About Connect: Who, What & Why

Mayo Clinic Connect is an online community that connects people. In the About Connect page, find out more about members, mentors and the community. Meet the team of Mayo Clinic moderators and how the community is managed.  Review the community guidelines and learn how you can get the most from your Connect experience.

Twice a month, a member of your Connect community is featured in the Member Spotlights. Follow the About Connect page to get updates about members and the community.

PUBLIC PAGE
Fri, Jul 26 9:00am

Transforming stigma to acceptance: Meet @jakedduck1

By John, Volunteer Mentor, @johnbishop

Member Spotlights feature interviews with fellow Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

2019.7.19. @jakedduck1 Leonard Connect member spotlight image

JOHN: What brought you to Connect? What motivates you to take part in the community?

@jakedduck1: I’ve always known about Mayo Clinic, but a few years back I was going to have shoulder replacement surgery in New York City, and the doctor wanted me to go to Mayo for a neurological evaluation for seizures. Ultimately, the doctor felt I was high-risk and refused to operate. So, I never went to Mayo, but I saw Connect when looking up Mayo Clinic. Later, I was looking for something about epilepsy and noticed an epilepsy question. So I joined and gave my 2 cents worth of advice. 

JOHN: What about Connect makes you feel comfortable to share, to be open with the community?

@jakedduck1: The acceptance by other members on Connect is very important and is what makes me feel most comfortable. In the ‘60s when I developed epilepsy, there were no support groups or forums available. I didn’t know anyone who had epilepsy. The stigma was bad then, and people didn’t talk so openly about it. When you see how open others are now about their illnesses and problems, I believe it makes everyone more at ease and feel better about sharing, knowing people want to help. I feel motivated to try and help if I can, and by me being open, I hope it helps others to see there is no shame or reason to be embarrassed. My main goal here is to help get rid of the stigma, shame, embarrassment, rejection and fears associated with epilepsy, but other illnesses, as well, and try to help people to be all that they can be. 

JOHN: What groups do you participate in?

@jakedduck1:

About Kids & Teens
Autoimmune Diseases
Bones, Joints & Muscles
Brain & Nervous System
Brain Tumor
Caregivers
Depression & Anxiety
Ear, Nose & Throat (ENT)
Epilepsy & Seizures
Healthy Living
Men’s Health

I also follow the About Connect: Who, What & Why, Blood Donor Program and Mayo Clinic Champions pages on Connect.

JOHN: Who has been a special connection for you on Connect?

@jakedduck1: The Epilepsy & Seizures group and all the members there having had epilepsy for 52 years I can relate to many of their problems. 

@brightwings sent me a private message early on and welcomed me. @becsbuddy has been a rock to me in the Caregivers group. However, I don’t mean to diminish anyone’s contribution. I’m eternally grateful for everything everyone has said. You “kids” have truly kept me going. 

I enjoy communicating with @lioness  — we can tease each other — and @imallears, one of my cooking coaches. Although she has excellent suggestions, I’m afraid I’m a lost cause in the kitchen and as a domestic engineer. I like what Phyllis Diller said, “Housework won’t kill you, but why take the chance?”  

I agree. Better safe than sorry, and I’m very safe!

JOHN: What surprised you the most about Connect?

@jakedduck1: The kindness and helpfulness of Connect director Colleen Young. I like that she is such an active participant, and the fact that she and the team are open to suggestions from members on ways that may improve Connect even more. I had a few rough spots; she helped guide me through. I thought she might kick me off Connect, but instead she supported me, giving welcome guidance. 

JOHN: What energizes you, or how do you find balance in your life?

@jakedduck1: Most important would be my faith. Also, I believe it’s necessary to give of yourself to family, friends and the community. I volunteered at the YMCA, at the county hospital in billing, did crime analysis at the police department, and worked in a homeless shelter and other places. 

Although difficult at times, it makes me feel good caring for my mother and being able to give a little back, except when I have to go through the drudgery of cooking or being in the kitchen for whatever reason. I helped care for my Dad, who was paralyzed, until he passed away in 1987. My parents were awesome and gave up so much taking care of me. I donate platelets at the Red Cross every two weeks, and most of mine go to cancer patients.

JOHN: Tell us about your favorite pastime or activity.

@jakedduck1: Travel in the U.S. I love Mt. Shasta. It’s my favorite mountain. I sit and admire it for hours. I want to visit the East Coast, starting in New England. I usually stay close to home, as California has so much to see and do, and the ocean, mountains and desert are relatively close. I’m not much of a gambler, but I enjoy Las Vegas, about seven hours away. I love zoos. Visiting the San Diego Zoo is on my to-do list.

