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3 days ago · Bladder Cancer in Cancer

Hi, @spooz2. I appreciate Colleen's foresight in asking about your hematuria. I'm hoping you're OK about the diagnosis of an idiopathic condition. That's my situation also. My urologist gave me a long lecture on the wide range of possibilities: Any number of arteries, veins, or capillaries around my bladder might be the source of the blood — tracking it (or them) down would be difficult. Besides, the blood was pretty dilute when it came out, suggesting a relatively minor source, and it ended in a day or two. If it were "frank" (undiluted) blood, we would have spent some time and money tracking it down. Now, 10 years later, I still get a little pink now and then, but don't worry much about it. My (now) annual cystoscope exam reassures me. Martin

Tue, Nov 5 7:53pm · Re: My Scan Results for followup of Renal Cell Carcinoma in Kidney & Bladder

Hi, @azkidney57. I googled the term "lucent lesion" and found an expert response that listed 11 possible lesions that range widely across the possibilities. You can view that response at https://www.health24.com/Medical/Cancer/Experts/Question/What-does-lucent-lesions-mean-20160219. Note that the response closes with a strong recommendation that you confer with your primary physician as to which of the possibilities is most likely in your case so that, if needed, treatment can begin.

Fri, Oct 25 1:25pm · My dad has a mass on bladder and kidney not functioning in Cancer

@tdrohan, you may be interested in my long experience with cystoscopy. I have had regular cystoscope exams for nearly 10 years after removal of several papillary tumors from the lining of my bladder. The tumors were discovered during a TURP (transurethral resection of the prostate) procedure, which is an expansion of cystoscopy, adding a tool to snip off prostate tissue to permit its removal through the urethra. In all of that — including more than 20 cystoscope exams over the years — I had had no repercussions other than minor temporary pain as the 'scope passes through the valve into the bladder. Infections are prevented with 1) germicide application to the external opening in the urethra and with 2) a good antibiotic taken before the procedure begins. I was told at the outset that perforations almost never happen, and when they do, it results from an unexpected kink in the urethra, which is extremely rare. Martin

Sat, Sep 14 11:55am · Bladder Cancer in Cancer

Hi, Stuart (@spooz2). A posting attributed to you last June 18 mentioned a radical cystectomy last October. That normally involves bladder removal, which may be a faulty assumption on my part. Perhaps we have more in common that I thought. If your bladder was not removed, a better question would have asked whether your urologist might visually examine your urinary tract with a cystoscope. Martin

Sat, Sep 14 11:11am · Bladder Cancer in Cancer

@spooz2, your experience Tuesday with hematuria has similarities to mine on a dozen occasions over the last few years — showing up without warning, sometimes producing small clots the size of a pea, sometimes recurring with urination for a couple of days, then just "switching off," as you said. When it first occurred about 8 years ago — 2 years after surgery to remove a dozen papillary tumors and excess prostate tissue from inside my bladder — my urologist reviewed his surgery notes as well as the first half-dozen cystoscopy exams of my bladder linings, residual prostate tissue, and urethra and found no graphic evidence of a source of blood. Finally, he noted that the blood in my urine was diluted quite a bit, not "frank" or thick as it emerged. At his suggestion, we agreed that the dilute blood — even accompanied by a small clot or two — probably had "leaked" from tissues in my bladder and that urgent emergency care could be avoided if the pinkish urine cleared up in a couple of days. So that's a normal part of my life since then (I had another incident just last week). Did your radical cystectomy leave you with an entirely different situation than mine, with my bladder still intact and functioning?

Sat, Aug 31 6:18pm · Have hematuria. Trying to find cause. in Kidney & Bladder

Hi, @fotula. Sorry to hear of your quandary about hematuria, and despite being of a different gender than you, I hope you'll take some comfort from knowing of my experience. Tissues in my urinary system were thinned mechanically — I had a large piece of my prostate removed — about 10 years ago. Twice a year since then I have experienced hematuria for a few days. It is more than microscopic, turning my urine to a light pink color and occasionally forming a blood clot. But all three of my urologists since then have agreed with me that no medication or surgery is needed because — as in your doctor's view — the remaining tissues have thinned allowing blood to leak through into my bladder. I had my annual bladder cystoscopy examination two weeks ago and got a clean bill of health from my urologist — no tumors or growths of any kind and satisfactory efficiency in urine removal. If you see some reassurance in my experience, that's good, and I hope your concerns about the hematuria will abate with the help of your urologist. Martin

Thu, Aug 29 11:15am · Side Effects of Plavix is there an Alternative in Heart & Blood Health

Hi, Sundance (@sundance6). Not to give you any advice, but to share my experience with Coumadin. When I was diagnosed with atrial fibrillation four years ago, my cardiologist (not my neurologist) prescribed Warfarin (Coumadin) in modest doses of 5-7.5mg daily. Almost 3 years later (June 2018) I suffered a "small stroke", probably from a blood clot that formed in my heart after an anomaly in the ability of the Coumadin to prevent clotting. A lab test showed a very low anticoagulation in my blood. However, that occurred only once since I started taking Coumadin and has not recurred since my stroke last year.

Note that Coumadin was prescribed for me in order to prevent a stroke, not after I already had one. That sounds more like advertising for Eliquis which suggests that it's good at preventing "another stroke." One reason my medical team and I have stayed with Coumadin is that an antidote is readily available, if needed when bleeding starts as a result of an accident of some sort. My pharmacist suggested that I switch to one of the other anticoagulants, but he could not guarantee that antidotes were regularly available for those other drugs, so we turned them down and I remain on Coumadin. Lab tests every two or three months reassure me that Warfarin is doing the job of avoiding clots forming in my heart.

Hope this information is useful to you and gives you some questions to pose for your medical team about your need for an anticoagulant medication — and which one. Martin

Tue, Aug 27 10:59am · Bladder Cancer in Cancer

Hi, @spooz2. Glad you're back with us after 10 weeks or so and that you came across this press release from a European research team. It claims good results for four patients with metastasizing bladder cancer by attacking a protein molecule that's pivotal in establishing new cancer cells that travel away from the bladder to other organs, near and far with the body. It's good to learn of your interest in metastatic cancer, assuming that your medical team's diagnosis of your case raises that possibility and that it is on the list of conditions that your therapy plan will confront. Perhaps they will consider this new therapy among those that would be promising in your case. If you can, keep us updated on what has evolved in your treatment over the past 10 weeks and what you're hoping to do next. Martin