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2 days ago · Chest pain > a month in Heart & Blood Health

Hi @brrn, welcome to Mayo Connect. Glad you had the chance to access our information exchange, especially because you may need to take some steps today to get a handle on what's causing your chest pain. Take a look at the Mayo Clinic symptom checker located on the Internet at https://www.mayoclinic.org/symptom-checker/chest-pain-adult/related-factors/itt-20009075. At a minimum, I'd contact my personal physician promptly to see about the possibility of a heart problem. In addition, take a few minutes to find out when and with what symptoms you should call 9-1-1 for an assisted ride to an emergency room. Notice on the web page (along the left margin) the following advice:

Get emergency medical care if:
* You have uncomfortable pressure, fullness or squeezing pain in your chest for longer than a few minutes OR
* Your chest pain is accompanied by shortness of breath, sweating, nausea, dizziness or fainting OR
* The pain radiates beyond your chest to one or both of your arms or your neck.

I hope this information helps you decide what steps to take to deal with the pains in your chest, neck, jaw, and temples. Best wishes for getting some quick professional answers. We'll be interested in hearing how your medical treatment turns out. Martin

6 days ago · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

I worry that some might believe that, without palpitations, their A-fib is inoperative and they can get careless about taking their medications and getting their exercise and other therapy routines done. Don't be fooled. In nearly 5 years after my A-fib was diagnosed, I don't remember EVER having palpitations, but the irregular heartbeats were drawn clearly on every EKG my primary care physician administered. And here's the clincher:

Last June, I suffered a stroke. Without warning, I lost my ability to walk smoothly and ultimately tripped over my own feet and fell on the lawn. Fortunately, I escaped injury, but some loss of mobility has beset me ever since — even to the extent of interfering with my ability to articulate words as I once did as a public speaker, actor, and singer. An MRI confirmed a "small stroke" near my hippocampus (so my memory isn't what it used to be either).

My big mistake was waiting several hours before being taken to Urgent Care by my daughter. Never again. If ever again I have even minor stroke symptoms, I am going to immediately call 9-1-1 and have emergency medical personnel take me to the hospital, calling ahead so ER staff are ready for me when I arrive. I hope my experience will be taken seriously by everybody who has heart rhythm problems, because a stroke is a shadow over you, whether you feel it or not. Don't take a chance. Martin

Sat, Jan 5 11:43am · Information about Renal Parenchyma Disease. in Kidney & Bladder

Welcome to Mayo Connect, Hope (@hopeudoh). I am anxious to give you some information about your disease and some assurance that treatments are available, both as long-standing traditional therapies and in clinical research trials that are testing new therapies. But it might not be possible for me to answer your questions without knowing something about what might be the cause of your Renal Parenchyma Disease. There is number of possible causes — diabetes and high blood pressure, for example, are only two of a dozen or more possible causes. Also, the threats from the disease range across three grades, from low to high; the level of threat is important in selecting therapies for your treatment plan.

With that background in mind, may I ask how you obtained the diagnosis? Do you have ready access to a Nephrologist? How about an advanced medical clinic known for its study, diagnosis, and treatment of kidney diseases — famous in the field of Nephrology? For example, could you take advantage of Mayo Clinic services described in this web site: https://www.mayoclinic.org/departments-centers/nephrology-hypertension/minnesota/overview/specialty-groups/glomerular-disease-renal-parenchymal-clinic/? As an alternative, could you access the leading public medical college in your state?