JOHN: Do you have a favorite quote, life motto or personal mantra?

@jakedduck1: There are so many, it’s impossible to choose, except for the first one:

“Do unto others as you would have them do unto you.”
“The only person we need to be better than is the person we were yesterday.”
“We need to make someone happy today, and we need to start with ourselves.”

JOHN: What do you appreciate the most in your friends?

@jakedduck1: Most of them are gone now, but unquestionably that they feed me, which comes in handy since I find my kitchen so abhorrent. They are honest, loyal, kind and overly generous. They always include me in their family functions. They come to my rescue whenever I need them.

JOHN: What food can you simply not resist?

@jakedduck1: Candy, although Reese’s is a favorite. I seldom have them anymore, since eating one full of almond moth larvae (check bottom before eating). See’s candies are my favorite, especially See’s Bordeaux.

See more Member Spotlights.

@contentandwell

Great profile, @jakedduck1 So nice to know you a little better.

It seems as if chocolate is a downfall for many of us. Ever heard of Burdick’s? It started in NH and one year was named the best chocolates in the country by Consumer Reports. They really are wonderful, served in many 5 star restaurants, with shops now in NYC and Boston. Harbor Sweets in MA is very good too, but not as special as Burdicks.

It sounds as if you’ve done a lot of “giving back”. Your caring nature does shine through. If you lived closer I would definitely be having you over for dinner. I bet if you could get over your abhorrence of the kitchen, that you would actually be able to cook!
JK

Jump to this post

@contentandwell
I was able to cook and bake at one time and actually enjoyed it. Especially making candy. I doubt a doctor will agree but I think being in comas played a roll since my memory was always affected. I use to throw junk together with little thought and dinner was served. It’s difficult now even if I have all the ingredients. Cooking use to be like adding two and two, now it’s like trying to figure out a complicated equation if that makes sense.
Jake

COMMENT
@jakedduck1

@contentandwell
I was able to cook and bake at one time and actually enjoyed it. Especially making candy. I doubt a doctor will agree but I think being in comas played a roll since my memory was always affected. I use to throw junk together with little thought and dinner was served. It’s difficult now even if I have all the ingredients. Cooking use to be like adding two and two, now it’s like trying to figure out a complicated equation if that makes sense.
Jake

Jump to this post

@jakedduck1 it does make sense. I used to be a math whiz, was a math major in college, but now math exhausts me! Similar.
JK

COMMENT
@jakedduck1

@sandyj
What is your favorite See’s candy.
Jake

Jump to this post

@jakedduck1, Congratulations on your "spotlight." It makes getting to know you so much easier. And I fell right in line with your repugnance for the kitchen topped off with Bordeaux as your favorite See's candy. My daughter only gets Bordeaux for me and then I have to make it last. And I fell out of love with the kitchen when I baked the turkey with the giblets in a bag in the neck cavity after complaining that my turkey didn't come with them.

Your journey is impressive, to say the least, and your self-advocacy a role model for all patients. Be safe and protected this evening. Chris

COMMENT
@artscaping

@jakedduck1, Congratulations on your "spotlight." It makes getting to know you so much easier. And I fell right in line with your repugnance for the kitchen topped off with Bordeaux as your favorite See's candy. My daughter only gets Bordeaux for me and then I have to make it last. And I fell out of love with the kitchen when I baked the turkey with the giblets in a bag in the neck cavity after complaining that my turkey didn't come with them.

Your journey is impressive, to say the least, and your self-advocacy a role model for all patients. Be safe and protected this evening. Chris

Jump to this post

@artscaping
Hi Chris,
If you have a secret how to make Bordeaux or any candy last I’d love to hear it. My Mom can eat one piece a day. Back in the day I would go visit my Grandparents in Mt. Shasta and I would take a pound of See’s for her and a pound for me. We’d lay on her bed and talk and eat it till it was gone looking out at the mountain. Wonderful times.
Jake

COMMENT
@jakedduck1

@johnbishop
Hi John,
Not sure if you thought up the title or not but I like it. That’s my purpose, to help rid the world of stigmas. I hope I can get a few people to be a little kinder and a bit more strict understanding. No medical condition should have a stigma but sadly many still do. I dream of the day when they will be a thing of the past. My first and most hurtful stigma experience happened 48 years ago and unfortunately it’s as clear today as it was then. I have forgotten so much, why must I remember that?
@hopeful33250
I’ve already checked out Prudy’s and will be ordering some, our little secret.
My username, I use to mow a friends lawn and every week there would be a duck beanie baby on the patio. The ducks name is Jake. I was going for
Jaketheduck but that wasn’t available so jakedduck. Yes I love 🦆 duckies, to watch and feed. My brother said we each had a duck but I don’t remember those days. I love dogs and cats but would love to have a duck.
@Erinmfs
Thanks for your kind words.
@lioness
So, what’s on the New Year’s Day menu Linda, besides sauerkraut and sausage(?) I forgot what kind of meat.
@johnbishop
Be sure to check your candy. Almond moth larvae is awful.
Jake

