Like you, @zichichvj, I’m raking through my memory in search for possibilities of top medical professionals to study your situation. This approach is necessary, in my case, because complex situations and complicated evolution of problems — such as you report — are the stuff to which great medical institutions such as Mayo Clinic are drawn and most often successful. Also, I’m not a medical professional, just a well-treated past patient and current therapy-receiver whose advice should be taken with a grain of “maybe so.”
@colleenyoung and @vdouglas have given you some excellent counsel on how to engage Mayo Clinic in opening the door to a treatment plan that will meet your needs and your hopes. I will keep an eye on your communications with Mayo Connect in my own hope of contributing something worthwhile.
FYI, my experience over the past 10 years includes bladder cancer, atrial fibrillation, hypertrophic cardiomyopathy, chronic kidney disease, and hypertension. So far so good, thanks to my medical team and a half-dozen medications; together they keep me intact and active at age 82.