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Autoimmune diseases, Blood disorders, Bone, joint, and muscle disorders, Cancer, Chronic pain, Eye disorders, Healthy Living, Heart and blood vessel disorders, Kidney and urinary tract disorders, Men's health issues, Neurology (brain and nervous system), Children's and teen's health issues, Caregivers, Healthy Aging

Posts (2072)

15 hours ago · Stigma and Epilepsy (or any stigma) in Epilepsy & Seizures

@hopeful33250
I finished A Mind Unraveled. He probably could’ve cut out 100 pages because I felt a lot of what he said was superfluous. I wish he would’ve stuck more to the facts of his epilepsy. I didn’t think he excepted responsibility for his epilepsy. He just made things more difficult for himself and others.
In my opinion. There are definitely pros and cons being completely honest with people but if I remember correctly he never had any problems with any of his friends rejecting him, just at work.
Take care,
Jake

16 hours ago · Adult Progressive Myoclonic Epilepsy in Epilepsy & Seizures

@possumm
Hello,
Does your son by chance have a Atonic seizures?
Take care,
Jake

17 hours ago · It's hard to prove epilepsy to the doctor when the EEG is normal in Epilepsy & Seizures

@mxyzptlk32
It would be nice if some of the physicians would read the epilepsy forums. Epilepsy is such an individualized condition but just because someone isn’t showing symptoms that the doctors think they should isn’t an indication that they don’t have the condition. But many people have told me after they went to an epilepsy center and they had a seizure that was actually recorded the doctor was finally willing to except the diagnosis of epilepsy. Where are specific signs of PNES vs Epilepsy which is one reason why taking a video of a seizure is very beneficial.
Take care,
Jake

17 hours ago · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

@mxyzptlk32
Thank you for your detailed response I appreciate it very much.
Take care,
Jake

17 hours ago · It's hard to prove epilepsy to the doctor when the EEG is normal in Epilepsy & Seizures

@lsittll
Hi there,
Excellent question. Unfortunately this happens about 50% of the time. Many doctors and even some Neurologists claimed that if you have a normal EEG you don’t have epilepsy which is often far from accurate. Frequently the doctor will just tell you it’s PNES (Psychogenic Non-Epileptic Seizures) and caused by stress which does happen but I don’t believe it happens as frequently as some doctors claim.
Which if your diagnosed correctly means your seizures are psychologically induced however you can have both epilepsy and PNES at the same time or one or the other.
So just because your EEG is normal doesn’t automatically mean you don’t have Epilepsy. Epilepsy is caused by abnormal electrical activity which is unprovoked.
Take care,
Jake

20 hours ago · Depth electrodes to monitor of seizures deep in the brain in Epilepsy & Seizures

Thank you Laurie.
Do you know if they had the nasal electrodes back when you had your intercranial EEG or the type that is put in your cheek? I forgot everything about those days.
Jake

23 hours ago · Depth electrodes to monitor of seizures deep in the brain in Epilepsy & Seizures

@lsittll
I’m curious why you decided to have the intercranial EEG? Was it because you were seriously considering having epilepsy surgery? How many seizures were you having prior to the EEG?
Take care,
Jake

5 days ago · Depth electrodes to monitor of seizures deep in the brain in Epilepsy & Seizures

@fbutterw20
Hello again,
I was just wondering if your son had this these tonic eye deviation issues prior to the inter-cranial EEG and hemorrhage?
Take care,
Jake