Jump to this post

@jakedduck1 No sausage but pork butt.sauerkraut and mashed potatoes with Peach Pie

COMMENT
@lioness

@jakedduck1 No sausage but pork butt.sauerkraut and mashed potatoes with Peach Pie

Jump to this post

Oh yeah pork, now I remember. My friend made me a pork roast recently and I had some sauerkraut with it. Good eats!!!
Jake

COMMENT
@jakedduck1

@johnbishop
Hi John,
Not sure if you thought up the title or not but I like it. That’s my purpose, to help rid the world of stigmas. I hope I can get a few people to be a little kinder and a bit more strict understanding. No medical condition should have a stigma but sadly many still do. I dream of the day when they will be a thing of the past. My first and most hurtful stigma experience happened 48 years ago and unfortunately it’s as clear today as it was then. I have forgotten so much, why must I remember that?
@hopeful33250
I’ve already checked out Prudy’s and will be ordering some, our little secret.
My username, I use to mow a friends lawn and every week there would be a duck beanie baby on the patio. The ducks name is Jake. I was going for
Jaketheduck but that wasn’t available so jakedduck. Yes I love 🦆 duckies, to watch and feed. My brother said we each had a duck but I don’t remember those days. I love dogs and cats but would love to have a duck.
@Erinmfs
Thanks for your kind words.
@lioness
So, what’s on the New Year’s Day menu Linda, besides sauerkraut and sausage(?) I forgot what kind of meat.
@johnbishop
Be sure to check your candy. Almond moth larvae is awful.
Jake

Jump to this post

@jakedduck1– Loved your honesty & transparency in the Spotlight! I have always felt that really comes through in your posts and these questions really brought that home to me even more. You are a really fine man Leonard. I'm glad we got the "jakedduck figured out"! My youngest daughter has a beanie baby collection here at the house so I will have to check and see if that is part of hers.
I love Mt. Shasta as well and the reservoir being full again makes it look even better especially with Shasta's reflection!
Thank you for sharing with all of us! We are better and stronger because you are part of our group! Jim@thankful.

COMMENT

Glad to see you up close and personal as The Spotlight! I certainly have benefited from your posts to "Tips on minimising withdrawal symptoms from Effexor (aka Venlafaxine)." Thank you for a year and a half of support!

Wondered about the jakedduck name myself. Now I'm dying to know who the first one was if you had to add "1" to yours.

Ever tried Elmer's Dark Chocolates? Some years back, I found some at either CVS, or Eckerds during one of the holiday periods. Really good if you're a dark chocolate fan. I haven't seen any myself for years now.

COMMENT

Thank you for the information and kindness

20171011_094128

COMMENT

@jakedduck1– What a great spotlight! I have to second the fact that I love your honesty and humor! You are a good sport!

COMMENT

@jakedduck1 My mother loved See's vanilla creams, and Hershey's milk chocolate with almonds. She had a bar of that every night. If you wanted to get on her good side you got her a pound of Week's. My sister is a chocoholic, and wants the fanciest around. I myself do not like it [Good thing since it is not allowed on renal diet!]. On another note, we will get to see My. Shasta on Wed as we pass by on way to new home!
Ginger

COMMENT
@gingerw

@jakedduck1 My mother loved See's vanilla creams, and Hershey's milk chocolate with almonds. She had a bar of that every night. If you wanted to get on her good side you got her a pound of Week's. My sister is a chocoholic, and wants the fanciest around. I myself do not like it [Good thing since it is not allowed on renal diet!]. On another note, we will get to see My. Shasta on Wed as we pass by on way to new home!
Ginger

Jump to this post

@gingerw
I bet your Mom liked the the buttercreams of yesteryear too. They were much better than the vanilla creams of today. My dad remembered when their candy sold for 50 cents a pound. Almost $22.00 now.
The mountain probably won’t be very impressive now, not sure if any snow is left. In the summer it looks like a giant dirt clod.
Have a safe journey and enjoy your new life.
Jake

COMMENT
Please login or register to post a reply.

Invite Others

Send an email to invite people you know to join the About Connect: Who, What & Why page.

Please login or register to send an invite.