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632 total results
Comments (542)
Hi, @cherrylistic. Welcome to Mayo Clinic Connect. Sounds like you've been through a lot with your...
https://connect.mayoclinic.org/comment/77433/
hashimotos-thyroiditis-and-ivig-treatment
- Ehlers ... connect.mayoclinic.org/discussion/possible-ehlers-danlos-syndrome-with-craniocervical-instability
@tjfrees 10/19/2025 I had the conditions and symptoms of possibly Marfan Syndrome. I contacted the Marfan...
https://connect.mayoclinic.org/comment/1418919/
the COL1A2 gene is correlated with Ehlers-Danlos ... preferably a geneticist to receive a Ehlers-Danlos ... Hypermobility Ehlers-Danlos Syndrome ... Thank for your response to my Ehlers-Danlos
He died in 1988. The fibro isn't an issue, its all the other things like ms,...
https://connect.mayoclinic.org/comment/704274/
yearly with the cancer dr., sjogrens, ehlers-danlos
I have delta granular storage deficiency (DGSD) which I think is the same as HHT. I...
https://connect.mayoclinic.org/comment/976783/
my small intestines but also have Ehlers
I tried to make an appointment, was on the wait list then they took me off...
https://connect.mayoclinic.org/comment/875746/
where I live they no nothing about ehlers-danlos
You won’t know for sure with the physical therapy unless you try. I am a personal...
https://connect.mayoclinic.org/comment/902940/
I have Ehlers Danlos Syndrome.
@joannemm30809 i just saw this article in the Mayo Clinic blog section. I thought of you...
https://connect.mayoclinic.org/comment/654109/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
I agree with those who suggested an anti-inflammatory diet and working toward a heathy gut microbiome....
https://connect.mayoclinic.org/comment/1280453/
syndrome (not enough symptoms for Ehlers
I've had CiP for a decade or more, and it seems very related to intracranial hypertension...
https://connect.mayoclinic.org/comment/851558/
I also have Ehlers Danlos, aka EDS,
Hi @mikaylar, While we wait for members to join and share their experience with CSF leaks...
https://connect.mayoclinic.org/comment/885953/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
I don't believe the lumps on my forehead are hematomas. For one thing they are rock...
https://connect.mayoclinic.org/comment/594745/
gastrointerologist would even consider a subtype of Ehlers
I have posted many times on this site. A shortened personal history. 21 years with ET...
https://connect.mayoclinic.org/comment/1099796/
ET is more prevalent in people with Ehlers-Danlos
@andee0403 Some of my family & I did genetic testing because our maternal GF died from...
https://connect.mayoclinic.org/comment/1400796/
testing done & was diagnosed with Ehlers-Danlos
Thanks @kjh2017 for sharing more of your experience. It can be so confusing and frustrating to...
https://connect.mayoclinic.org/comment/80956/
- Chronic Erythema Nodosum & Ehlers-Danlos
I've had both hips and both knees replaced, because of the effects of Ehlers-Danlos Syndrome, and...
https://connect.mayoclinic.org/comment/645433/
replaced, because of the effects of Ehlers-Danlos
Has anyone been to the Jacksonville hospital for autonomic testing for Postural Orthostatic Tachycardia Syndrome? And...
https://connect.mayoclinic.org/comment/275511/
I also suspect hyper-mobility/Ehlers-Danlos
Hi @jes078, I was diagnosed with a pituitary adenoma, and I also get headaches a lot....
https://connect.mayoclinic.org/comment/77383/
curious if you have been checked for Ehlers-Danlos
@hunterhadley03 What types of specialists are you working with now? I would not worry too much...
https://connect.mayoclinic.org/comment/1328411/
and hypermobility (may be a type of Ehlers
Im an Orthopedic RN and I too havr a screwed up spine due to Ehlers Danlose...
https://connect.mayoclinic.org/comment/1454301/
too havr a screwed up spine due to Ehlers
I had anal prolapse surgery. They found a kink in the bowel and took out a...
https://connect.mayoclinic.org/comment/841093/
I have Ehlers Danlos so having tissue
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