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468 total results
Comments (398)
Hello @lillone43 and @heidisue, Welcome to Connect. As John mentioned, we are so glad you've reached...
https://connect.mayoclinic.org/comment/170404/
Connect members who have discussed Ehlers-Danlos ... newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-ehlers-danlos-syndrome
My first spine surgery, which included rods for L3 and L4 lasted 20years. But just this...
https://connect.mayoclinic.org/comment/1065645/
, I was diagnosed with hypermobile Ehlers
Good morning, Thank you so much for all of the information. So many similar symptoms for...
https://connect.mayoclinic.org/comment/1072119/
It doesn't sound like Ehlers to
@csalter @dianeg44 There is a great resource offered through the Ehlers-Danlos Society to help find EDS...
https://connect.mayoclinic.org/comment/687566/
great resource offered through the Ehlers-Danlos ... Professionals Directory” here: https://www.ehlers-danlos.com
Thank you soooo much for your reply. My c1 also pulls to the left, and all...
https://connect.mayoclinic.org/comment/1053890/
which more than likely is Hypermobile Ehlers
I saw two Rheumatologist Spring-Fall last yr. He was convinced with constant exercise and a proper...
https://connect.mayoclinic.org/comment/50059/
One of my best friends has Ehlers-Danlos
Hi @emo, you certainly have been on a journey of circular conversations, broken communication, and no...
https://connect.mayoclinic.org/comment/1082619/
Ehlers-Danlos syndrome care at Mayo ... www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome ... care-at-mayo-clinic/mac-20362179)
· Ehlers-Danlos ... There are many different types of Ehlers-Danlos ... Professionals Directory https://www.ehlers-danlos.com
@rjmtwit...I have a family member that has the same jaw issue. I read articles of them...
https://connect.mayoclinic.org/comment/797070/
there is an article on 12/12/2022 ehlers-danlos-syndrome-patients-turned-researchers ... Now, as scientists, they’re tackling Ehlers-Danlos
Might try to find a geneticists. I have Ehlers Danlos. Had strange things happen to me...
https://connect.mayoclinic.org/comment/716248/
I have Ehlers Danlos.
Yes, I totally understand the desire to get back to some normality. I haven't seen my...
https://connect.mayoclinic.org/comment/603789/
That on top of Ehlers Danlos Syndrome
Hello John, I have Ehlers Danlos Syndrome and also have been waiting for months to see...
https://connect.mayoclinic.org/comment/903215/
Hello John, I have Ehlers Danlos Syndrome
I looked that up, I had never heard of it and it is many categories, some...
https://connect.mayoclinic.org/comment/57318/
I forgot to add the ehlers-danlos hyper
Darlindawn, you have shared your history with the right group. This forum has sensitive, intelligent, believing...
https://connect.mayoclinic.org/comment/1082232/
health history is complicated…with Ehlers
I have peripheral neuropathy due to Arachnoiditis. Had a stim put in 2 years ago and...
https://connect.mayoclinic.org/comment/839793/
I also have Ehlers Danlos and found
WHAT IS ARE RARE DISEASES? Ehlers Danlos Syndrome, Charcot-Marie-Tooth disease, Congenital muscular dystrophy, CRPS, and so...
https://connect.mayoclinic.org/comment/335017/
Ehlers Danlos Syndrome, Charcot-Marie-Tooth
Hi @samigrace08 I also was diagnosed with Bicuspid aortic valve and have had arthritis in a...
https://connect.mayoclinic.org/comment/235174/
I have never been checked for Ehlers
@jmmb !!!!!! OH MY!!!! a lot has transpired since we last talked. I was diagnosed with...
https://connect.mayoclinic.org/comment/131704/
MALS, Dysautonomia is also related to Ehlers-Danlos
I have been doing that and even reading research papers on the subject. It seems that...
https://connect.mayoclinic.org/comment/981122/
to align with what I've seen on Ehlers-Danlos
I was diagnosed with Mycosis Fungoides maybe 10 years ago and have never gone past Stage...
https://connect.mayoclinic.org/comment/989475/
Covid, and a few other illnesses like Ehlers-Danlos
I agree with p.t. in warm water ! I also recently started on cbd oil gummies....
https://connect.mayoclinic.org/comment/716098/
connective tissue disorder called Ehlers
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