If you wish, get back to us with any additional information you can share about your diagnosis or your ability to access the services you need. Martin

Fri, Jan 4 11:56am · Have hematuria. Trying to find cause. in Kidney & Bladder

Well, @rosegirl1, I can understand why you are tempted to think you have a rare condition. That's a natural conclusion when one becomes ill repeatedly under similar conditions. I'd feel the same way, and I'd want to get a handle on the root cause of the bacterial infection. In particular, I'd want to find a way to phase out the use of antibiotics, which too often are a doctor's way of treating the symptoms and ignoring the basic cause. When you see your new urologist, I hope you'll have a list of a half-dozen or more questions you'd like answered — questions that are based on detailed descriptions of the symptoms you mentioned. Will you be able to give your new urologist documents and reports from the prior examinations and treatments you've had so that the full picture can come into focus? I hope you can get on the trail toward the treatment you need with a doctor who's willing to help you be confident that your condition is stabilized and under control. Martin

Thu, Jan 3 9:46am · Blood in urine in Kidney & Bladder

Good morning @kayss. Welcome to Mayo Connect. I don't know whether my experience could be helpful to you and your hematuria problem, so I'll refer two of my postings on the problem earlier this year for your review. One occurs here:https://connect.mayoclinic.org/discussion/have-hematuria-trying-to-find-cause/. The other is at https://connect.mayoclinic.org/discussion/blood-in-my-urine/. In both instances, please scroll down to find my postings (stopping along the way if you find somebody else's input of interest). I hope you'll find reason to join me among those with the problem who are not particularly concerned or fearful.

Dec 31, 2018 · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

I'd like to raise some doubts about proposals by @afrobin for getting off common medicines for treatment of A-fib and its symptoms — first the recommendation for rigorous exercise to make it possible to cut off use of beta blockers within a month; second the idea that anticoagulants are not needed if A-fib is ended ("cured"?) due to exercise, and third that if you have A-fib you can get clear indications from your heart on whether medications are even needed. I don't feel that these proposals are wrong, just that they may be unique to the condition of one or a few patients and unfortunately fatal to a few on the other end of possibility — myself, for example.

First, I get no signals from my heart about my A-fib, which I'm told is clearly obvious on an EKG; otherwise I'm conscious of it only by watching my heart rate's irregularity on my blood pressure meter at home. Second, my A-fib medication is a relatively strong dose of a beta blocker twice a day and a medium dose of Coumadin anticoagulant once a day; these meds have applied for nearly two years. Third, my exercise regimen is challenging, but not comparable to running a mile. I was preparing last Spring to begin a gradual reduction in my beta blocker medication over a period of two-three months.

However, out for a brisk walk in June, I was struck by symptoms of a stroke, my return home on foot was belabored by loss of balance and repeated stumbles. At urgent care several hours later, the MRI showed I had suffered a "small stroke," probably from an A-fib clot ejected into a cranial artery. Movement of my left arm and leg and my jaw was affected. I spent six weeks in physical therapy and regained my balance as a result.

Lessons learned? First, if I ever again experience symptoms of a stroke, I'll call 9-1-1 and get emergency medical transportation and care right away. Second, I'll be less determined to back down on the medications that have carried me thus far. Third, coordination with my medical team is required before I take ANY steps to modify the therapy my doctors recommend. I hope other A-fib victims find something helpful in my experience with it, especially to avoid cutting back therapy unilaterally. @afrobin's decision to follow this practice and work with a doctor is a good example for us all. Martin

Dec 29, 2018 · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

Wondering @healthytoday whether this Southwest Xmas tree is growing on the lawn of the Scottsdale Mayo Clinic. If so, you're most fortunate. Martin

Dec 28, 2018 · Fly Fishing, Gardening and the Northwest: Meet @thankful in About Connect: Who, What & Why

Golly, Jim @thankful. I'm glad I had the presence of mind to be a little helpful last Spring, and I'm glad to hear that your life is now revolving around Oregon's steelheads. Growing up in Northeast Iowa, my favorite fishing was for brook and rainbow and brown trout — smaller in every case (but two) than the one in your picture here — and smallmouth bass (the subject of my dissertation in Ecology in 1958). Now in Virginia, I have my choice of trout in mountain waters within 50 miles West and big rockfish within 50 miles East. If you find a reason to relax on this end of the continent, I'll be glad to show you some good holes! Thanks for your kind remarks! Martin