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PUBLIC PAGE
Feb 27 9:59am

2019 e-book Published — Experts by Experience: Patient & Caregiver Stories That Teach

By Kanaaz Pereira, Connect Moderator, @kanaazpereira

In the variety of emotions and voices, you will recognize a simple truth: “What matters to me is being heard, being taken seriously. I want to know what the doctor knows...or doesn’t know. And, I want to have a voice in decisions made about me.” –member, Mayo Clinic Connect

Experts by Experience quote from Lee Aase

I'm thrilled to share the second free e-book with you, a collection of patient and caregiver stories published in 2019, in the Experts by Experience series on the Mayo Clinic Social Media Network.

Experts by Experience 2019 eBook coverIn the second e-book, Experts by Experience: Patient Stories That Teach, you will read about the real life experiences–personal journeys–of fellow patients and caregivers during some of their most vulnerable and challenging times. When patients and caregivers share their trials and triumphs with illness, their stories help others going through similar experiences. When they share their lived experiences, healthcare professionals gain a deeper perspective about patients’ needs, their beliefs and concerns. This knowledge can help them improve communication and make care decisions with patients as partners–all of which can go a long way towards healing.

I’d like to especially thank Mayo Clinic Connect members who contributed their stories to the 2019 collection:

The Experts by Experience series brings patients’ perspectives to those who can learn from these experiences–particularly health care providers, and those in health communication and administration. 

The compilation is described as “stories that teach” because patients and caregivers are educators in so many ways–they teach us to find meaning in the loss of health, and help pave the way to create a health care culture that values compassion and inspires shared decision-making between patients and their health care providers. Because “when you are sharing, it offers the opportunity for someone to help you.” –Marala Scott

Download the free e-book (PDF).

@kanaazpereira– I have been asked how to buy this if someone isn't a member. Thank you

COMMENT
@merpreb

@kanaazpereira– I have been asked how to buy this if someone isn't a member. Thank you

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Good question, @merpreb. The ebook is free for everyone. Simply send your friend this link https://socialmedia.mayoclinic.org/publications/

On this page, people can find 3 great ebooks published by Mayo Clinic. And they're all free.

COMMENT
@colleenyoung

Good question, @merpreb. The ebook is free for everyone. Simply send your friend this link https://socialmedia.mayoclinic.org/publications/

On this page, people can find 3 great ebooks published by Mayo Clinic. And they're all free.

Jump to this post

Thank you

COMMENT

Thank you for the book. I just finished reading it. John Bishop's story was especially meaningful as I have participated in it. Thank you to all who put this together.

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