Phenomena — https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5461866/

Liked by Lisa Lucier

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I just sent an E-mail today to my doctor today. I think I saw the article you mentioned. That is what started the thought that maybe the Baclofen was the cause. I always hate telling a doctor that the medicine may be making it worse. I think the doctors want the patients to stay on the medicine as long as possible to make sure it isn't helping. However, it is hard when you are already in unbearable pain. Thanks for the input.

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@cwallen9

I just sent an E-mail today to my doctor today. I think I saw the article you mentioned. That is what started the thought that maybe the Baclofen was the cause. I always hate telling a doctor that the medicine may be making it worse. I think the doctors want the patients to stay on the medicine as long as possible to make sure it isn't helping. However, it is hard when you are already in unbearable pain. Thanks for the input.

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Hi, @cwallen9 – I imagine it's rather confusing that your pain would potentially be increasing, not decreasing, from your back and neuropathy pain when the baclofen was added. Experiencing unbearable pain would be horrible. Sending a note to your doctor makes sense.

I'd like to invite @pjfrahm @judyannmac @zenk @wsh66 into this conversation, as they have mentioned baclofen and can let you know if they have had success or worsening of symptoms with it. @rwinney also may have some input on this.

cwallen9, have you been able to isolate any other factors that could be contributing to your pain increasing just lately?

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Hello @cwallen9. I'm sorry to hear of your terrible pain. It's awful when pain increases and you grasp at straws to figure out why. Could the pain be gaining momentum on it's own, naturally, or could there be a cause such as a new medication? I've had these same thoughts swirl through my head many times. I've even thought about what I ate that could have intensified pain or what physical movements I may have made. We can really do a number on ourselves. Journaling can be a great help to try and track or rule out possibilities in the future. I think notifying your Dr immediately with your new symptoms and describe your increasing pain is the first thing to do. I am guilty as charged for not always doing that and trying to not be a whiner or cry baby over every little change. Now, looking back, I should have communicated quicker and more explicit to my Drs. Neuropathy and it's progression is a very confusing path to navigate. Stay true to what your body tells you is wrong and don't just take it. Best of luck and please keep us updated on how you make out.
Rachel

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